I got on here to research L Glutamine for diarrhea (I had surgery in 2014) and since that time the diarrhea has been out of control! I'm going to give it a go!...
Thanks AustenFan, I definitely have the drainage going on. I'll see what the ChlorTabs do for me. We're working on elevating the bed as well. This cough has gotten out of hand and now wakes me up at...
Yes, my throat does lean on the dry side. Lately, any time I lay down I start coughing and I'll wake up at night with the dry cough, tickle in my throat that makes my eyes tear. I've also noticed a...
Hi everyone, I'm new to this forum. My symptoms are primarily a chronic cough with some production, a thick feeling in my lower throat (like there's something there and I need to clear it), inhaling...
Hi everyone, I'm new to this forum. My symptoms are primarily a chronic cough with some production, a thick feeling in my lower throat (like there's something there and I need to clear it), taking...
Thank you all so very much for the advice and insight. My stool tests came back normal so that's good news. I'll ask my MD about the medication you all recommend. :-) Thanks again!...
Hi everyone, I haven't posted in awhile, but always find my way back home. I had a re-section in August (2 1/2 ft of colon removed) of last year. Since then, I've pretty much maintained chronic...
I started this post back in 2005 and I had no idea there were so many responses! I'm not going to say do it or don't do it because I think just like our disease course, we are all individual in what...
Hello there. I mostly try to limit dairy as much as possible and sugar, no fried foods or fast foods really. That seems to help me. There's a lot of good input above, but I think someone hit the nail...
Oh thank you so much Mark! I'll check that out. I was interested in the connection of chronic inflammation to chemicals in the brain and if there is a connection. Looks like a good research project...
Thank you all so much for the responses. I'm trying a few holistic things now, diet being one of them (cutting out sugar mostly). I know I need to work out :-) but being blah and tired a lot it gets...
Hello everyone. I haven't posted in awhile but I've been a member here for years. My question is regarding anxiety with minor symptoms of depression. I'm wondering about the link between chronic...
Well hello there ChefPatrick :) I'm hoping this will pass, but I do believe it's from the taper off. . . my side has started hurting a bit too. I'll watch it closely though, not let it get to bad...
I started prednisone at 40mg (was on that dose about 6 weeks) and have been tapering by 5mg per week, I take my last one tomorrow. I had a remicade infusion last Wednesday and my remicade has been...
I gave up coffee after years of drinking it. I switched to tea and it doesn't hurt me at all. After awhile I didn't even miss it and now I don't crave it at all :) there's tons of teas out there to...
http://www.ibdetermined.org/ Just in case you missed it :-) Support forum from the CCFA. . . because we can use all we can get!!...
Hey cannynancy, I don't think you'll have to worry to much about it, since that's not a super high dose and your taper is pretty quick. I'm tapering from 40mg down to 30 now and I've been fine. It...
Thanks Gail, it seems like with me lately if it's not one thing it's another :( I started back up on 6MP too and someone said they get reflux from it? I'm just doing half for now and will build up to...
Hey Nanners, would I take it before bedtime to get the most relief? Or just with food in general?...
Wow! That's exactly the way it feels... my bladder hurts too! Okay, I'll be more careful from now on. Thanks for replying :)...
It could possibly be causing symptoms, as most meds have D as a side effect. I had the horrible joint pain while I was on it and had to stop....
Is it pretty common to wake up with horrible stomach pain? It's not really cramps, it's almost like a sour stomach with tinges of sharp pains. I wonder if it's something I eat at times or what is...
Prayers going up!! Here's to a speedy recovery and long lasting remission :) *Hugs*...
I think it's mostly because I'm so frustrated with it. I feel like it's not working anymore and my doctor wanted to give it one more try (moved it up about 4 weeks) to see. Of course it'll be later...
Percoset gives me headaches too and makes me feel really loopy. I'm taking ultracet right now (which is a tramadol/tylenol mix) and it seems to work well with no side effects. Sorry your suffering :(...
Well, my dr. said could be flare or could possibly be prednisone. He wants to continue with the remicade, but it's at least going to be put off until next week. I'm just not wanting to get it at all!...
Hey Vicky, no one has suggested it, but I was wondering the same thing. . . I sure hope I don't :(...
I just got off the phone with the NP and my culture came back negative for any bacteria. I did have a UTI last week which they treated with a 3 day regimen of Bactrim. Well, my kidneys/back are still...
BeeSting I sent you an email with a few questions :)...
Thanks everyone for the input!! I decided to stick with the one I was on bc the place I went to really didn't have a whole lot to choose from and most of them had fructose and added sugars. . . I'll...
Hello Jenny5 and welcome to HW! I'm not sure how to answer your question but I know there are a lot on here who will. I recently started 6MP too and we haven't scheduled any blood work, but I'm off...
I'm due for a refill on my multi and was thinking of switching to liquids but I'm not sure. For those of you who use liquid, what brands? Do they hurt your stomach or make you feel nauseous? Morning...
Awesome!! Thanks for posting this :-)...
Very informative article, a must read. http://www.aafp.org/afp/2001/1115/p1725.html *activated your link*...
Probiotics=good ;-) I think a lot of us on here take them. I'm not sure on your other question, but I'm sure others will know and come along with some insight. :)...
There is a patient assistance program for Pentasa, go here and then follow the instructions. I was on it, they give you the med for free. Good luck to you! *hugs*...
Oh awesome! Thanks for letting me know. I was thinking of doing the same thing. So it's ok to break it in half and take it like that? I was also thinking of maybe doing half in the morning and half...
Wouldn't it be really hard to do that diet if your flaring? I know right now I'm living off white noodles. I like the concept though....
Yeah, I'm not sure:( I think the UTI isn't helping anything at all. I forgot to mention I had a pounding headache about an hour after I took it and when I woke up this morning....
I'm in the same boat you are. I've been flaring between infusions for over a year now and flaring bad now. I was in the hospital about 3 weeks ago. My doctor moved my remicade up (4 weeks) and I'm...
Hugs and prayers going your way!!...
Does anyone break up the 6MP and take half in the morning and half at night? I'm really struggling with this drug. I've only taken it 2 nights and this morning I could barely open my eyes (which were...
Yeah, the stomach cramps could have been from the UTI, (which I verified I have today) bc my kidneys were killing me. Hopefully the antibiotic will knock it out quick :) Thanks everyone for your...
I took my first 50mg of 6MP last night around 9pm. I had eaten dinner so it wasn't on an empty stomach. It seems like about an hour later my stomach started cramping up and I was having waves of...
I just want to say good luck :) can't wait to see updates!...
Thanks everyone, I really want to give it a try. He started me on 6MP today, moving remicade up (4week intervals) and actually giving it one more shot. Just not sure it's working anymore. I'm still...
I just wanted to give a little update. I talked to him about it and he is open to trying it! Just as soon as we get this flare under control :) He even thanked me for being so educated and doing my...
I stopped taking it because it just wasn't working that well for me. I also had really weird side effects while on it that sent me to the ER once. Then about a month later I flared up really bad and...
If you dissolve the 50mg, as I've read a lot of ppl do. How do you take it? Do you take it with juice or water or just drink it down? I'm pretty sure my doctor will say no right now because I'm...
Haha yeah pictures are the worst! Last time I was on pred was during the holidays.. so there are pictures. It's kind of neat to show ppl though, they can't believe how big a face can get lol...