I was on them for like 7 years, and they must have helped because my Crohn's got better for quite a while. Now not so much....
I have constipation all the time with my crohns....
Nope. I have a stash of pentasa at home. I need a colonoscopy but have not done it as the deductible and hospital charge with my Kaiser insurance that we pay $900 per month for my husband and I,...
Nope I don't bother. Thanks to Obamascare....
Has anyone tried Digestive Enzymes with their meals? I have a lot of constipation, nausea and bloating the last year. Probiotics usually just make me bloated and gassy. Or I was thinking of trying...
Can you explain the symptoms of a stricture? I had a small one years back but am now experiencing bloating, pain, nausea and bad constipation. Everything I eat all day is supposed to help my...
I'm hoping they Replace Obamascare with more competitive insurance, offering lines across the states. I for one pay for private health insurance and it's so costly now since obamascare. I can no...
My allergist said everything has to do with your gut, and all my allergies are due from my crohns. Living in CA I had sinus infections twice per year. I have moved to WA so we will see....
Yes I finally took an Amodium and it helped. I usually have constipation but boy once that D starts, forget it. I do have filtered water and take supplements though I'm afraid to take supplements...
Thank you! I can't stomach the taste of gatorade from having a few colonoscopies, and drinking it all night, lol. Too sweet. I've been researching what else I can use to help electrolytes, such as...
I've had crohn's for about 15 years now that I know of. It's usually been quite mild, tired, constipation, etc. Now I'm in a flare the last couple of months that I cannot shake. I have appointments...
Hi, no I don't do any conventional treatments. All they did was cause IBS and make me worse. I take pentasa and occasionally entocort if I have a flare, but so far not any side effects. A lot of...
I had breast augmentation before I was diagnosed with crohns...and when my doctor put me on remicade, a few months later the remicade starting rejecting the implants. OMG the pain, as soon as I told...
Yes it wears off. After being taken off of it, I had to wait about 1.5 months for it to wear off......
So I’ve had Crohns for about 5 years now. I was laid off from my job 2 years ago, have no medical insurance and cannot purchase it because of my crohns. I am working a temp job in a hospital hoping...
I am terribly bloated too and I can't stand it right now. I just went back on Entocort for a month and hope it goes away when I get off!...
Is Pentasa considered a maintenance drug? I've been on that for like 4 years and recently went off all steriods, quit humira as it just made me sicker, and was med free except for Pentasa for a good...
Hi guys! I've been unemployed now for 6 months and have an interview with a huge company but the problem is I'm on Kaiser now and love it! I pay for cobra with the help of the gov't but the gov't...
But the diarrhea started while on Humira? So I'm confused to say the least. I will right down these meds and discuss with my doctor, i have an appt in 2 weeks. Thank you!...
I got it....
I was laid off 5 months ago! I pay COBRA but if you are laid off your cobra is like 1/2 of what cobra would normally be. Pres Obama signed this new legislation because of so many people losing their...
I am kind of in the same boat as well, I was on humira and my symptoms started getting worse. Now my doctor insists my crohns symptoms are really just IBS symptoms and my crohns is a diffferent issue...
I received the regular flu shot and the H1N1 this year for the first time ever....and I'm already in a flare so it's hard to tell but this week I've one of the worst episodes ever after the shots!...
Does anyone know of a medication or something natural that I can take to help with the diarrhea and severe cramping? My doctor says to take Citricel but that's to control my diarrhea...ugg, my...
I just got married at 40! Although since the wedding and wedding planning STRESS, I have gotten sicker since we got back from the honeymoon....don't give up! There are people out there who are...
I had to go off of it as well, I have breast implants and it started making them crazy painful and my surgeon said the meds were making my body reject them!!! So about 6 months ago, they tried Humira...
Miralax all the way baby! So much easier and I even got complemented on my cleaning!...
I just started mine on Monday..........I am very tired. I feel kinda weird, but can't explain it. I don't have any major symptoms with my crohns, except for lately pain in my right side. My small...
I have to pay a $300 deductible and that's on KAISER! I am getting my first injection today....
OK so I had a colonoscopy over 4 WEEKS ago and ever since I had the procedure, I feel HORRIBLE. (They found a small stricture and dilated it while in there). My doctor put me back on Entocort, and I...
OK but I always assumed Ibuprofin was an Nsaid? I will try it and if I don't find any relief, I'll be off of it very soon!...
So this is what Doctor said in response to my questioning taking an Nsaid: Hi Jennifer, although it is an NSAID, it is not very likely to cause bleeding or flare the crohn's. Let me know how it...
Has anyone tried supplements such as this for joint pain and any relief? http://www.synotrex.com/index.html...
I have joint pain with crohn's disease. Anyone tried these supplements and do they help? http://www.synotrex.com/index.html My gastro just prescribed Clinoril (Sundilac), an Nsaid and I am not sure...
I emailed my doctor asking why the prescript ion for an Nsaid. I even had in my original email about my joint pain that Advil would help, but I was always told not to take it, especially after I just...
I see, that makes sense. I think I'm gonna try it, right now the joint pain is way worse than the crohns pain. Thank you....
I see, he is a kaiser doctor too, maybe they don't care. I just had a conoscopy and they used a baloon to dilate a stricture? THey said some amount of bleeding. Either way I did email him and ask him...
I took Miralax, it's a powder that you mix with apple juice or gatorade, plus 3 ducolaxes. My doctor said I did an excellent job and I didn't throw up once! It's over the counter, get a small...
So my gastro prescribed me Clinoril (an Nsaid for arthritis) 200 mgs per day for my pretty bad joint pain that started about a month ago. My shoulders, knees, feet and back are hurting pretty bad,...
I JUST had my colonoscopy monday! The doc said I cleaned out sooo well for the procedure, I actually used Miralax and Gatorade. You can find the prep directions all over the internet or just reply...
I took Entocort for 2 years and went off for a year. I had horrible reactions to Remicade.......docs took me off all meds except for Pentasa. Now they found a stricture and I will be going back on...
I am supposed to start taking it after a month of entocort too for a stricture..........curious to find out more about it too....
If there is a probationary period before benefits kick in at your next job, make sure to pay for COBRA in between so that there is no GAP in insurance or you will be denied for crohn's. 30 days is...
I have pain under my right rib (Upper Right Quadrant) and have a stricture from crohn's disease near the terminal ileum...........
I had 3 infusions of Remicade. It didn't agree with me, I was getting serum sickness........and then it actually started causing severe pain in my breasts (I have saline implants) and started...
I have had mid back pain for years, had no idea I had crohns. Once I started meds it subsided for over a year. I was able to get off of almost all meds.....except Pentasa. Now when I sleep at my...
Thanks for the information. I still haven't heard from the doctor, but I assume that this just means to go back to more meds again.....I have been on only Pentasa for over 6 months now. Thought Iwas...
So the nurse just called and advised me in my cecum, moderate inflammation and found a stricture which they had to balloon to open. Doctor should follow up with me in the next few days. Does anyone...
I don't remember much, doc said he found inflammation and took some biopsies.........guess I was hoping disease had gone inactive, but i guess not....
Well I'm done with my colonoscopy, had it yesterday and you guys were right, I felt NOHTING! Nor did I remember much! I didn't even remember my boyfriend when he woke me up in bed after I got home!...