Hi everyone, I'm still undergoing process of diagnosis. I've had tingling before, but only on the left side. Now, it's on both sides. It starts going down the side of my head and down through my...
I've had severe PsA for 8 years. It's in practically every joint, or at least every major joint, including my spine, sacroilliac joints, entire left foot, right knee, both hands, shoulders, neck,...
I've taken both methotrexate and leflunomide separately, but about 2 wks ago I started taking them together and I'm feeling really sick. I'm taking 10 mg. methotrexate and 20 mg leflunomide daily....
Thanks so much for the reply! It was very helpful and definitely ruled out some supplements I was considering trying....
I'm taking methotrexate to treat PsA and I know certain supplements that boost the immune system (eg echinacea) shouldn't be taken as they can counteract the immunosuppressive aspect of mtx. I've...
I've heard a lot of people have had luck using probiotics to help with digestive issues. I read that not all probiotics are created equal. I tried an internet search with no luck. Does anyone hear...
This is actually my 3rd time taking methotrexate. The first time was fine,I took it for 1 year, but I had an incomplete response, so I was switched to humira. Then when humira started causing MS-type...
I went to a naturopath to find out alternative therapies for my severe RA. She's prescribed a bunch of herbs and supplements, but before I take them I want to ask if anyone knows if there are herbs...
I've had severe RA for 8 years. Recently, my fatigue has become significantly worse. It's almost worse than dealing with the joint pain. It's hard for me to get up in the morning. No matter how early...
I forgot to say, I'm taking methotrexate too. That was originally prescribed for my psoriatic arthritis, but the GI thinks it will do double duty for the Crohn's. So I guess the mtx is my maintenance...
I've just been diagnosed with early, mild Crohn's and I've been prescribed Entocort. Do people have any advice i.e. food, alternative treatment, lifestyle changes, for someone who's just been...
Finally, I got a Crohn's diagnosis. I have very early, mild Crohn's in my terminal ileum. The GI has put me on entocort. As many of you can understand, I was pretty overwhelmed when I was in the GI's...
During my small bowel series, the radiologist found narrowing of my terminal ileum and what he thinks might be the string sign. Today, I'm having intermittent pain in my lower right quadrant. I know...
If/when I get my Crohn's diagnosis, my GI said he wants to start me on entrocort. Has anyone here taken it? What is it like in terms of side effects?...
I had the small bowel series last Friday. According to my GI, it showed narrowing of my terminal ileum and what might be the "string sign." Still, however, I don't have a Crohn's diagnosis. Since I...
Thanks everyone for your input. Glad to hear I'm not alone. I definitely think the small bowel series is much more painful than the doctors let on. I was really surprised about that. josh2415, I also...
As I said in a previous thread, I'm undergoing testing for Crohn's. I had a small bowel series Friday, and the doctor said I'd probably experience constipation afterward and to drink plenty of...
Thanks so much Nanners and ivy6. Did as suggested with the water and feel a bit better. Had a really bad "attack" last night, but today it's starting to feel better. Definitely less abdominal pain....
Probably about a 6....
I wish I could provide some reassurance, but sadly that's not the case. I was on humira for psoriatic arthritis for 1.5 years. I ended up being pulled off of it because I started to have MS like...
I had the small bowel series yesterday with barium and fizzing crystals. The abdominal pain started during the testing and was especially bad when I had to lay down. It hurt to even breathe in...
I reread the colonoscopy report. The level of insertion was ileum to cecum. The illeum was "grossly normal." All biopsies taken were normal. The radiologist who did my small bowel series said he...
He said "last part of the small intestine." I assume that means the Terminal Ileum, right?...
Today I had an Upper GI with Small Bowel Follow through. The radiologist who was doing the procedure said the last part of my small intestine looked suspicious and inflammed. The barium wasn't...
I had the Celiac blood test last year that was positive. I opted not to do the small bowel biopsy and instead just went gluten-free. Immediately I felt better. I've been gluten-free for 10 months....
Finally got my biopsy results. According to my GI, they didn't find anything on the biopsy to indicate either Crohn's or UC. He said the "non specific inflammation" might be due to the bowel prep....
I know this is a bit TMI, but while doing research about IBD I read that people with Crohn's or UC can go to the bathroom up to 20-30 times per day. Does this mean the actual number of visits to the...
Thanks everyone for the great insight! I had a colonoscopy last Tue. and they did find inflammation in my sigmoid colon and rectum. I have an appt. with my GI tomorrow, and hopefully my biopsy...
Have people gone to PT to deal with their RA, and has it been successful? I have arthritis throughout most of my major joints: knee, hip, back, shoulder, neck, hands, wrists, feet, etc. Could PT help...
No, I'm currently unmedicated for IBD. I've been taking leflunomide (arava) for my arthritis, which is an immunosuppressant. I'm not sure if that would make a difference....
Thanks MaxMilian! That's very helpful! On my Colonoscopy report, it says I have inflammation in the distal sigmoid colon and proximal rectum. I'm not well-versed in anatomy. Does that mean I only...
Are there ever cases where UC appears in the sigmoid colon, but not in the rectum? Or does UC always necessitate rectum involvement?...
I'm very sensitive to medication and tend to get many side effects, including the ones listed as "rare." Due to this, I'm trying to research Crohn's medication so I can find a medication with the...
Hi my name is Kathryn and I'm currently undergoing testing for UC and Crohn's Disease. I've been battling severe diarrhea, cramping, abdominal pain, uveitis, mouth ulcers, and arthritis for 8 years...
Forgot to add, I did see a pic of the inflammation area and it was blood red, and very angry looking. The "normal" parts of my colon were a rather pretty pepto bismol shade of pink....
No, not yet. A different doctor did my colonoscopy from my GI. I don't know if he's just waiting for the results of the biopsy, or what. I see my GI next Thursday, so hopefully the biopsy will be...
Had my colonoscopy this afternoon. Not nearly as bad as I expected. The doctor found "nonspecific inflammation in the distal sigmoid." He also inflammation in the proximal rectum. He took multiple...
Hi everyone, My name is Kathryn, I'm 30 yrs old and I've been suffering from arthritis for 8 years. I've never been in remission or out of pain for a single day. I've tried multiple medications,...
Here I am with more questions......So sorry to be a bother, I just know we have experts here, and I'm completely clueless. Thanks so much for everyone who's been patient and responded so far. This is...
I have severe debilitating psoriatic arthritis, so bad that I didn't walk without crutches for 2 years. After trying numerous arthritis medications, methotrexate was the first that actually made any...
Hi everyone, I'm currently undergoing testing for what my doctor suspects is Crohn's Disease. However, my former doctor thought I had IBS (of course she ran no tests). I've had increased cramping in...
No greasy food. I've actually been sick with bronchitis for the past week, so I haven't eaten much of anything. I did have a small gluten free pizza last night, but I regularly eat those, and don't...
I've been on Methorexate twice. The first time I took it for 2 years before switching to Humira. I had no hair loss, but the day I took it, I usually felt like I had the flu. Low grade fever,...
This may be TMI, so reader be warned: ;) This afternoon I had a really bad attack. Definitely one of the worst I've had in awhile where I didn't think I'd make it to the bathroom. After going, I...
Thanks everyone for the great tips everyone! I'm starting the prep at 4pm on Monday. Does anyone know approximately how long I'll be having diarrhea? Does it stop once I finish the solution? Will it...
Today I got my jug of colonoscopy prep from the drugstore. I'm a little initimidated by the size of it, and very nervous about the prep. Does anyone have any tips on how to get through the prep with...
Hi everyone, My name is Kathryn and I was diagnosed with Celiac Disease in June. I've been gluten-free ever since. 48 hours after going gluten-free I started to feel significantly better. However,...
I used to take methotrexate for psoriatic arthritis. I found it to be really effective for my arthritis, but during the first several weeks, the day I took it I had flu-like symptoms for the rest of...
I have severe Psoriatic Arthritis. Here are some of the things I've done: Prednisone Blast--sometimes even more effective than reg. prednisone. It'll give you a high blast of it. Ask your doc about...
Thanks everyone! This is a great forum. I understand the difference between IBS and Crohn's in terms of Crohn's causing visible damage and inflammation where IBS is more a syndrome with symptoms like...