Wishing you loads of well wishes and hope you are getting stronger and stronger each day. Take care of yourself Hugs dorri...
From my experience, when I asked my GI that very same question why my iron was low when I haven't had blood in my stools, he said just because I don't see blood, does not mean I'm not losing...
NCOT, that number is still low enough to make you feel like crap?. I hope it comes up for you real soon? Mind you, taking anything like iron pills right now to bring up the scores may constipate you,...
Could you have lost lots of blood during surgery, maybe you need a blood transfusion?. If you were actively running to the washroom before surgery, maybe you did wash out your iron stores? We don't...
Oh wow NCOT, glad it's over and glad you got that stoma moving!. Thanks for your sense of humour amid all that pain! I can visualize it now, ouch that hurts! Hopefully you will get to enjoy your new...
Hopefully soon it will all be over and you'll be on the road to recovery. I was awoken with the urge to run and it's 3:30 am and now I can't fall back asleep? Wishing you a good quality of life with...
Hi Miranda, of course we remember you, Wishing you all the best on your surgery with a very speedy recovery and prayers that it will be successful and that you will never have the urgency to go...
Hi, can anyone help, I have severe nausea with Rabeprazole 20mg? I am only on Day 4, but I have had enough? When I went to the doctor I was complaining about nausea and not being able to eat, so he...
Hi Minnie, sorry to hear you're having on going problems. I was on low dose prednisone for almost 30 years on and off, sometimes given a larger dose when I was in a flare. It kept me in remission....
Thank you for that information. Yes, narrow, or small or collapsed or rolling veins can be such a problem in an IV world? I only had an occasional problem before, now the veins are a problem most of...
Thanks Susie, I'm done with the infusions because of the vein problems and getting the IV in so I really would prefer to stay away from that, unless it's an emergency. I know that Stelara can be...
Thanks NCOT, yes, I was taking Questran before surgery and it worked almost every time. After surgery, nope, I still have the diarrhea so the GI doctor said it's not bile acid diarrhea, and to quit...
Hi 73monte. and thanks. I tried Remicade in the past, it didn't go too well. My doctor talked me into trying it again but after testing, they found I developed high antibodies towards it. I am...
Well, I had my problems with entyvio from the beginning?. This past summer, my veins were giving them many problems so the nurses suggested I talk to my doctor, about trying the entyvio injection...
Thanks Susie, I'm so so, carrying on, will post to update....
I'm skeptical about this. So is thousands of other things said to cause crohn's?...
Thanks currently on Entyvio, and the joint pain did worsen and occurs more often now. Which joints? finger joints, shoulder joints are really bad, sometimes with pain in my mid spine, and knee...
Hi, quiet here, but I thought I would ask any way? I have a question?, I have very bad joint pain, don't know if it's from the crohn's treatment or just a complication of crohn's itself? My GI will...
Thanks 73Monte, Thanks to you and Susie for helping me out a while back. I'm still with entyvio and still complaining. When I think back to the gut pain I had before, and compare then to now, I think...
NCOT, sorry to hear you are still not as well as you had hoped to become? In 2018 I believe it was, we were to meet at the pond in honor of your beloved brother, but you had gotten sicker just...
Hi Clo, funny, how this page just popped out of now where when I wasn't expecting? I hope you're all well, considering? I'm still here, but quit coming to the board quite some time ago because hardly...
I have recently developed the loud noises that range from loud growling, rumbling to pinging and shooting noises and it is so embarrassing I don't want to be around people or eat with people because...
[I don't know if there is more than one brand of shingles vaccine, but I was told about one being a live vaccine, and to be careful if you are having immune issues? Maybe ask your doctor, they are...
I'm very happy for you. Something you don't need, but please continue to take prevention measures to make sure you won't get it? My sister had to also take a Covid test last Thurs, due to symptoms of...
Nice to see you Nanners, I remember you from a few years back and it was a pleasure to read your posts and responses. I've noticed many of our HealingWell regulars are no longer visiting here, but...
I'm on Lansoprazole, but I've been on Pantoprazole in the past which made me very nauseous. As for the diarrhea or looser stools, it is listed as an adverse affect of PPI's, saying it may cause...
Hi Miranda, nice to see you on here. Been thinking of you. Glad your test for Covid came back negative. I don't come on the boards often, but read up once in a while. Been MIA and having it pretty...
Thank you for passing this on. Am I reading this right, does it mean I will have to self inject every 2 weeks instead of every 2 months? I hardly have any fat or muscle and if it's as painful as...
Doctor told me today that a self injectable formulation of Entyvio to do at home is coming here to Canada? Has anyone tried this already? If so, how did it go for you? Think I will be happy to lose...
Thank you, I was doing just that at my Family Doctor, but I felt he felt intimidated when he asked me what do I want them for? He was charging me a fee and I don't know why, I just quit asking for my...
Thanks , I hope the rescheduled infusion goes smoothly as well. I've started extra hydrating today and will continue till my infusion, and hope my veins will show up more this time around. I wish...
Well,I had tried infliximab years ago. The doctor wanted to put me back on, so he sent me back for all the preliminary tests I needed beforehand. I changed my mind about the treatment, but he got...
Thank you, and they did notify me later this afternoon, and my appt is for Wed. Just a couple days over a month from my last infusion, but now between then and the next one originally pre-scheduled...
Oh no, your veins too? they did try the hot pack they just couldn't get the proper vein to get the IV flowing, but I will keep in mind to drink extra. They contacted me today, they changed their name...
Actually Imodium has helped to slow diarrhea down and without pain, but I have to say I still have BM's that aren't very normal, Not much comes out of me, so don't know where it's going, maybe my...
Sparkleplenty ,just wondering if it works for you because your body has a greater need for magnesium, and milk of magnesia fills that deficiency? Just a thought. Perhaps your doctor recommended that...
Thank you. I can't recall using milk of magnesia, but I have used products such as Pepto bismal, kaopectate, charcoal, probiotics, L-glutamine and several others I also used metamucil and Citrucel,...
Well, I am on entyvio as well and while I can't relate to continuous headache, can certainly relate to the fatigue. I find myself napping or should I say just laying back and resting and next thing I...
Hey all of you sure sound like me with your symptoms. Thank you Susie, you've been through so much too, all of you have? I was questioning the amount removed as well, thinking I didn't have enough...
sparkleplenty and others, do you think there is still hope for me remaining on entyvio, and that it may still kick in and work on the diarrhea, and I will feel the affect. I will be going on 5 months...
Thanks 1+1=2, straydog and sparkleplenty 1+1=2 I'm not ruling out FMT just yet, though I think I will wait till more studies are done on it specifically for crohn's and the doctor brings it up to...
I feel for you, having to have gone through the avoidance after surgery, well just because we have surgery doesn't always shut down the inflammation and crohn's in another area. Especially after they...
I found a little bit of information about our FMT Trial Study. It was being done last year.by a Gastroenterologist and a Research doctor at our local University, Not much info comes up on it at this...
1+1=2, thank you so much for the information. As I was reading your story, I was brought to tears because it is so similar to mine, and I think you even had it worse than I? The 20 FMT pills you had...
Thanks,. Well I am at the full 4 months, my doctor feels since Entyvio isn't systemic so my joint pain and runny nose issue isn't from that? I'm hesitant to tell him anything new because he will just...
Besides having FMT's are you on any other treatments? Are the treatments done in a doctor's office or clinical setting. is it just a one time treatment or you have to go more than once? That is...
Thank you so much for the reply. I was to see the GI last week, and he told me my CRP markers are coming down, but seriously I don't feel better and have been crapping up a storm and he says Entyvio...
Thank you Susie...
I figured it was a prescription? I have to visit the GI in little over a week so will ask him for it. Think I would prefer the ointment, my aim will be better than the spray, LoL Is it expensive?...
I read on this forum that lidocaine helps with the rectal swellings and splits and itching of peri-anal crohn's?. Is this stuff sold OTC? I went to Wal-Mart pharmacy today and asked for it, and she...