I have been on Pentasa 4G /day since my diagnosis in 1996. I had a TI resection in 97 but have had no active disease since. Is it the Pentasa? I don't know and neither does my doc. But he's left me...
Picosalax is the best one I've ever used. It's not harsh at all. Not much to take either. I've used it twice. Once I drank water as instructed and ended up in ICU, unconsious with hyponatremia. I...
I went dairy free several years ago and felt somewhat better. A year ago I thought I'd try gluten free. After only a week I started to feel like a new person. I stopped my diarrhea meds too -...
There are plenty of lists out there for high histamine containing foods and also foods that stimulate histamine production. Many of them are the same. The enzyme that breaks down the natural...
I was told by a pathologist that it can burn out. Since it's an autoimmune disease and as we age our immune systems weaken and then it fizzles out. Makes sense to me. Fingers crossed....
I used to get hives all the time and also a flushed face. Basically mine was a histamine reaction and got much worse after a TI resection in 97. I'd say I had the hives and flushed face -more often...
I had my one resection in March 1997, after being diagnosed 6 months earlier. I was not/misdiagnosed for 25 years prior to that so it could have been more. I had partial obstructions for many years...
I had joint pain most of the time. Not excruciating but there none the less. It went away a week after I went gluten free. That was 4 months ago now. I was accidentally glutened once and woke up the...
I like to make my usual green tea and add a slice or two of fresh ginger while it steeps. I find it helps with nausea and just a general "upset stomach" as most people say....
It is in almost everything. It's a total change for most but living with CD hasn't been an easy road either. I found you need to go back to basics. Simple and homemade. Fresh meats, fresh vegetables...
Recently I went gluten free. It made me feel better than I've felt in 25 years. I've been dairy free for several years already. Within a few days I had no abd pain, no joint pain and I no longer had...
I forget exactly why I don't use soy milk but it wasn't good for me. I know that much. I like the unsweetened Almond Breeze. I don't drink it by the glass but for cereal and even baking it's great....
I've gained weight since my resection but not because of drugs. I could finally eat more without becoming obstructed. I'm about 20 lbs more than 14 years ago. That's 20 lbs I could stand to lose.......
The thing about Crohns is that we often look very well and are in incredible pain at the same time. We learn to get on with life and tune it out as best we can. When I'm in agony, hurting with each...
I take the generic Questran Light. It's what they give me at Shoppers Drug Mart. The box says pms- Colestyramine light powder. I get orange. I just take it in water. I let it sit a a few minutes to...
I agree that you need the cholestyramine. Nothing I know of can mimic bile salt absorption. I take one pouch every morning. Avoid dairy since there may be an increase in lactose intolerance if you...
Sorry about the difficulties you're going through. It's not uncommon for us Crohnies to take an antidepressant. We can get very down at times and they can really help. I take a low dose of Celexa and...
Hey Pom- I was the same as you. I was misdiagnosed and was considered a drama queen by the docs for 15-20 years. I never had diarrhea. My CD was TI only. I've since had a resection. There were years...
I've never had any blood because of Cholestyramine. I take 1 pkg of the Light powder every morning. An hour after my morning meds. The Light tastes better than the regular. Just like the others, if I...
I had my TI resection in 97. (2 feet total including valve) Right away I started back on 4g/day pentasa. It was the drug to use at the time. I haven't had spreading or even positive biopsies since....
I complete agree with everything Nanners just posted. It is quite a bit of barium to drink but is usually flavored. The weight of the barium is worst part but it's tolerable. The SBFT diagnosed me...
I take generic cholestyramine light. I take one pouch in water in the morning an hour after my other meds and vitamins. The stuff that wasn't light was nasty tasting stuff. I works like a dream. No...
I have CD of the terminal ileum. I was diagnosed and also had a bowel resection about the same time. I was obstructed and had probably had CD undiagnosed for 20 years. So I have had 12 inches of TI...
I get my drugs paid for by work work drug plan here in Canada. I get a two month supply at a time 480, 500 mg and it's costs them $332 including the pharmacy dispensing fee....
There has been a lot of great advice given to you. You will know the difference if you get obstructed. If you do wait until that point you may take away the option of having a laparoscopic surgery. A...
Regarding the Questran and synthroid problem. I take Questran for post surgical (Crohn's) bile salt D. I take one packet in the morning at least an hour after I take my morning meds. I try to hold...