Hi does anyone know of a medicine that isn't a biologic that helps clear up fistulas. I know 6mp does but does any other ones do the job? Not remicade or humira or any of those....
omg i am so scared. Last night i noticed i was kind of gassy and each time i passed gas it was through my you know what. I let it go because i thought well this cant be happening. i had D all night (...
So within the past couple of months i habe had TERRIBLE time.... i had to go to a blood specialist because 6mp was causing me to have anemia ( CHEMO INDUCED ANEMIA) my platelets and blood levels are...
So I have to go off my 6mp because It caused me to go into chemo induced anemia. So now my doctor is waiting to put me on humira. I have heard many scary things that can happen to your neurological...
Everyone thank you so much for your input. I called my doctor and he said so keep taking my apriso and to start the mesalamine up the butt lol yesterday was my firstnight doing it. It really didn't...
Thank you all for your helpp...
What have u been doing to help... I just take a lot of hot baths for my aches but it barely helps....
Also has anyone ever had a prednisone withdrawl? I've been taking pred for about 11 months now and tapering it down I was taking 40 mg now down to 10 every other day. Body aches...severe fatique......
Thank u ldes for that I actually did read that in my little pamphlet my pharmecist gave me. I had these symptoms before I used this medicine so I think ill be ok with that (I hope it doesn't get...
The past couple days I have not been able to go to the bathroom although I get the urge to about 40 times a day. I get very bad cramping and a very hard full feeling on my left hand side of my...
Thanks mary i really appreciate it...ive only had crohns for 2 years so im still kinda new to all of this and the symtoms it can cause...i do know that you can have crohns in your mouth but im such a...
i also have been having terrible headaches and muscle pains in the morning causing me to sleep in and feel graugy alllllll day.....anyone on prednisone also feel like that sometimes?? Again, it has...
hi does anyone here have the human pappiloma virus that also has crohns disease i have a couple questions... 1. are any of the medications we are on going to effect the hpv getting better and.. 2. Is...
i have not been on here for a long time now but im ready to start writing again. I have been doing very well with my crohns disease being helped by prednisone. Well, my doctor told me after 8 months...
thank you everyone so much ill deff try out your tips!...
ok so i am soooostarting to think i need to switch up my diet. Tips Please? /community/emoticons/confused.gif Things i know i get sick on- /community/emoticons/nono.gif - nuts, seeds, spicy things,...
i take 6mp for my fistulating crohns....soon lialda.. does anyone else take lialda? if so how is it working for you? and does anyone know if remicade makes u gain weight? i am off of it now but just...
i gained weight on remicade..about 20 pounds...im off it now hope i lose it...
My doctor is putting me on a drug called lialda now along with my 3 pills of 6mp a day...does anyone take lialda with 6mp or just lialda?? id like to know some stories if they do. Thanks everyone!...
does anyone on remicade experience thier fistulas to come back about a week before thier next infusion??...
hi everybody i havnt been on here in a while because ive been feeling pretty good and havnt been worrying as much...until about 3 months ago PROBLEM ONE) i had my remicade infusion 3 months ago and...
Well me doctors want me on tysabri as a result of MRI of my active leisions. After reading the information regarding the PML it scares me big time...does anybody use tysabri here? or does anybody...
has anyone been on remicade and had a fistula re open?? i only had my one infusion so do you think the second one will just wipe it out??? thankss...
/community/emoticons/shakehead.gif ok so i had my first remicade infusion 3 weeks ago and my fistulas have been closing up since and actually closed up and i was feeling great and finally living my...
i think all kids that age are picky eaters...my boyfriends sister is 9 and all she willl eat is mac and cheese and choc milk...canker sores can be from stress and/or not enough good nutrition...i...
so...i got the first infusion today it went great!! no pre meds or nothing! lol the lady said i might feel flu like symptoms but nothing yet!! i am being very impatient though becasue im expecting it...
thank you everyone for their opinions im leaving for it very soon!!!...
hiii everyone!!!! so i start remicade tomarrow afternoon and i am very very very very very very nervous they said they were going to give me some pre med and something else to calm me down has anyone...
in the last couple blogs i wrote how i was going to be getting my 1st remicade injection soon and a couple of you said that you were also going to get yours within the last week?? how did it...
does anyone ever feel like they forgot how to swallow?? i heard that is another symtom of anxiety/stresss/panic attack...like not forgetting how to swallow food or anything just swallowing in...
ok yes i do have panic attacks/axiety disorters aaand i have crohsn disease..IT SUCKS but one thing i do alll the time is finding myself checking for lumps and bumps..i always check under my armpits...
crohnspatient13 i am also your age AND I FEEL THE EXACT SAME WAY!!! ITS CRAZY!!!! lol except i have had a boyfriend for 7 years now...the one and only lol and i met him waaayyy before i was sick so...
is anybody on any medications BESIDES 6 mp....humira...or remicade to close fistulas??? now like i told everyone earlier i should be starting remicade very soon like within the next week....as...
ok thank you everyone for their help on my previous question i appreciate it very much!!! now i have another question and need some opinions..is it ok to have a "relationship" cough cough with a guy...
wow thank you everybody sooo much!!! i appreciate your advise!!! has anyone ever heard of anybody getting lymphoma while being on the remicade tho? or any real bad serious problems???...
HI everyone i am new to this site and i have C.D as well as most of you im an 18F...i should be starting remicade very soon and i want to know everyones opinion on it. I am very nervous to use it...