I took it for a maintenance drug and after a year or so did develop some of those side effects. Definitely tell your dr....
I get fatigue and brain fog too near my period. I combat it with cream of wheat and extra vit d and b12. I do have some crohns issues going on as well but it does seem like these particular symptoms...
Thanks to both of you for your replies. NCOT-I am thinking along the same lines as you. I guess I should begin to prepare myself for the possibility of surgery. JaSanne- thanks for your support - I...
Had a long overdue colonoscopy yesterday which showed chronic rectal inflammation and a terminal ileum stricture. My bet is that its been there for awhile. A few years ago I had the worst pain...
Hi! I still visit from time to time....
Cimzia took a few months to really work for me. I have been on it now for 2 years and it's by far the best med I have taken. I did have success with Remicade and Humira for a time as well though....
I have been on Cimzia for a year. I started to feel good within a month or two after beginning it. I have previously been on Remicade and Humira. Cimzia works better than Humira for me with a lot...
My insurance wouldn't cover a Prometheus test my dr wanted. I talked to everyone I could at both my insurance and at Prometheus. The test I was supposed to take was $2500. Prometheus said they would...
I was on remicade until I became pregnant. I went off for the entire pregnancy. Had a great pregnancy. Flared about a month after delivery and tried to get back on remicade but it didn't work. So I...
I am bloated all the time. It's my number one problem hence the name. Love my pjs and sweats!...
Good luck Gumby!...
I'd say give it a try. I'm on cimzia now but my doc told me Stelara would my next med when that quits working....
NCOT -Thank you for always posting honestly. I always read your posts and appreciate them. Even complaints about the bag because I might not be so happy with one either. It can't be all roses all the...
I took humira weekly to control symptoms. My dr said that dose is normally what it takes for Crohn's patients, I would ask your dr ASAP to increase the dose....
Wow, thx for your responses. I'm so sorry you all developed lupus. Since it's happening to me after I take Humira and gets better the longer I'm away from the shot, the dr wants me to switch to...
I have tried the pill many times to no avail. I actually just quit lutera because it caused me severe constipation and bloating. Yaz was probably the best one I was ever on but it made my heart race....
I was on Humira for 6 years....
Scifigal, I am sorry you are having such a rough time. I agree with Kazbern very much. I would also like to share that my worst flare-up was when my youngest was about 2-3 mos old. It was horrible....
Well, I think life in general has its ups and downs, not just Crohn's. Try to get what you can out of the good days and take the bad days one day at a time. Don't give up, keep going. I hope you find...
I would definitely see the dr and request an X-ray....
Thanks all, I made an appt for a few weeks from now....
I usually go 3-4 times in the am starting with perfectly normal looking stool and ending with D. My weight has stayed about the same over the yrs. Maybe you should see a GI and have another...
My best advice is while on pred to limit salt and caffeine. And say everything to yourself before you say it loud, lol. Good luck, I hope you feel better....
Through phone msgs my dr has relayed that if I believe humira is the cause of my symptoms and/or upper resp illnesses that my ONLY option is cimzia. I don't know if it's because she doesn't think...
Glad things are getting taken care of. Pics are great!...
I don't have any experiences to share but I'm sorry to hear your friend is so sick and wanted to pass on some well wishes....
Thanks for your replies! Pmedic-Good to know I could at least take a break-I've got to get over whatever this is. Jen77-I've been on Humira for 6 years with no major flares. My dr wants me to try...
I posted a week ago that I've been sick (sinus uri) and having possible reaction to humira. My GI told me to keep taking humira while we figure it out. So I did and I got worse again on the second...
Thank you petittarte. Did you have to pay the balance or was it deemed paid?...
I have been on Humira weekly for 6 years. In the last few months I've been getting a hot flushy rash on my cheeks. About a month ago, I had hives all over my scalp-like pull my hair out hives. In the...
I have been taking Humira for 6 years, so far so good....
There is a new test to see if you are developing antibodies to Humira by Prometheus. My dr prescribed it for me but my insurance won't cover it. Sigh....
My dr sent me a script for the above blood test. Apparently it will check for antibodies against Humira and the level of Humira. It is supposed to be drawn the day before injection. Has anyone here...
Hi there! I've been on Humira for 6 years with no major side effects. I use the pen once per week. I take in the morning since fatigue will hit me about 12 hrs later. I just go to bed early that...
It took about 12 hrs and it sort of worked. I didn't get the clean out that was expected but I do plan on going forward with the maintenance dose because I feel a bit better than I did before. Thanks...
Hey there, I'm having some constipation issues and my dr said to take a dose of miralax daily but maybe for today I should take a clean out dose to get a jumpstart. Well, I took 8 doses worth after...
Yes, that is exactly it. Not the day of the shot but the next day. It's so bad that others notice how terrible i look and how fatigued I am. It's like the flu. But then hey the next day after that I...
Habshockeyfan, Great to hear. Are by any chance fom the Buffalo area? If so, would you mind telling me your dr name? Mine was so good but now she's overscheduled and hurried. This happens with me...
This is in response to your request for positive feedback from Humira users. I have taken 2 humira pens every two weeks for 5 years and have not had any problems so far. Most people do not even know...
In the beginning I missed a dose by a day or two and wondered why I was feeling bad but now also feel bad a few days before the next dose so I don't forget....
Yes, I get real hungry the day before I'm going to spend a lot of the time in the bathroom. It's like my body is loading the ammunition....
I had this same problem and then my doc bumped me up to 2 shots every 2 weeks. Still though that last day or two . . . ....
I tried imuran for only a short time before my doc said it wasn't agreeing with my liver. I thought it worked well for the crohn's though....
So far this year I've abnormal paps, root canal gone bad and retreatment infection, kidney stones, and now I think the retreated tooth is infected again because my ear is killing me and my reg doc...
My GI is in Buffalo NY, probably too far out?...
YES! My wonderful GI has crohns disease herself and she is one of the best doctors in the country. In fact, I believe she is the only one in the states to have all the credentials she has earned. She...
Ultrasounds don't really show much, you may need CT scan....
Some Doctors are beholden to insurance companies and will not take the risk to prescribe harsher meds. You probably need to find a new doc....
I have this problem too! What sometimes works for me is drinking a tall glass of water first thing in the am and getting some exercise -30 mins- each day. If you find a somethng that works pleae let...
Thx, C6, Kidney crossed my mind too as the pain can be severe and it comes and goes. Having Crohns though you just never know what sort of pain will turn up so I thought I'd check here first. Then,...