I was on Remicade from 2011 to 2014 and my blood pressure shot up within a few months of starting Remicade. Doctor said he had never heard of a patient with this problem but I knew for sure...my BP...
Rattytatty, I'm 50 years old and was diagnosed at age 9 in 1979. Had a small bowel resection in 1983. Took Sulfazalazine for 2 years and then didn't tell my parents that I stopped taking it for over...
I started the Remi in 2011 and stayed with it til 2014. My iron and vitamins and mineral levels have remained normal, before, during, and after. I realize the increased heart rate may affect a very...
Months after I started Remicade my resting heart rate went from 70bpm to 90bpm. 3 years later, 2 months after discontinuing Remi it came back down again. As a man with family history of heart...
My resting heart rate increased after a few months on Remicade from 70bpm to 90bpm. When I stopped the Remi 3 years later, it returned to 70bpm within 2 months. For an anxious person like me, it was...
Wow, great group. Thanks so much for the warm welcome and thoughtful comments. I agree that avoidance just feeds the fear. Over the years, I've also struggled with driving on the highway, being a...
1st horrible panic attack when flying over 20 years ago. Stopped flying completely. Familiar with/tried CBT and exposure therapy, but flying is the combination of the perfect storm for me (heights,...
Vitaka, it's good to hear that the Zoloft has helped you. What, if any, are your side effects from it? When do you usually take Klonopin? How do you feel on your 6 week Remi schedule? Are you on 5kg...
My Crohn's Disease first appeared when I was 9 as my parents were going through a difficult divorce. I stayed in remission until age 38 when I found myself in my own divorce and also shorty after...
Ishiman, I could be your twin! I had my first Remicade infusion in the May of 2011, 5kg and stayed in remission for nearly 2 years. I had a colonoscopy 2 months ago which showed active disease. My...
Thanks Beave, my blood test did not reveal antibodies, and the most recent test for the blood level of Infliximab was very low, at the lower dosage and 12 week frequency. Based on the fight to get...
Hi, I posted recently about my return of Crohn's symptoms about 2.5 years on Remicade. I was on a smaller dosage and a frequence of 12 weeks and it worked for awhile. I did not develop antibodies but...
Gumby, my small bowel resection in 1983 (at age 12) gave me complete remission until 2008 without any maintenance drugs. I'll never forget treating myself to onion rings in the hospital cafeteria and...
I've been on Remicade for nearly 3 years. It worked great for the first 2 years, even at a 12 week interval and a 3-vial dose for my 150lb. body weight. During the last 8 months, I've had some...
OK so I'm now taking a 6 day Medrol pack for a possible Crohn's flare. 1.5 years ago I had a blood test to measure the level of Remicade in my bloodstream and that test was done exactly 1 month after...
Thank you...I am a 43 y/o male - I remember they did a test for gluten intolerance before I started the Remicade and I was not intolerant. The reason I was leaning towards irritable bowel is that I...
I have been on Remicade every 12 weeks and it has put me in remission for over 2 years. I have never felt worse closer to my next Remicade appt. and I don't feel any different after. Starting 6...
PV, that's right, by age 60 anywhere from 60-80% of the population has it. I have never been tested because I never get cold sores, but I could still test positive. Does your husband have HSV-1...
Thanks for the input. I realize this can be a sensitive topic for some to discuss, but I am past the "stigma" associated with it and only concerned about the realistic risks and effects on someone...
Hi all, it's been a while since I have posted here, since I am very lucky to have been put in full remission for the last 1.5 years from Remicade. I have been dating a wonderful woman whom I have...
I've been on Remicade for just over a year. About 3 months ago, I noticed that my average daily blood pressure seemingly jumped overnight from a very low average of 100/62 to 140/97. There were no...
Ides, you have summed up what I've been feeling very eloquently. Thank you. My Gastro doc assured me that I wouldn't catch any more colds then before I started and boy he was wrong. I have read about...
I understand that many people here had no increase in catching colds or any other infection. I think it's reasonable to expect the greatly improved quality of life that Remicade can give. For some...
Hi all, I hope you have been doing well. I started Remicade about a year ago for moderate Crohn's. It worked immediately and within a week of my first infusion the pain I was having was gone. I am...
Thanks for your insights. It seems that your reactions were much more severe than what I'm experiencing. My Gastro doc also felt that I do not have Remicade-induced Lupus. My cramping has gone away...
I've been feeling very well since I started Remicade about 5 infusions ago. I don't think I am in complete remission, I'm bloated from time to time but the biggest improvement is the absence of...
Thanks for your wonderful, supportive comments. Yes, I was somewhat reserved in sharing my excitement. Woo hoo!!!! Good advice to keep watching my diet, as I know this isn't a free ride. Today for...
Hi all, after my unsuccessful tries with LDN and slight improvement with Wellbutrin for Crohn's, I have finally found remission with Remicade. I had my third loading dose a couple of weeks ago. I had...
My use of Wellbutrin for Crohn's didn't work out after many tries. I had a pretty major flare-up last week, and decided to finally give in to my Doctor's advice and start Remicade. It's interesting...
Cupcakespingal,, it's wonderful to hear that you are improving on the Wellbutrin. Any problems with insomnia? That was probably the most annoying side effect, as well as the dry mouth. Like you, LDN...
I take 8,000iu in liquid drop form. 4 months later my levels went from 25 to 32, just above the lowest recommended number. I think some of us will not absorb the Vit. D as well as someone without...
Thanks for asking - While I feel that Wellbutrin definitely made a recognizable difference, it did not put me into remission. I must admit that I went back on at a 200mg per day immediate release...
I had stopped the Wellbutrin a couple of months back because I was losing weight quickly. About 3 weeks ago I decided to have another go at it, this time at a lower (200mg daily) dosage. I still take...
I am wondering how many people seem to have a flare-up after a hard workout. I am not a regular exerciser, and unfortunately overdid it with the weights a couple of days ago. That night I started...
http://onlinelibrary.wiley.com/doi/10.1002/ibd.20119/full Mentioned in the commentary section: "Rifaximin has been clinically available for nearly 2 decades, yet no emerging resistance to clinically...
I believe I read that Rifaximin has been used for 20 years with no resistance reported. I just hope they get the funding to complete this thing to the end, and find out how well it KEEPS the Crohn's...
Very promising. Thanks for sharing!...
Hi 7007, Your timing is good, I am due for an update here. Unfortunately, I have just stopped the Wellbutrin. It was a great ride and I hope to have the chance to try it again. The problem, for me,...
I had the appearance of PVC's (1300 in 24 hours as recorded by a Holter Monitor) about 2 months ago. My Crohn's had come out of remission a year earlier. I also was going through a period of...
I had a right inguinal hernia repair in 2008. Mine was asymptomatic, yet I decided to have the surgery because the hernia would never improve on it's own, and there was always that very small chance...
I've had a few advances as well as setbacks that I thought were worth mentioning. I starting eating more, a lot more food, in the hopes of starting to put that lost weight back on. I've also slept...
I need to let everyone know, I am seeing a huge improvement every day now with Wellbutrin! Tomorrow will be 2 weeks at the full 300mg dosage, and my cramping is about a 1/10 vs. 8/10 when I was in a...
Thank you for the support! Here's an update. Tomorrow will be 1 week at my therapeutic dose. I truly was skeptical about this with very little actual feedback except from Ubob on this forum. I think...
I am finally at the therapeutic dosage of 100mg immediate release Buproprion 3x/day. Very interesting drug - definitely has that "stimulating" effect. My heart rate has increased and I hit the ground...
Are there any Crohnies on this site that personally found remission through Wellbutrin? If there are no published studies, is it a rumor or fact that the immediate release form works and the XL does...
Thanks, I will report the results on this thread. I did have the doctor change the script to the immediate release form. Too bad, as I found info that the immediate release form is associated with a...
I've been prescribed Wellbutrin for both moderate depression though I am hopeful it will have an effect on my Crohn's. Another poster here swears that it put him into remission. It supposedly has...
Has anyone had any complications or infections with Remicade after a hernia repair with a patch or plug? I had an inguinal (groin) hernia repair in 2008 with a Perfix Plug Mesh Patch. Thanks...
Wow, I can't believe I am reading this association to Crohn's. Just yesterday I removed my 24 hour Holter Monitor as an EKG the day before revealed the skipped heartbeat I have been having for the...
Jeanneac, did you take your Wellbutrin in the a.m? From what I read, most people have insomnia as a side effect because it is a stimulant. The recent post was sure an encouraging argument for trying...