I had always thought probiotics were a good thing and have even taken them from time to time myself. Recently DH who has severe Crohn's was hospitalized at one of our state's major hospitals. I asked...
Thank you all for your thoughts. It's just tough...I know it could be worse, but truthfully after you have told yourselves that for 40+ years, it gets kind of old. So, sometimes you just have to...
Could the joint pain be Crohn's Arthritis? DH just diagnosed with that....
DH has recently visited a GI doc at IU Med Center, referred there by local gastro. DH has fistulizing Crohn's...as bad as it gets we have been told. IU doctor said Pentasa is a waste of money in...
DH was put on TPN for being malnourished while hospitalized. He has been home a week and we will be starting with our second home health care company tomorrow. The first nurse to come out didn't know...
Thanks Jennifer, you are right! And we are too old for this horse and pony show business!...
DH has had Crohn's since early adulthood...now 73. He has had two abdominal fistulas since shortly after his last resection in 2004. Area surgeons have told us they do not want to operate on him...
DH has two abdominal fistulas, about 1" apart for which he utilizes ostomy products. He currently uses the largest flange Holister makes..2 3/4", I believe and cuts a vertical opening in it to...
More of a concern, whine, vent...whatever, than an actual contributory post but so be it. DH is entering another EXTREME fatigue cycle. I don't mean the draggy no energy tiredness of everyday...
schuco...night sweats could be a sign of inflamation w/ or w/o fever. A fistula is a "hole" and if you have a "hole" under a "hole", I am concerned you may actually have 2 fistulas which is what DH...
Thought I would jump in here and tell you about DH's situation although not identical to yours. DH has two abdominal fistulas located a little over an inch apart. He utilizes ostomy supplies rather...
Thanks for info all. ActiveUCer...glad you found something to help...hopefully it will continue!!...
Just so you know you are not alone...DH's output from two abdominal fistulas would drop a horse at 20 yards. It's awful. He uses a deodorant in the bag...M9 drops...I don't see where it helps much....
I can certainly sympathize with you and your issues with adherence. We are in the same boat. DH has two abdominal fistulas for which we utilize ostomy supplies. He is currently in a cycle of not...
(he keeps a lot of his soiled pants/underwear in the bathroom closet hamper) This is unacceptable...unless you don't have a laundry at home. DH has had Crohn's for nearly all of our close to 50...
Thank I failed an EKG yesterday. Test was ordered as pre-lim for shoulder surgery. Before I even got home message was on machine to call PCP, but I couldn't get through with return calls. Tech had...
seanray...certainly didn't mean to hijack your thread...was actually trying to commiserate with you a bit! In response to those who commented on my response, thank you. I appreciate your...
At last some posts from some blatantly honest people who really, really hate "the bag"! Sometimes I feel like DH and I are the only two people on earth who are not "eternally grateful" for "the bag"!...
You are one strong individual! You have my utmost respect....
Prednisone...such a tiny cheap little pill. DH is prednisone dependant, has been for years. He also suffers from all the extra little gifts that come with that. Cataracs, joint pain, bone and muscle...
A few years ago, DH received Infed infusions. Since he had previous severe allergic reaction to Remicade, he was always pre-medicated with steriods and Benadryl. Infed didn't help with anemia so they...
DH has had Crohn's Disease for more than 40 years. If you continue to look for constant sympathy/emotional support from others, family or friends, you are opening yourself to constant disappointment....
Culture came back positive for MRSA. Continuing treatment with antibiotics, orally and topical. Will see GI for his opinion next week. Wound is continuing to heal....
Anyone?...
DH has Infed and Venofer infustion and also received the med they give cancer patients to raise counts, none worked. He had an infusion of Feraheme and that acually helped. He did have some reaction...
Distressed today. DH had to go to walk-in clinic on Saturday am due to a fast growing "sore" on his abdomen. It started out looking like a pimple, but quickly grew with a reddened hard area around...
...along with all the other maladies, DH has now developed Gout. Uric acid level is high and his ankle is swollen and painful. Doctor prescribed a prednisone burst. Oh Goody, more prednisone! In...
Just want to sympathize Sniper! DH has had Crohn's for 40+ years and has kidney issues as well. In fact, I posted last week about contacting GI about DH's issues and he prescribed Prilosec. Well,...
DH is contemplating another resection, one which may leave him with short bowel syndrome. He has undiagnosed back pain, (left side, just right of the clavacle), the pain is similar to what he...
I am so sorry Nanners! Unless you are a Grandma, you don't really understand what grandchildren mean to us! Praying for comfort for you and Papi!...
Thank you all for the kind responses. Please know that they help and I appreciate the time you took to respond! Press on!...
I want to apologize for this post before I even post it...but there is really no one who wants to hear me whine any more. Another Saturday evening and DH is sleeping, feeling "unwell". That's his...
Yeah...I'd be looking for a new doctor. DH had a severe allergic reaction to Remicade yet he has been taking Humira for 3 years without any reactions, (knock on wood!). Has the Humira put him in full...
I have posted previously about DH and his struggle with Crohn's and abdominal fistulas. He now has pre-cancerous tissue around fistula openings and his surgeon has said that tissue should be removed...
We got the biopsy results from DH's appointment with a surgeon last week. The tissue shows no malignancy at this point, but the surgeon said we must remember only about 1/1000th of the questionable...
Thanks for the caring posts guys....
DH has had Chron's for 40 years. Numerous resections. No real long lasting remission...ever. In 2004, when he had his last resection, he had numerous complications. A few months after being home, he...
Most evenings DH has to "burp" multiple within a short timefrane. Kind of ruins your social life let me tell ya!...
I wish there were a product that would help eliminate DH's odor from two abdominal fistulas. He utilizes ostomy supplies for these and we haven't found anything that is REALLY effective controlling...
May I ask what "LDN" is? TIA!...
DH has pain between shouldar blades as well. He has had x-rays and nothing structural is wrong. We really believe it is referral pain from the Crohn's. What intestinal tract he has left has grossly...
Hi Kitt...boy do I know how it feels to walk in your shoes! DH has had Crohn's for 40+ years. His last surgery was in 2004 when he had a resection and seemed to be getting along good when he threw an...
I just want to say thank you to those of you who have posted with your suggestions and messages of support! It is truly appreciated! We all know much of the dealing with this disease, (as well as...
Thanks for your interest PV. DH's last abdominal surgery was in 2004. He was in the hospital for 7 weeks; had a frightful recovery, including a blood clot which went to his lung. The surgeon said he...
I appreciate your responses. We are utilizing the pads and extra bedding protection that has been suggested. Unfortunately, I don't think this is a temporary thing. I am afraid it is here to stay and...
DH has had severe Chron's disease for 40 years. Numerous abdominal surgeries, rectal surgery and he has had two abdominal fistulas, necessitating ostomy appliances, for about 5 years. The latest...
I appreciate your responses and suggestions. Today has been especially trying. We are looking at our fourth appliance change before bed tonight. DH has hardly ever gotten more than 48 hours out of an...
Thanks for your response. The fistulas come from what is left of his small intestines and developed after his last resection in 2004. The surgeon says he really, really does not want to operate on DH...
Ok, we have had it with fistulas and appliances that just plain don't work! Husband has two abdominal fistulas draining liquid poop all day. We are so tired of the mess, not to mention the cost. Not...
DH has had Crohn's for 40+ years. In 2004 he had another resection and later developed two abdominal fistulas. Surgeon won't try to close them surgically as he said there is too high a chance of...