Dawnc77 Just another thought, bring your own slippers and socks!!...
Dawnc77 Funny, I am 36, Female also!! I have 3 girls ages 12, 8 & 6!! The 5 days in the hospital weren't as bad as I anticipated!! Day of Surgery was kind of a blur, when I came out of surgery I had...
Dawnc77 & Not2spunky, Hello! It's been 3 weeks since my surgery, I did not end up with Ostomy!!! This surgery was planned as laproscopic with the chance of full open incision and chance of Ostomy....
Thanks so much guys, I meet with the surgeon next week to discuss surgery, I wondered if maybe my GI told me that just as a heads up it could be a possibility so I am prepared for the worst..maybe?!...
Just curious, I am meeting with a surgeon in a week to discuss surgery. I have two-3 short segment strictures in my ileum that have finally got bad enough that surgery is warranted. One main question...
Just curious if anyone has tried Yoli? I drink a lot of Boost for nutrition about 3-4 a day. A friend was telling me about this and said they had heard the shakes would be great for crohns. Anyone...
My doc told me to try to drink 2 for every meal you do not eat, when I'm not tolerating food like lately, I have been trying to drink 3-4 a day 2 for breakfast then 2 more through out the day, very...
Thanks Julius and NCOT, I looked at their website, it's a bit spendy but worth a try! Julius have you been able to maintain or gain weight on it? Glad to hear it's somewhat palatable, just looking...
Good luck, let us know how it goes!! I am afraid I am on the road to Entyvio also!...
Julius, I'm just curious, did your doc. Recommend Absorbplus? I am looking to try something like that, I had asked my doc. What would be the best nutritional drink he just said ensure or boost, I try...
I was on Humira for 4 months, it didn't work for me if anything I felt it made me worse too, my stricture pain was worse, went to ER 3 times in those 4 months with partial bowel obstructions. Just...
Fernando have you been on either humira or Remicaid? My doc says I have to try both before I can try Entyvio, mostly for insurance reasons. How long have you been on it? And have you felt any...
My doc. Thinks bc the prednisone taper I was on helped with the stricture pain and when I went off the pain returned he, believes it is mostly inflammation, I did have a CT done in ER in Jan. I went...
I was on Humira for about 5 months, I am also on Imuran 200mg, I have been on that about 4 years and it became ineffective, that was why we added Humira. Doc has kept me on it to help the Humira...
Sorry Jen77 for jumping in on your post! Deakin I am glad to hear it's helping with your strictures, that is my main problem, doc thinks they are inflammation and not scar tissue, so I am really...
Thanks Jen77!! Did they give you any premeds? Sounds like they are going to give me Tylenol, a steroid, and Zyrtec through IV right before infusion just to help with any allergic reactions. I hope...
I'm curious how you are feeling the day after? I am going to start Remicade next week and I'm very nervous about it! Doc said I may feel achy and tired the next day, kind of like flu symptoms........
Humira did not work for me, Doc wants me to try Remicade next, anyone try Remicade after failing Humira, and did it work for you? Thanks!...
Hi, I dont put my two cents in here much, just like to read. But.... I have the exact same thing happen to me, in my opinion you are having partial bowl blockages, I get the same thing sometimes, I...
I am on week 3 of Humira, did the 4 loading doses, 2weeks later 2 doses and then at week 4 will start the maintenance dose of one shot every two weeks. Before starting this med. my symptoms were...
So as I wrote back in May I was accepted into the 2nd Phase of the worm study. I just finished up the first 12 weeks of the double blind phase, meaning I didn't know if I was getting the study drug...
same thing happened to me, he gave it to me after about a year of complaining of pain and crampiness, had never heard of it. Works really well for me!! hope it works for you! My doc. wrote the script...
You are not alone!! Everyone on here is so supportive! Try to stay strong and positive, I know it is so hard right now but it will get better!! I have been in a flare for months now, for me pain is...
Hi Annie, I had that procedure done about 2 years ago this summer. When my doc. suggested it I was pretty nervous about it cause I hadn't really heard much about it and really never heard of anyone...
Thanks all for your replies!! It is DONE and OVER with thank goodness!! I ended up drinking a boost for the breakfast Yesterday morning and then clear liquids the rest of the day. And drink my gallon...
I have a colonoscopy on Tuesday Morning at 10:30, I am wondering if tomorrow (Monday) if it would be ok to eat something very light for breakfast to take my pills with? Then fast rest of day, then...
I have my first initial meeting tomorrow, have to answer a bunch of questions, have blood drawn, urine and stool sample. I don't actually drink the solution yet just getting me all set up to get...
aggkrg, Just curious where are you doing this study at? I am going through University of Iowa Hospital.. I will be starting soon.. I am nervous, but have high hopes that this will help! Keep us...
So I have the opportunity to participate in phase 2 trial of worm study. Has anyone taken any of these?? Just curious how it went, did it help any? Any ill side effects? So far sounds pretty safe?...
Thanks I will talk to him at my appt. tomorrow, I am seeing my GI, hope he will help me with it, and not have to make a appt. with family doc. for it. I would like to try xanax just for the fact I...
So I am starting to really develop some anxiety I have always been an anxious person , I feel it is getting worse bc of having this DD, I am in a flare, eating is causing me to get pretty anxious....
Your doc. will go by how your blood work looks, I started out on 75mg them over a year I was up to 200mg and thats where I have stayed for about 2 years. I take mine all at once in morning with food....
Hi there, I am on 200mg and weigh about 110 pounds, I asked my doc about that cause I feel like I am on an extremely high dose, he said it goes by your blood work on how your blood counts look. I am...
Hi there, I really understand where you are coming from. It is very hard, I just posted a topic asking how people cope with this mentally, I didn't get a lot of response though. So glad to share with...
I was just wondering how people deal with their flares mentally? I have been dealing with this flare for about 4 months, I have a lot of pain after eating, I am on Imuran, and entocort trying to get...
Hi Lauren, I was diagnosed when I was 21 also, I was in my last year of college and did do some drinking during that time as a lot of people do, my main symptom was diahrreah for about 6 months and...
Just a thought, did your doc. mention trying biologic drugs first? Just would think they would want to try that first, once you have the surgery there is no turning back. I avoided surgery 2 years...
Are you having alot pain associated with foods? I like you pretty much eat the same things that I feel are "safe" for me. Do you eat yogurt? I have been eating the vanilla greek yogurt (not the low...
So I would really like to try to make my own yogurt, do people have a machine(if so what brand) or do you do it yourself? Does it really taste good??...
Thanks to everyone for your input! I know I am having active disease and I know what the doc. is going to tell me, "time to try biologics" I am terrified of them!! So looked into the SCD and just...
So going to try to completly change my diet to see if I can help myself that way!! I pretty much live on dairy (yogurt,milk,cottage cheese) and carbs.(pasta's,breads) I tend to always go that route...
Yes, I had a balloon dialation done, about two years ago in my terminal illeum, I was a bit nervous about it, but i completly trust my GI, they can control how much they stretch it so as to not go to...
I am a stay at home mom and in home daycare provider, I have often thought about how I would make it if I had a job outside of the house, how I would make it and if I would have to take days off...
Has anyone ever been told they have a cascade stomach? Was just thinking about this, about 2 years ago when I had an endoscopy my doc. said he was going to try to go down a little further than my...
Hi there, I have been anemic ever since having crohns, I take an iron supplement called Feosol, it is Carbonyl Iron, it is not hard on the stomach and digest easier so as to not make you so...
Thanks everyone for your input, I have been to my doc. since my recent ER visit, I am definitly in a flare, he put me on 9mg entocort, and some antispasm drug to take as needed. He was ok with me...
Hi there!I am on Imuran, I have been on it for about 2 years now, I take 200mg four pills a day, I have my labs checked monthly, it was every two weeks when I first started and any time my dose was...
So just wondering what everyone else uses for Pain? I am currently in a flare, I went to ER couple weeks ago for intense cramping pain, pretty sure obstrustion pain from strictures, in the past I had...
Hi Dori I actually know exactly how you feel, I have been going through a flare for a while now and I too am having issues with weight I am about 5ft 6in and weigh 113, my comfortable weight is 130,...
Yes I lost hair from taking Pentasa!!! I was taking 3 pills 3 times a day, it also happened when I took asacol, it is a side effect of that med. if you look it does say it is a side effect but a rare...