I had surgery about 4 years ago this summer and it was truly the best decision I ever made. I had an intra-abdominal abscess about the size of a golf-ball that turned into a fistula that drained on...
Sometimes if your Crohn's is active, you can get extraintestinal oral manifestations that don't calm down without getting your disease under control. When you had your biopsy done, who completed it?...
I took it several years ago for cramps/intestinal spasms. It helped with the discomfort when I had really bad cramping and usually made me out of it so I slept a lot. Helped me a lot until I got into...
Right after I got my period back after surgery, I get awful lower right quad pain, watery D, and nasty gas. These past couple of cycles, I've had some butt leakage about 2 weeks before my period...
I had this exact surgery almost 9 months ago. I lost 8" of my terminal ileum, appendix, and 3" of colon plus my fistula and a couple of abscesses. If your doctor is recommending it, it might be...
Check with your doctor before you try it. SCD is difficult to adhere to and can be hard to do, if you're on a limited diet. I tried it before I had my resection and I had a lot of trouble. I did it...
I don't exercise when I'm flaring badly. I guess I usually found that hard exercise makes my guts worse. When I'm in remission, I like to run several times a week. I usually keep the workouts...
Do you know if your affected area is scar tissue or inflammation? If it's inflammation, there is always the chance that drugs could help resolve the inflammation so that your tissues are healthy...
Yeah, it's incredibly frustrating. My mom used to work for an insurance company, so I know some codes for Crohn's and test codes and how billing works. It drives me crazy that when I try to "speak...
I just spent 5 HOURS on the phone between the hospital, insurance company and my doctor's office trying to figure out my payment for the Prometheus TMPT test. I called about a different bill and...
I was able to get life insurance through a group policy with the American Dental Association. Unfortunately, I wasn't able to get it on my own. I would recommend trying to get extra coverage through...
First of all, I hope you feel better! Second, I think you need to have the docs figure out if your stricture is due to scar tissue or inflammation. If it's from inflammation, there's a chance that a...
I'm in surgically induced remission. I've been told I have IBS in addition to Crohn's, but I'm not 100% sure about the diagnosis. But anyway, I have formed stools intermixed with loose stools over...
I lose like 5 pounds on Flagyl because of the side effects. When I wasn't so nauseous that I couldn't even look at food, I was in the bathroom with the most horrific *d*. So hopefully, you're just...
I think it'd be awesome to have a GI who had Crohn's or UC. I know how helpful my own experience is when I have a patient with an oral problem related to Crohn's or a medication. I can only imagine...
I drive 2 hours to see my GI and I drove 2.5 to see my surgeon. When I was in grad school, I drove 5 hours home to see my same GI until I got so busy that I couldn't take off the time to come home....
I had an abdominal abscess rupture and cause a really nasty cellulitis on my abdomen right by my belly button. I had a PA treating me in the ER and he was bent on a CT (I declined). When I finally...
I've been on Imuran off and on for almost 10 years now. It worked great for me with almost no side effects. Once my WBC went down, but when we decreased the dosage, it went back to normal. If you're...
Yep. I get Crohn's like symptoms right before my period. I had a resection about 6 months ago and I'm in remission right now. The past 2 months I started to get cramps, lower right quad pain, and...
When I'm in remission, I can sleep as little as 3 hours a night and be fine. Usually, I need 6 - 7. When I'm flaring badly, I sleep like 11 hours, with a nap in there....
I'm a dentist and have been on Imuran or Remicade for almost 9 years now. I haven't caught anything particularly nasty, aside from colds or the flu. When I do get sick, I tend to be sicker and longer...
I LOVE the idea!! I'm in the process of beginning to think about starting a family. I've looked for information about being pregnant with Crohn's and aside from the stories here, there is nothing!!...
I haven't been quite in your spot Andi and don't/haven't had an ostomy. But just wanted to let you know I'm rooting for you! I had a plain old resection about 6 months ago, but it was the best...
First off, I agree with everyone that you should call your doc ASAP and report your symptom. It could be several things...Crohn's related arthritis, which for me felt like something was scraping the...
Congrats on surgery! :) I had mine back in July and I skipped my period the month after I had surgery. Ended up starting 2 months later and have been pretty regular ever since then. I don't think...
I like to think I have a pretty good life. I'm in and out on here because I've been feeling better since surgery and don't have a lot to contribute to some of the discussions. When I first got...
I took Imuran for about 7 years, had a brief hiatus and now I'm back on it for 6 months since my surgery in July. I have virtually no side effects from it, except I get wicked nausea if I don't eat...
Good for you Lovely985! It' sgood that there's someone at your school who actually understands why they work in the disability office! I think you'll have a lot more success in college knowing that...
I had an MRI enterography a couple of months ago. It's apparently becoming the new thing since there's no radiation. Only thing is that it takes a bit longer then a CT scan....
I got my flu shot every year for the past 6 years. I've been on Imuran and Remicade everytime. Never had an adverse reaction to it....
tinabones, there's a lot of different things that can cause your breath to be bad. As a lot of people brought up on here, acid reflux can cause bad breath due to the digesting food that reguirgitates...
I took Colazal (like Pentasa) and Imuran together for 8 years and felt great doing so. There's a study that compared the effectiveness of 5-ASAs v. placebos and found that 1/3 of people on 5-ASAs...
I had an open resection in July on a Monday. Pretty rough Tuesday since they took my catheter out and I had to pee allllll the time. Getting up and walking around really helped recovery wise, but I...
I'm going to assume you're using Peridex or Perioguard (Chlorhexidine)?? If you were, taste changes are a common side effect of that mouth rinse. I'd get a tongue scraper and see if that helps. 95%+...
I've been having the same problem the past couple of weeks! I'm about 2.5 months (WOW!!!) out from surgery. I've noticed that I'm getting more and more gassy, especially at night and get bloated a...
When I first got diagnosed, I was on 40mg of Pred for almost a year. Everytime I tapered off of it and for several weeks after that, I would have the most horrendous pain in my knees and legs. I...
My stomach still gurgles even after surgery. It's just gas right now. Before that I'd have pain/cramping associated with the noises, they always assumed it was from the stricture......
Haha, I'm sorry to cause drama! I hadn't been on for a few days and I know I posted last time I was here stating that I was a dentist. So I thought that was directed towards me for that comment....
I'm sorry Nanners, I wasn't aware that stating I was a medical professional was against the rules. I hope I haven't violated the rule of dispensing medical advice. I've tried to be supportive, while...
It makes me soooooo tired. I felt like I had a cold for my first 2 weeks on it. My hair also falls out like crazy....
I had an appointment with my GI yesterday. I'm 10 weeks post-surgery, feeling GREAT and enjoying a normal life again. I asked him what diet would be best to maintain remission/keep me healthy. I...
I usually don't take any pain meds stronger then Tylenol. Before my surgery, when I had my abscess I would only take Vicodin (which makes me jittery) and Percocet (which makes me itchy) only at...
Hey NCOT - they got rid of the group function on there with the newest facebook update. There was a huge Crohn's support group on there that got deleted with almost no warning, which was really sad....
I have insurance through my husband and it is a pretty good insurance.I have a PPO. When I applied to grad school and residency, I did a lot of research into insurances. Unfortunately, I couldn't get...
ChronieToo, you bring up a good point with our Imuran dosages being much lower then kidney transplant patients. Their dosages are up to 250mg sometimes and that makes their white counts a lot lower....
I haven't had any dental work done while on Remicade or Imuran aside form cleanings. But I am a dentist, so maybe I'd be helpful? Typically, I premedicate within the AHA guidelines and in patients...
I had that before my surgery...I had a bad stricture at my ileum. So I always chalked it up to a partial blockage of some kind. Granted, I had a lot of cramping, gurgling and tons of bloating. It...
Have you tried seeing a dentist/doctor for a prescription that could help with the pain from the sores? Usually, something called "Magic Mouthwash" can help with the pain/healing since it's a...
I don't know anything about STD since every place I've worked at has STD with a pre-existing condition clause. So I'm not sure what to do about that. But my understanding is that you need to be still...
From what I can find (quick search), there is an interaction between Cipro and HIGH doses of methotrexate. Cipro impairs the body's ability to clear methotrexate. From what I can find on Pubmed,...