Been on both for about 8 months now. It was an easy decision for me as the possible quality of life increase was MUCH higher than the risk (which seems to be very slight, at least from my reading)....
This is kind of sad....
Great on you dave, I've been waiting to read this one....
I'm certainly no expert, but I'd bet on that. I've always been a consistent 120/80 but went down to 90's over 60's after and couldn't walk more than 50 feet or so before sitting down. And if I stood...
Another happy Remicade user here. I'll be going for my 5th in a couple weeks and boy is it great. Seems like everyone experiences it a little differently. For me, I get the infusion on Thursday...
Don't panic too much, I went through several weeks of that after mine and low BP will certainly do exactly that to you...have you checked yours?...
First pains 7.5 months ago with a diagnosis a few months later. In that 7.5 months I've been in constant flare. * More pain than I care to remember * Twice hospitalized * 7 abscesses * 4 long term jp...
That's fantastic man! Please keep posting about your success, it's a great motivator. I race bikes and am sitting out this season due to this mess. I've been pretty concerned about getting back in...
Good points. I did raise it briefly with him (he stopped my during my remicade dose yesterday). He acknowledged the risk passively and said it was the best method. I've spent the last couple months...
So I've had 7 in the last 4 months for various reasons, doc wants one more next week to verify all abscesses are gone. I expressed my concern, but while addressing it kind of passed it by. It's my...
I just had both this morning as a matter of fact. The benedryl puts me out too, but I embraced it and slept through the whole thing today....
I had my first resection 6/1, took 30cm of sb plus appendix that got snarled up in the mess. The biggest fight is fatigue, it's overpowering but slowly getting better. I can move around OK, the pain...
Oh yes, experiencing it for the first time now. 7 months ago I was a thin but muscular 185 (6-1). Raced bicycles and lifted three days a week...best shape of my life and felt really good about how I...
I do, but cut way down after diagnosis. I'm a 2-3 cup per day and it doesn't seem to bother me a bit...but we're all different....
I'm pretty lucky in that I can work from home as long as I need to. I have a great home office setup (4 screens), but can't use it right now because I can't sit in the chair very long. My work day is...
Staples out today. Those last two...whoooooooo boy! Made it through a work day, they're all being great about it and know I won't be putting in all the hours for awhile. Came home to a very large...
Getting pretty tired of that hospital. Had about 12' sb removed. Moving around OK, very tired of course. I guess I just started week 2 of recovery and should be feeling pretty decent in another 6?...
Yep, two more abscesses so they went in and took out gnarled section of 12" small bowell that was diseased, wrapped around the appendix and was trying to shove that whole mess in my pelvix. Take out...
I had a fistula that created two abscesses. They installed a JP drain in each and put me on iv antibiotics. One of them closed up but the other kept going strong. I started on Remicade and they felt...
Saw the GI yesterday, the fast wean was at the behest of the surgeon who wanted me to go even faster. Sure hope I can bounce back, a little googling says this could last 8 weeks...uuuuggggghhhh. I'm...
I did, big mess with abscesses. This is day 4 of 0, the last two have been really rough. I figure at this point it's best to just ride it out....
Doc took me from 40 to 25 while in the hospital (had been on 3 months). After 5 days at 25 he had me go down 5/week. Sunday was my last dose at 5. When I look up the withdrawal symptoms, I'm the...
ag, The person who suggested a PI lawyer was right on. What will happen is your insurance company will settle with you (minus your deductible) then go after the person that hit you in a subrogation...
I just took my last wean dose on Sunday after being on for 3 months. I'm a bit fatigued, but yes is did give me enough help to keep afloat. Hopefully this won't last much longer....
Yep, mine was a jabber too. This all started in December, and this is my first forward progress since the beginning. After all this time of things getting progressively worse, it seems I may have hit...
Fistula is closed after second dose of remicade, radiologist called the surgeon while I was on the table then yanked the jp drain out. I'm on cloud 9...pretty dang sore but a great day. Just wanted...
CrohnsPatient, When you were on BCBS, what was your out of pocket for remicade? I'm still waiting on my first bill....
So remicade seems to be doing me a whole lot of good very quickly. I go to see my GI in a couple days and he already told me he wants me to start 6mp. I'm on the fence as I really want to finish my...
People handle these situations differently, and the confrontation obviously makes you nervous. I say write him a note/letter. At the end of your next appointment, give it to him and let him know it...
Still have it...for now. Fistulagram tomorrow and if it's clear it comes out Wednesday. ohplease ohplease ohplease ohplease ohplease ohplease ohplease ohplease ohplease ohplease ohplease ohplease...
Oof, yeah, no fun. However, where this drain is located makes life miserable. I haven't sat on my couch in a month and I have 4 different line/bulb setups depending on what I will be doing...and it...
It is a fistula, but it was internal and created the abscess. So you think any output is enough to leave it in?...
After the second dose of remicade, my remaining jp drain (in abscess) is down to producing about 3 cc of output over 24 hours(was 20/day before the treatments started). Have an appointment with the...
DON'T DO IT! My cure only costs $22. Buy mine....
Heh, again, many here will answer this. I'm a newbie to all of this and there are too many people on this board who can give you great answers. Mine hit me in December and I was diagnosed in...
No comment on diet from me, I seem to be able to tolerate just about anything. For me it's avoiding too much at once. There are many others here who will chime in though, and it's all pretty...
Well I'm new to this, add to that your obvious medical knowledge and I can only really comment on a couple things. Yes, dump that doc. You know better than anyone that they're like any other...
As a new forum member, it's good to hear of another cronie doing good. As a lifetime Cards fan, it hasn't been long enough yet for me to say anything further that's fit for this forum....
If you can tolerate Ensure then yes, it's good stuff. I have no issues with it and with my weight loss problems have been drinking 3 per day in between meals. The additional calories have helped me...
Hey, don't take us the wrong way here. Vent away. We're just replying out of concern as it seems (as much as we can tell over the internet) that you're in a bit of a panic. Stress is a multiplier of...
I have a jp drain in an abscess from a fistula. Had my first remicade treatment a week and a half ago. The hope is it will heal this draining fistula. 48 hours after the first treatment the abscess...
Yep, you have to relax. You're making it worse and really need some anti-anxiety meds or something. I have it all over. I lost 48lbs (185 to 137) in 60 days. I have a fistula. I'm walking around with...
"Its kinda wierd but when first diagnosed it was the worst, but I have never been that sick since. I have been sick with flares, but never as bad as when first diagnosed." I keep hearing this and it...
Daunting, mine took about three and a half hours in and out the door, and that included time waiting for the meds to come up from the pharmacy. With no reaction, it was no different than being on a...
Just had my first. The benedryl the doc gave me beforehand made me sleep through half of it, but it was completely uneventful. Felt no different walking out that coming in....
After my recent bout here, I seem to fit Ileitis to a 'T'. Does that mean that's the one I have and of so, does that mean I'll be limited to those symptoms? Or am I making this too simple?...
I had my first course Friday. While I'm seeing no symptom change, I'm already seeing a marked improvement in my JP drain output. I'm quite excited....
Well I refuse to try popcorn, like it but after all the stories I'm fine doing without. Really, I'm able to tolerate almost everything, it's too high of a volume that gets me. I try not to take more...
I'm FAR to set in my ways to click that link....
Great! Maybe I was supposed to go through all this to get to biologics faster then right? I'm on pins and needles here but the hope runs deep. Just getting this flippen drain out will be a monumental...