Two years ago my new insurance company refused to cover Remicade even though I had been on it for over a decade and I knew for a fact that they had other patients taking it. We appealed multiple...
Fidelis is the worst. They have denied my doctors appeal 3 times. Now we are doing a external appeal with the state. I've been on Remicade for over 10 years. No other carrier has ever given me a...
Does anyone have Fidelis insurance? If so, have you successfully gotten them to approve Remicade? I've been on Remicade for over a decade but recently switched to Fidelis insurance. They are denying...
I wasn't completely clean, but was clean enough to do the scope. They had to give me Zofran because I started throwing up again in recovery. No more Prepopik for me! Anyway, for the first time ever...
Heal quickly Ides!...
What do you eat?...
At 9:45pm BMs and vomiting started and continued non-stop for an hour and a half. I have been vomiting and having movement sporadically every since. I am definitely not cleaned out and I feel like I...
No pain and my colonoscopy is scheduled for 10:30am. My last colonoscopy I had to do 2 days of Miralax to get cleaned out....
Hi everyone! I haven't been on this site in a while and hope that everyone is doing okay. I have a colonoscopy tomorrow and my GI prescribed Perpopik. I took the first dose at 4pm EST and the second...
I can't tell you anything about dental work, but 4 days after my last Remicade infusion I had surgery to repair some broken bones which included putting screws in my bones. I am healing on schedule...
Definitely check for diabetes and thyroid issues. Your diet sounds very carb heavy which is not very satisfying. I would try increasing your protein intake and cutting back on the carbs and dairy....
NCOT - I myself don't come on this site very much anymore and haven't posted for some time. I've always found your responses to people to be very helpful and would hate to see you go....
Could it be a panic attack?...
You can not get the shingles vaccine while on biologics....
You can stay on your parents policy until you turn 26. If their coverage is via their employer, the employer can require to pay the full amount of the premium for you....
I've never heard of it but can tell you that wipes should never be flushed. As a Crohnie I certainly wouldn't want to put a used wipe in the trash....
I'm so sorry....
I was diagnosed with a cataract last year at age 44....
My platelet count has been high for the past 10 years but my CRP is almost always normal. I've seen a hematologist and there is nothing wrong with me blood wise. I don't worry about it any longer....
That is a known fact. Serotonin is produced in the gut and if your gut is out of whack so are your serotonin levels....
They used to recommend taking 6MP with Remicade to lessen the chance of a rejection or reaction but the newer studies recommend against using the two together now, especially in children. The combo...
Wouldn't you go on COBRA once your coverage ends?...
This illness is different for everybody. We all have different levels of pain and discomfort tolerance. For me the extra intestinal side effects are worse than the intestinal issues. Some days are...
My docs are in Great Neck, but I believe a lot of NY people on this board use doctors at Mt. Sinai....
Levaquin is my go to antibiotic. I always have a stash on hand....
Crohns can absolutely cause vision problems. Inflammation in your eyes can result from Crohns. This inflammation can cause vision loss....
My dog has Clostridium right now but I was told that it isn't transmittable between species. He is on Flagyl now....
I drink it everyday. I love it!...
I know it sucks but they need to go well beyond the mole to make sure they get clean margins. If they don't get clean margins they will just have to do it again. How often did they say you have to...
Miranda, Autism spectrum ....who cares? Societies obsession with slapping labels on everyone is such crap. I certainly don't want to a stepford wife and conform to the "Norm". Us weirdos are way more...
I have gone through periods of hair loss and breakage and now take Biotin and Folic Acid. I also like to use shampoo with mint and biotin in it....
I would avoid steroids at all costs. I'm only 44 years old and have the start of a cataract thanks to intermittent steroid use over the years. I know that they are a quick fix but find another way if...
Miranda, We all go through different emotions at different times as a result of this disease and what it does do our bodies. It is real easy to give in to the anger or wallow in a constant pity party...
I have Oxford and I don't pay a cent for it....
Kangentrainer - Alkaline water is far from free. The machines go for $3,000 and up and the bottles aren't exactly cheap. Obviously clean water is healthier to drink than anything else but no one is...
I use alkaline water for my LPR but never heard of using it for CD....
I think that you are right Susans53. The list of ailments in NY is very, very limited. I think about 1/2 dozen....
I have Rosacea and I use MetroGel for it. With my Crohns and other issues my Derm doesn't want to give me oral medications. I don't really pay attention to the Rosacea diet. If I followed all of the...
I'm glad that they caught it early and got clean margins. I was just diagnosed with a basal cell. My GI spoke to my Derm and they have decided that for now I will stay on Remicade. I'm actually...
I'm seriously considering doing one of the Team Challenges next year and was wondering if anyone has done one and can tell me: 1. How did you find the CCFA training and support? 2. How much money do...
Water allergy is a real thing, just like cold allergies. They are rare but real....
I think it would depend how long you have been on it. I was on it twice a day for 4 weeks. Now I've been doing once per day but have added PepZin GI, a probiotic and digestive enzymes. I've also...
I did the Clean Program and walked 5 miles per day. Once the cleanse was over I continued to eat better and walk and I lost about 20 lbs....
I would think that it is the GERD. I was recently diagnosed with LPR and am on Prilosec. The ENT started me off at twice per day but I have recently cut back to 1 per day. I brought a GERD wedge to...
I'm sorry that some of you have had such terrible reactions to some of the biologics. At the end the day our body chemistries are all different which why we all react to food, medications, stress and...
I use email, texting and always carry a notepad and pen....
I don't have pain do I do completely loose my voice, sometimes for days or weeks at a time....
Denise - you should probably see an ENT. It sounds as if you are experiencing laryngospasm, which is a terrifying experience but not life threatening....
I use Seasonique with no problems....
I would push for a capsule endoscopy. It will show what is going on in the are that endoscopy and colonoscopy don't reach. I agree with jamosca, lay of the soda and fried foods. Try a meal...