Thanks for the heads up! I wouldn't have been expecting that!...
Thanks for the reply skyflyerjen! I haven't been able to get hold of the dr, but her nurse thinks it's okay to go ahead with the colonoscopy. The scope isn't scheduled till noon, so maybe that bought...
I have a colonoscopy scheduled for Tuesday afternoon. I have had 3 in the past, but the most recent was 5 years ago. I just read through the directions tonight and realized I have already messed up...
Hi! I'm here from the crohns board. I was diagnosed with crohns about 15 years ago. On and off different meds, but I noticed about 4 years not eating gluten seemed more effective than any of the...
I had severe joint pain and stiffness following remicade treatments. I was fine after the first couple. Then I think the third time I started feeling mild joint pain. Each infusion got worse. I think...
Thanks for the help Lisa430, minnietoty, and beave!...
Hi! I have a few questions about entocort, I'm starting it for the first time. Currently my dr has me on 9 mg for 8 weeks. I have no follow-up scheduled between now and then. Is this typical? Has...
Thanks Minnetoty! My dr prescribed me entocort, which I've never taken before. 9 mg, we'll see what happens. Healing vibes to you, Bad Gut, and stripy!...
Thanks for the replies everyone!...
Hi everyone! I was wondering if anyone had any experience with pain right at the base of the ribcage. I'm having a dull, but constant pain below my breast bone between the space in my ribs. I just...
I'm in! Just let me know what to do!...
Oh man! Your situation is so similar to mine!! I had skin tags, however no perianal disease with my crohns. All my disease was in my terminal ileum. I was planning on a vaginal birth, and developed...
I just moved to the Portland, Oregon area and was wondering if anyone had any recommendations of a doctors they really liked. I am not sure what exactly our insurance will end up covering, but I will...
Glad everything went well for you! Continue to keep us posted :)...
A seton is a thin band that is run through a fistula to keep it open and draining. I had abscesses that kept filling as well, but they were connected by a fistula. Now that I have setons they drain...
Thanks for replies everyone! Good luck with your surgery, Shellie! Eeep- 7 bands Casemonster??!! Goodness I feel as if I should be grateful to just have 2! You are an amazing person to deal with it...
I had two perianal abscesses last March. The colorectal surgeons tried putting tubes into them, but the abscesses were connected by a horseshoe fistula. I had several surgeries when it was decided I...
I had two perianal abscesses last spring, and they hurt like nothing else!! I know how you feel. I couldn't sit or stand. And I was pregnant so I couldn't lay on my belly either! I was on diloted as...
Hi Octobergirl! Sorry I'm so late jumping in on this. My disease is fairly under control, so I haven't been on the boards as often. I also became pregnant while in remission, and my crohns began to...
Good luck with everything!!!...
Thanks Nanners! I appreciate the advice, and will definitely add 2.5 mg into the taper. What happens if you taper too quickly? Is it hard on the body (I've heard that prednisone affects your adrenal...
Hello! I'm currently tapering off prednisone. It has been a LONG time since I've been on high doses of prednisone for an extended period of time, until the last few months. I've been on prednisone...
I got severe joint pain from Remicade, but not muscle pain. If you think the pain is related to the Remicade maybe you could talk to your doctor about switching to Humira or Cimzia. They are also...
It's hard to say if Cimzia worked. I've only had two doses, and I wasn't actively flaring when I started. I'm pregnant and flared at the beginning of my pregnancy, and my dr's are worried I'll flare...
I've heard that biologics aren't typically used short term because your body can build up antibodies to it. That being said, my doctor put me on Cimzia, which I did not want to go on (not a medicine...
Thanks :) I had only been taking one colace because the problem came seemingly out of no where. One day I was fine, the next in agony. My crohn's is active in my rectum, and this is all very new to...
Is targin over the counter? I feel a little stuck... I'm pretty sure I can't take any laxatives, I'm 29 weeks pregnant. So actually I can't probably take any new medicines until the doctor's are in...
I have been having severe constipation issues which has led to impacted stools. It took me 12 hours, and some less than pleasant maneuvers to pass an impacted stool yesterday. Today I have another...
It sounds like we have a lot of the same things going on with our crohn's. I have abscesses and a horse-shoe fistula. Right now I have two seton bands, so I have no idea if the fistulas would heal if...
I got joint pain from Remicade. I developed antibodies to Remicade and ended up with debilitating joint pain. It started in my shoulder, then switched to the other shoulder. It built slowly over...
I agree!! When the nurse was pushing the Cimzia in fast it was really stinging. When I did it slow I barely felt it. I noticed in your signature that you had surgery for an abscess in Feb. That was...
Thanks, pmedic, that does make me feel better :) I've had a reaction to Remicade before, so I am nervous about Cimzia. Plus, I'm currently not in a flare, my doctor is concerned that I could flare...
I just received my first Cimzia injection. I'm pretty sure I'll never get used to having medical problems. It bothers me a lot that I have to have a drug that is injected. It seems so serious! The...
I'm 28 weeks pregnant and starting Cimzia tomorrow. My crohn's flared when I got pregnant and I ended up with a horse shoe fistula and abscesses. My doctor recommended Cimzia because it is not...
I was put on Flagyl for my abscesses for a month. The infection cleared up, but my abscesses are still being held open by seton bands, although they are no loner painful since there is no infection....
Hi GassyLassy! I am starting Cimzia on Friday, I'll keep you posted on how it works and if I end up with any side effects (fingers crossed there's none). When does your doctor want you to start?...
Ugh, I can totally sympathize! I've been tapering from 60mg and am now at 40 mg. I've been on prednisone for over 2 months now. My husband is sweet and tells me I still look beautiful, but I feel...
Thanks for your reply, Dizzy! I'm glad to hear you're doing so well on cimzia. Did you have joint pain as a symptom of your crohn's before you started cimzia? I ask because that was what happened to...
Thanks pmedic! That sounds very encouraging :) What do you take now that cimzia isn't working?...
Thanks for your reply :) I'm glad to hear you haven't had any side effects! Has cimzia been particularly helpful for your crohn's symptoms?...
I'm starting cimzia this Thursday, and was wondering if anyone who has tried it has any words of wisdom for me. Are there any side effects that I should look for? Does anyone think cimzia has worked...
I've been taking 50 or more mg for over a month... I guess if I start feeling bad by lunch I'll just have to take leave to go home and take it... Thanks so much for your reply!...
I forgot to bring my prednisone with me to work today. I usually take 50 mg around 8:00. Do any of you know if it matters if I wait until 4:00 when I get home to take it? I know you're supposed to...
My dr. is suggesting starting me on Cimzia due to active crohn's in my rectal area. I was wondering if anyone is using Cimzia and how you feel about it. Are there any common side effects? My disease...
Immodium works for me. Sometimes a little too well......
My crohn's began to flare during my pregnancy. I was only taking pentasa, and my doctor suggested starting Humira, until she realized how far along I was. She told me I couldn't take Humira at the...
I have perianal abscesses, but they are being kept open with seton bands. Are yours being kept open to continue to drain by anything? Mine are connected to a fistula, so I think it's a completely...
I agree with the others... drainage setons are not too bad after the first week. I initially didn't think they would continue to drain so much, but mine do still produce quite a bit of drainage, I've...
My dr. told me I have a 70% chance of having a similar surgery (abscess drainage, seton bands) but I'm not currently on any biologic medicine, so I'm thinking she meant without going on one of those...
Thanks for your reply, Becoming Undone. I'm so sorry to hear that you are having so many problems with your crohn's! Are you still flaring despite the cimzia? Where is your disease active at? Mine...