Some say Folic Acid helps with the hair loss. Why the heck does it only fall out from the top of the head. I'd trade not shaving my chin for some shedding....
Iced tea mix and lots of fruit juice for me. They are both loaded with calories so I don't feel like keeling over....
Gavin92- I get whole psyllium seed by the pound from Frontier. I then grind it myself in a little Mr Coffee grinder. Costs about 7 bucks per pound. If you look on line there are a couple of companies...
Visiting from the Crohn's side. When I was in the hospital they gave me Calmoseptine for the butt pain. I found it worked wonders for me. Now I buy the big tube. The only local pharmacy I can find...
"I hate to break it to you LIVINGWELL, this is not about you. You're a newcomer and therefore haven't formed a close relationship yet on here." Just my humble opinion people-That statement is the...
Nawlinscate- You may have already tried this but if you haven't maybe it would be worth a shot. I have suffered with green D since my gallbladder was out on 2009. I read about people who have used...
None that I know of yet. We will see what my monthly bloodwork brings in a couple more weeks....
Its not the greatest tasting stuff and it may have some not so great side effects, but I do not care. I would eat nails and lose a foot if it kept me feeling this good. Too much time feeling awful...
Started cholestyramine(Questran) 2 1/2 weeks ago. One packet in apple juice at bedtime. Don't want to jinx it by saying it is working, but hey I think it may be working. 1 to 3 trips instead of 10 or...
I keep an old newspaper in the truck with me for that "just in case". If I feel like I may not make it to a bathroom I sit on it. Maybe its the brain bowel thing but it has not been used yet**uh-oh-I...
Gallbladder out 2 years ago, Crohn's at the very top(eyes) and very bottom(rectum). In a nutshell: Green fire down below! I have found that overloading on Metamucil and ground psyllium seeds helps...
I also add a bit of the "fake" salt they sell. It has a high concentration of potassium which is a necessary electrolyte....
My take is that glutathione is an immune system booster. Isn't it pretty widely thought that an overactive immune system is a contributor to this lovely disease. I know that other immune boosters...
Bilateral uveitis. Prednisone and dilating eyedrops....
I used something called a Hip-T to contain and conceal the bag from my ileostomy. I'd say they are probably similar products....
When my intestines are going crazy I have excruciating lumbar pain. I read somewhere that cold interrupts the pain signals to the brain so I sit in my chair with an ice pack against my lower back for...
I had that in my sigmoid. They felt they should cut it out to be sure it wasn't cancer. Thankfully it was not....
I had a nasty headache for weeks 2 to about 4 1/2. I am now at week 6 and it seems to be better. Who knows though. My AST is backing off(27) but my ALT is still creeping up(63). I think its way early...
I'm confused. Are we talking a psychologist-head doctor-or a phycologist-algae person?...
Yup that's morbid. Hard sometimes not to face it head on tho what with surgeries, crash carts, powers of attorney, wills, drugs that "make us better" but can kill us.... Easier just to joke about it...
Actually there is a cure for Crohn's-The box. Ha Ha....
I put about 3/4 of a teaspoon in my morning decaf. I don't think it has made a difference in my innards, but who knows. Maybe that's why the 6-MP doesn't make me nauseous-Ha Ha. At least it makes...
I would say yes you are sick enough. However I would question a GI doc who started you on 6-MP without the TPMT test. I believe that takes a couple weeks for the results to get back from Prometheus...
I have used Mira-lax several times. It is by far(for me) the easiest prep. Doesn't taste like anything-just like drinking gatorade. Good luck....
I chuckle at the people who are always saying that it can't be that bad, how come your not working, etc. who then are bedridden with a stomach bug or a touch of food poisoning....
NJMom- Nope,gotta take the 6-MP anyway. Can't put my daughter through another round of surgeries and hospital stays....
Started Cipro for a sinus infection(wanted to be infection free before starting the 6-MP) last Wednesday evening. By Friday morning all bleeding had stopped and have had none since. Tested negative...
46- I also was red and itchy around ostomy area. They gave me Desenex powder which helped a great deal. I also had my gallbladder out at reversal time so I may be different, but the 25-30 liquid...
You all might laugh, and I'm sure the negative crowd will want to weigh in, but I have found that my 2 glasses of S. American red wine actually helps keep me more regular. If I go without for a...
Same sharp pain but mine is in the left foot. I figure this gnarly disease makes it hurt so we can't kick ITS z@#$%...
Mira-lax has no flavor and you only need to drink 32 ozs 6 hours apart....
Am feeling a bit disappointed that my experiment with natural control methods did not seem to work. A year ago I had one bad patch at the splenic flexure. Todays colonoscopy showed bad patches...
Annual colonoscopy prep in progress as I type. Just Mira-Lax this time. It doesn't taste like anything(Unlike the GO-litely), and with no Dulcolax needed its been a breeze....
I have found S. Thermophilus causes me problems....
Get 'em checked right away. You could have Uveitis which can cause blindness if untreated. Insurance should pay for the Opthamologist because it is an emergency....
Every time I've had to drink that stuff has been in the A.M. Why can't they make it taste like coffee?...
I use the PB-8 as well. Make a note that they have both a vegetarian and a non-vegetarian formulation. The non-vegetarian(Blue lid) has Inulin in it which for me is a major no-no. Inulin for me...
Dang! They left mine when they opened me up!...
Ok-gonna try this again. I get jaw pain right before the Uveitis flares up. I think it may be caused by inflammation in the lymph node in front of the ear but who knows....
Dr. MacDermott at Albany Med knows his stuff. Good luck....
Nah I didn't save them. They were awarded a vikings funeral. My brother in law who is a pediatrician in Mass. feels I should wait. They deal with tons of ticks and Lyme every year. After opening...
Bucci Saratoga And does anybody have a list of the llmd folks in the Albany area?...
Hi- Am over on the Crohn's board. Pulled 4 ticks off myself-2 yesterday(big) 2 today(smaller) Little maggots were in my cell phone holder. And no I did not save them-they had a viking funeral. Too...
Ok- Here's the question. Pulled four ticks off myself (2 yesterday/2 today). Too late to call my doc so I am looking for some feedback. Do I automatically medicate and destroy the delicate balance...
Not everyone is affected by the same things. I consider myself lucky that I can tolerate many of the items on that list. High fructose corn syrup,MSG, and inulin/chicory root are big no no's for me....
I used the Hollister system which worked well for me. Lots of paste when changing. At night I would use the largest vented bags they had. The vent would last a couple of nights then plug and the...
Hi all- Have been spending a bit of time on the UC board(wishful thinking right?) but today was given a definite diagnosis of CD. Probably won't hear a lot from me but I hope to learn a lot from you....
Even though I spent more time on this forum lurking than posting I am saying goodbye. Dr. MacDermott gave me a definate diagnosis today of Crohn's so I will be migrating to that board. Good luck to...
What works for one person may not work for another. I also believe there is way more information to be gleaned from peoples personal experiences than from doctors. Doctors diagnose and treat but not...
Bunny- I would't say that too many probiotic bacteria is a bad thing. More like not all bacteria agree with all of us. In my opinion....