There is a story in the December 1st issue (2014) of the New Yorker Magazine. I read some year-old posts that referred to an article in it in 2013. Wondered if anyone else has read this one and if it...
Following my mother's resection and diagnosis of Crohn's her PCP started her on Asacol. When she saw a gastroenterologist he stopped it saying it wouldn't do anything for her. And when I told my...
Get a second opinion. I didn't--accepted my GI recommendation to get it done laproscopically at the big city (Pittsburgh--ShadySide) hospital by a colerectal specialist. It came apart and developed...
I've had this several times over a number of years. It's like trying to clear after a change in air pressure. The first time I went to an ENT he gave me a shot of prednisone. It cleared it right up...
With only 25 cm of colon left after a resection at the TI that went badly, I usually do 6-7--frequently more. My GI says this is “fair”. When the count is more, the likelihood of anal irritation...
Are there any USA chain stores that post online prices of drugs? How much do you pay for colestipol? I'm paying $79 for 120 tablets....
I was reluctant to start Azathiprine but haven't any problems with increased infection, hair falling out, etc. I think it might even have improved my hay fever and joints not that either of these...
I asked my GI after a rescection that went badly with a stricture at the anastomosis which he says is probably related also to the surgical scaring. He did a CT scan which he said would tell what...
You don’t perchance see Dr. Baidoo? My suburban GI referred me to him after my problem-plagued resection. When my mother was Dx with Crohn’s, she asked if there was someone closer that Baidoo could...
If you need root canals doesn't that mean you already have infection in the root canal that needs to be removed?...
My most recent level was 32 and I got a note saying doc wanted it raised to 35 or > so I should start taking D. The thing is, I looked at my blood work done four months ago and at that time it was...
I had a resection that went badly three years ago for a stricture. Nine months later when my gastro did a scope she couldn't get further than 25 cm where she could see staples. At that point point...
Is there a reason other than bleeding to not take aspirin? In other words, if bleeding isn't a problem is aspirin OK?...
I asked my new gastro if I could take aspirin. (I'd heard one who has Crohn's shouldn't take it.) He said it was OK, then paused and asked if I was taking it for my heart. I said no, only for...
It's been several years since I was on entocort. I applied to Astra Z. It was a very comprehensive form, not just income but all one's assets and I never heard back from them. I got samples from Dr's...
I've been on AZT 50mg x 2 for about a year. I was worried about the side effects but haven't experienced except scalp pimples and the Dr. says there is no connection and it's cheap at about...
I had two sutures that never healed. To make a long story short, I saw a different surgeon 18 months later. He was able to remove one in the office (no local) and it healed. With that successful...
When I started B 12 injections my pharmacist asked if I wanted the big needles or the little ones. I thought he was joking, and he was a little, but he explained there were two sizes. I, of course,...
After I'd been on Imuran for six months I noticed an increase in the amount of pimples on my face, mostly my nose, and some on the top of my head. Anybody else notice this? When I was on prednisone...
I've gotten hand cramps when on prednisone for awhile....
Anybody have experience with Adult Basic of Pennsylvania insurance? Was it difficult to get? Do you pay the full rate or the subsidized one? How do providers like it? I know one of the requirements...
I'm paying about $7,000/year with a $1,000 deductible and then 20% of the bills until I've paid $10,000 then it pays 100%. It pays nothing for office visits unless they were related to a recent...
I was started on 100mg (two 50s) in October and the dosage remains unchanged. Recently reduced blood test to monthly....
I've had a little bit of restless legs. My dr. suggested tonic water--the gin's optional....
Nobody mentioned position. (Vertical vs. horizontal.) It always feels good to pass flatus--sometimes really, really good. Because my bms are liquid and frequent it also seems better to reduce...
about 15 years ago I was afraid I had an abscess. My then GI said it was a thrombosed hemmoroid. I should give it hot soaks in the bath and it would go away. It did. Several months ago I developed...
Had a lapro resection 18 months ago. It pulled apart five days later and I had to have an open incision and a bag. In October I had the takedown. Last month I had a scope and my GI couldn't get up...
I had long smoldering CD. I went 25 years with three obstuctive flares that came at closer and closer intervals. My GI finally talked me into a resection. It came apart five days later. I spent a...
I couldn't take much of the cholestyramine powder because it made me gag. My GI suggested colestipol tablets. I found them easy to take and they seemed to be reducing my frequency. I gradually...
I'm eight months post reversal. about the first of this month I noticed a small bulge just to the right of my incision. Of course my whole abdomen is bulgey and bumpy from all the drain cuts and...
I understand that some temporary ostomies are two holes and some only one. (I had a one-holer.) I thought the reason to fasten the rectal end near the emptying stoma was just to facilitate the...
I had a lapro resection that went bad followed by an open incision 5 days later with an ileostomy that has since been reversed. I was in the hospital the first time for a month. I was just glad to...
Take a roll of CHARMIN with lotion toilet paper to the hospital. I had my family bring some after I started going and got irritated from the frequent bowel movements. It was much better than the...
Had my reveral in Oct. Thought I'd be rid of the reccurrent yeast infections but I still have problems which I blame on the adhesive tape over my healing stoma site. (Had a big hole that's filled in...
I resently had a resection for Crohn's and in one of my followups with the surgeon was told to stay away from ibuprofen--that it might hasten a recurrance or something. At my next visit with my...
Balance billing is when the provider submits a bill to insurance, e.g., ($60), insurance pays a portion ($48), and then the provider bills for the remainder ($12) to the patient. I know Medicare...
I'm five weeks post reversal and going about 12 x a day. Frequently I notice the surface has not only a clear reflection but also areas where it appears to have a dull surface like a mat finish on a...
This sounds more like the fault of your toilet. I get floating lettuce bits but they usually go down. Sometimes a second flush might be necessary....
Snap: No, what I meant was the time it took for parastalsis to resume. Some people refer to it as the bowel "waking up". It took me about five days before I could pass flatus or stool. I never messed...
SNAP: Your story sounds almost identical to mine. I had tapered down to a low dose of prednisone, but couldn’t get completely off without the obstructive symptoms coming back. My gastro recommended...
When I had my ileo I ususally emptied twice in the night....
Charmin plus TP with lotion. I had my family bring a roll when I got going in the hospital. It's good for colonoscopy preps, too....
I don't see any mention of a skin barrier prep in your post. Do you use one? I was using Sureprep in the foil packets and then the stoma nurse put me on to Adapt Stoma powder with a spray...
After several months, I finally got around to watching the video that came with my supplies. This woman demonstrates how she changes hers. She does it standing up and in a leisurely manner. My stoma...
I like to take an afternoon nap on my back on the sofa. Five months post ostomy I've started to waken after an hour with pain under the wafer at the three o'clock position. It feels like someone is...
Has anybody used this? This is a high protein drink my surgeon suggested. I start 3X five days before my reversal. It's supposed to help one heal faster and reduce infections. (I had a bad time...
Get a good pair of curved nail scissors to cut the wafer. It's much easier than the straight ones that came with the supplies....
I just changed from an opaque bag to a clear one (free sample). This alows me to see it out and dangling down about two inches when standing--kind of like a short hose which I'd never seen before....
Tom: Except for the surgeon, so far it's looking as if most of the providers are accepting the discounted payable as PIF. This is why one has to have insurance--so they can negotiate a better price....
A nine-day stay for a resection in a Pittsburgh hospital (just the hospital bill--surgeons, etc. were extra) in April was $257,000 of which my insurance allowed only $205,000. I've been trying to...