Hi chron´snme Just wanted to say that there is a treatment that can work for some of us but unfortunally they do not give/recomend/do it in the US if I´m right. It´s called apheresis ( Adacolumn...
Hi I also have AIH and I am on estrogenplasters works fine for me. About the fatigue I think Dany is right do some bloodwork. Take care!...
Hi christina How did it go? Got any answers?...
NCOT anemia is a sideeffect in 1/100-1/1000 of metrotrexat. :rolleyes: But they should check it up so you don´t stop it untill they are shore. On the other hand if one looks up most of the meds we...
:-) like it!! :yeah:...
Hi Pam Just wanted to add that there is another more uncommun medicationalternative for AIH if one cannot tolerate Imuran ( as I did) and that is chloroquine. It´s not so commun but for me it has...
Hi My Hep told me to really watch out for taking to much paracetamol because it´s not good for a liver that´s under pressure. and meds containing morfin is also sometimes a no-no but i think thats...
Oh :sad: Your not alone. I´m here along with all the rest. We are here. I to find myself in that position on and of and i guess everyone else to. Get it of your chest NCOT and then do someting that...
Hi again Now I´m a happy bunny to :smilewinkgrin: Most of the times I mention it no one knows what I´m talking about or thinks it´s some kind of odd thing or that I´m some kind of advertiser for it...
Chiccam. I was terrified before my biopsy but it went ok. Hope you´ll get the answers soon so they can start treatening it. Good luck!...
Hi NCOT Do you live in England? If you are looking for possible treatments then I suggest you look into : Apheresis- adacolumn leukocytapheresis. Just a tips. Have helped me in remission twice now....
Hi Just want to say that I´ve got AIH and two other autoimmun diseases and am on Tnf-alfa and chloroquine and I work at a hospital as a midwife. I don´t get sick in other stuff so often, in the...
Hi Chiccam Sorry you got this disease but as Ann and Dany are saying it is treatable and most of us having it lives good lifes. But don´t forgett that an untreated AIH takes a high procent of lifes...
Hi Heyjude How old are you? Did they say if it was a "single" cyst with nothing "in it" or ? I think if it´s that big they need to do something. Are they sure it isn´t anything other then a...
Thanks Isergodur You just confirmed what I´ve been thinking that my Humira also take care of my AIH. Then perheps I dare to try and get of my Chloroquine that I have been taking for 4 years now. :-)...
Hi Connie I´m sorry my spellings is wrong I meen since :rolleyes: Ann- Thanks for explaining to me. I think it´s a bit hard to find information. Have read some studies but this is better. Chloroquine...
Hi Ann Have got AIH too, since 08. Preds wasn´t enough for me and I also had really bad side effects but as I got side effects from aza I was put on chloroquine that did the work. Nice to hear your...
Hi Guitarlady Sorry you have such bad sideeffects from the preds.It´s an awfull medication but I´m soo glad we have it othervise this would be a dangerous disease. I also have AIH so I know how it...
Hi Connie It´s apheresis I´ve got leucocytapheresis. They run my blood through a filter that takes away the monocytes/granulocytes that are triggered/ative in my immunsystem and once many enough are...
Hi Mark Sorry hep if i answer here. I am not in so often nowadays but Mark if you´d like start another tread to but ask about apheresis so I know it´s you. Sience I got the aferesis terapy My crohn...
Hi again Pamma I think there is a difference between people and people how easy we get infectione. I would be around people I know are sick with flue for example. But i never wore any mask and I work...
Hi Pamma That´s pretty much how I got my AIH but it was from Remicade. You got it harder from the beginning then I I never got yellow. I had pres 40mg that they had to increase up to 60mg and while...
Neani I can´t either take Imuran and have been on other immunosupresants as well with sideeffects due to them so the only immunosuppresant that I take and can endure for my AIH is chloroquine and it...
Thanks AG for the laugh of the day :D My kind of humor :) But I´m not sure they need to have the disease you got yourself. If that where the case oncology would be a speciallity that always were in...
Hi shimbare Makes me sad that you have got so bad cirroses from a "misstreated/ignored" AIH. Makes me angry. Think your stress is both from your HE and from tha fact that your under pressure. Take...
Good Luck and have a good recovery and Take Care!...
Hi Dave You asked if there was anyone here with AIH. I have got it as well as some other autoimmun issues. My AIH is under controll after 10months of preds and added to that chloroquine as I can´t...
Hi fenmarie Have also got AIH after have had Remicade. It´s like Dany is saying: avoid any herbal remedies and don´t strain your liver with paracetamol or other meds that can stress the liver more...
Am HLA-pösitive as well It was taken dx my AIH a few years ago. Don´t know if it´s the same numbers thow or another HLA part. Have both CD and psoriasisartritis....
As being a midwife I have to ask you: Do you have any medications your on? How extensive are your disease? Is it your first child? I have no problem in you being delivered by a midwife. Where Im from...
Hi shikmaru Have also got AIH. have to ask you: did you just do a rutine biopsy or did you do the bloodwork as well and were the levels of the liverenzymes going up? I am just taking bloodwork once...
Burgoo and soyamilk gives energy enough to feel full and to aviod eating "unhealty" stuff before lunch. :-)...
There is a therapy their not offering in US at the moment but I have to share with you. If you get the opportunity ask for and try apheresis, leukocytapheresis. It has finaly gotten my CD in...
:sad: If jointpain preceds a flare then I´ll just have to wait my joints aren´t nice to me right now.. And keep of NSAID be nice to your intestins. Take care!...
I tried Tramadol after I´ve had my latest operation but I got angst from it. It felt like I had to active breath but it´s tricky to find some painmed that doesn´t send you in to a flare :/...
Matthew! 200 possible complicatons?? :shocked: not sure I want to know :sad:...
Hi Jackel Wish I could do someting else then just to tell you that I know how you feel. I have yet some therapy options left but then it´s the same for me and preds is a med from hell if you ask me,...
That´s really good advices Roni. Do also take with you some desinfection for your hands to use before and after toilettvisits and before eating. Last summer I was in croatia and it was hot. I got...
LoL Thanks Vickey for the laughter of the day! Love gallow humor. :smilewinkgrin: Have heard of it but nowadays I don´t take it in because I´ve realised that when it´s time it´s time. As a Crohnie...
Thanks Gail! You just gave me my hope back for this site. :-)...
Keep us updated. We care. Hope he gets better soon....
Hi Rose Welcome! I have experience of slow healing and bigger scars during medication with pred. But if you need it you dont have so many options and it will heal eventually. Good luck!...
I haven´t been here for long but Snipers wrighting is someting I tressure highly. If hi is not feeling fine I wish I could send some warm thoughts to him and my most sincere wish that he´ll be better...
Nanners! Rest, take care and gather strength to come back! Hug!...
Hugs!...
:mad: :rolleyes: :cry: I don´t understand at all. of course I haven´t read every thread here and haven´t been on this site for so long but this I know- both Nanners and Ivy are importent to this...
Hi Gumby 44 I know exactly what you meen. Have had severel issues with cysts and with myoma in the uterus. And not knowing if it where the cysts or the crohn that gave me the pain. Today I know that...
Hi agridulce As you seem to be interested in "alternative" therapy ask/look up if they don´t give leukocytapheresis anywere around. I´m quite sure that the nurse giving me this therapy where saying...
Hi chronsmom10 Welcome! I´va had my crohn also for severel years but it was dx in 05. Have not yet needed any operation. It´s a pitty that they can´t bring forth any meds for strictures. Would have...
It´s a psychologic mountein to climb over.. Once over it´ll go easy. Good luck!...