If there was a fibro-suit we could put people in to help them understand what it is like!! Have you thought about other ways you could resolve these issues? I'm not married, so I don't know if these...
All of the above advice is very much accurate. I tried to force myself to exercise. I went to a personal trainer, and less than 20 minutes of very minimal strength training left me in excruciating...
Hi, and welcome Mom of 2! I am newly diagnosed, and feel your pain. I can't imagine how difficult it makes things to have your husband not quite getting it. :( Are your kids helpful around the house?...
Thank you, Loring, for all of your advice. :) I have struggled with chronic headaches on and off for years as well, and can no longer use Tylenol due to the headaches. I take Naproxen as rarely as...
I sure hope that ends up being the case, getting by. Unfortunately, I have been out of work for almost two months at one job due to the issues I have been having. :( It's a struggle right now, but I...
Yup. :( And my car was surrounded by over a foot of snow, which I had to partially shovel out. Thank goodness for kind neighbors and a kind plow driver. (I live in an apartment, so the lot gets...
:( I struggle with early morning as well, Jen! Even though I probably start waking up on and off around 4AM/5AM, it takes hours for me to feel functional. I don't think there is much you can do here,...
Hi Hailie! 25, and recently diagnosed here as well. I apologize, as I don't have any advice, but I am in the same boat as you, and it stinks. I just want to share my support for you, and hope that...
Hi Sherrine! Thanks for the warm welcome :) Thankfully, we managed to get the IBD under control right before this all began happening, which was amazing timing. I was tested/checked for both RA and...
Hi Michael! Thank you so much for your response :) I have had quite a few back x-rays. They were going to repeat them, but my GP spoke up and said skip them and do an MRI. The MRI actually showed...
Thank you, AngelLisa! I look forward to getting to know everyone here as well. :) HW is the best out there! Thank you, Lj! Yes. This wintery weather and I do not get along. My knees feel terrible any...
Hi all! While new to this forum, I am not new to Healing Well forums. I used to frequent the Crohns forum prior to gaining a better foothold over those issues. I was doing so well for so long, but...
I was originally on Yaz, and it was great. Really helped with my periods (long, heavy, and stupid painful cramps). I wanted to have no period, so I went on the Depo shot. Unfortunately, I was one of...
Stop reading things on the internet haha! I am the worst for that, and then I work myself up into worry, and get all panicked for nothing. I literally had a colonoscopy and endoscopy today, this...
Minnie- I can understand today even moreso how you're feeling. I just had another colonoscopy and my first endoscopy, and yet again, more inflammation, more biopsies, etc. etc. I just get so...
I totally understand wanting *your* doctor back. I miss my old doctor terribly (moved out of state, so can't go back to him, booo). But, glad to hear things are back on the right track. ALSO!! What a...
Marmalade: I am all about finding ways to reduce the cost of medications. Lialda is steep at $80, and used to be more expensive. I pay $10/month for a supply because of the card from the...
Why not try a new GI doctor?...
@Rango16: I would mention your back cracking for sure. You never know! They sent me to a rheumatologist after I complained of pain in my joints. Turns out I have arthritis. I just thought it was...
I *hated* taking iron pills, so I stopped taking them and began working to eat enough red meat to support a McDonalds. Thankfully, I love red meat in almost any form, so that's easy. I also enjoy...
Hi all- With my new GI doctor, I am trying to work on finding resolutions for some other medical issues I have been facing. I am now curious as to what additional symptoms others experience that they...
Hi wifeofmars! I've been on Lialda for quite a few years now. I started taking it back in 2010, and have been on (and off) it ever since. (I apologize, but I don't remember how long it took to work.)...
@Andrina: I have chest pain as well. Unfortunately, for me personally it is related to acid reflux which I have a terrible time with. I blame my crohns-colitis, and will be going for an endoscopy...
"Effective natural remedies" are loaded words around here. There are many varying opinions on natural remedies for treatment of crohns. For me personally, I do not focus my treatment on natural...
Welcome to the club! It's certainly a club I don't want anyone to join, but welcome anyways. Firstly, I am so sorry to hear you're dealing with this. It's not fun. Definitely allow yourself to get...
Definitely get those levels checked ASAP!! Are you able to work from home at all?...
I am sorry to hear you are struggling so much right now, crohnsmommy33. :( Have you considered going out-of-state to a hospital like the Mayo Clinic or UPMC to get an additional opinion?...
Don't worry about grossing us out around here ;) I don't think there is much we don't see! I would highly suggest you contact the urologist ASAP, as well as your GI doctor. It concerns me that you're...
I've heard both sides from people with Crohns, and I really don't know if we can say with certainty that it *is* genetic. I have a CD friend who has a sister with crohns as well, but their other...
Oh my. If I had that much pain after it, I would absolutely notify my doctor (especially 2 days after). I usually find I have no discomfort or pain after colonoscopies, just gas....
As soon as I read your symptoms, I knew there was no way it was just a cold. :/ I last had the flu in college several years ago. It was indeed, awful. It feels like you were hit by a truck, and then...
Fatigue for me seems to come and go, unfortunately, so I've found no real "cures" for it. However, I try to keep well hydrated and as well fed as I can manage. I try to take a short walk each day...
It's great that you've found some relief! However, definitely make sure your doctor is aware of the GERD flare ups. It's my understanding that the GERD can do more permanent damage if not properly...
Same as Jen, I take just Tylenol. When I was dx'd with the IBD originally, the doctor said he found inflammation in my stomach lining, and we assume that was due to my consistent use of ibuprofen. I...
Hi NCOT-- Apologies, as I didn't mean to imply you don't also have depression. I think in addition to your depression, you sound like you suffer from anxiety. (Of course, I am not a doctor, so I...
NCOT, I think you're not just depressed, it sounds like you're dealing with some form of a social anxiety (which CBT can help with). This combined with depression can make quite a difficult (but not...
Hey lamb61! I recognize Baidoo's name, but never saw him. I loved Dr. Arthur Barrie with UPMC, and can highly, highly recommend him....
Thanks for this info, JaSanne! The lialda connection is definitely something in my mind right now. I hope it isn't related, but am preparing myself for the possibility, just in case....
So, the news is...uncertain? I will keep updating, just in case it ends up being useful to anyone else, as they're not sure what is happening right now. Basically, he is saying I don't really have a...
Who are you seeing in PGH? I loved (and miss terribly) my doc down there, and would be happy to share!...
Thanks for the info, Ides! I am not experiencing current back pain, and rarely have to strain when having a bowel movement. No kids either, which is why my doc is sending me over to a urologist. I...
Hi all! Last you heard from me, I was struggling with doctors. Unfortunately, I am currently doctor-less, but with good reason. I am in the process of getting all the letters/documents to be able to...
Unfortunately, crohns+colitis is somewhat rare as far as I know, so I am not familiar at all with the treatments, etc.. I'm considered Crohns-colitis, I believe, but I have not been diagnosed with...
My nausea varies. It comes and goes in cycles/periods. If my acid reflux is acting up, I definitely have more nausea issues though!...
@gumby- I completely understand where you're coming from. I think my wanting to go off of the medication is to once and for all get things figured out diagnosis-wise. I feel as though by masking some...
I definitely agree about the having to take medication. While it's easy to want to not take meds (I just posted a thread about testing the limits of mine!), Crohns is not curable, and must be...
Thanks for all of this info, minnietoty. Yeah, I assume most doctors aren't going to be big fans of this idea haha. (It really makes me miss my last doc before I moved. He would have probably let me...
Hi all-- Just a quick question. Has anyone stopped their medications (with doctor approval or not) to see where their symptoms are at without medication? I get the feeling my Crohns is very, very...
Unfortunately, this will probably not be the last doctor who is incorrect that you find. Particularly with diseases that aren't as common (relatively, of course), doctors just don't know as much (or...
I'm so sorry to hear that your time spent with your kids is so limited, asweetroy. :( I know it can be extremely difficult to deal with custody issues. Though difficult, I encourage you to use the...