I did fine on azathioprine for the first 3 weeks. I suddenly developed 104 fever and they thought I had the swine flu (happened in 2009). My neck was stiff and I was also dizzy. They gave me Tamiflu...
Has anyone ever went on Humira after being off of it for a few years?? I am in desperate search for something that might work for me. I have been on Remicade (didn't work...won't let me try again due...
I have been on Entyvio since February. I started seeing improvements after my 2nd treatment and by the 3rd I was feeling Awesome. I then had to wait until May for my 4th infusion (which was my first...
I have been anemic for the last couple months and my lab numbers keep falling. Before my iron infusion on 1/13/15 my results are: WBC 4.0 - 10.7 K/uL 6.3 RBC 3.6-5.10 10*6 3.65 HEMOGLOBIN 11.4 - 15.5...
I personally can't take iron pills or vitamins with iron in them. It makes me throw up and I am very sensitive to various things. Right now I am battling anemia and waiting for my iron infusion to be...
I have bee in the "indeterminate" camp for about 3 years now. Diagnosed Crohns originally, then they came back and said it was Ulcerative Colitis and then about 3 years ago they now call...
I have started a flare in January and it is quickly becoming bad. Every time I eat I have to go to the bathroom within a half hour. I started having these weird heart palpitations and chest...
I had a bone density test....-2.5 is osteoporosis and mine was a -2.3. Osteopenia at 29 isn't exactly considered good :) I think if you have been on pred then you should definately get the test done....
Thanks for the advice on FLorastor....I all of a sudden felt worse after my first dose the other day and since then I have had lots and lots of trips to the bathroom with just mucous/blood. I have...
I have tried Humira and it is not thick. I had no issues with it at all....
It was 2 injections...1st one I did fine and the 2nd one I passed out right at the end of giving myself the shot. Cimzia is really really thick...so it takes a while to inject. I haven't seen too...
I went to see a nurse today to discuss cimzia and why I passed out after my injections. Shes thinks I just got nervous and fainted....soo they want me to have it done in clinic for the next few shots...
Im feeling a little better as far as the heart racing....as far as my other symptoms...maybe a little. Im not on asacol that was under what I am not taking anymore because it didn't work. My...
They finally called me back....They want me to come in next week with there head nurse/ Infusion room person and discuss what happened, the medication, and make sure I am in fact injecting it...
no call!...
I have just weaned down to 8 mg of Methylprednisone. I started at 32 mg and then am weaning down. Hasn't seemed to help to much to be honest this time. It is for UC because I started flaring really...
No call today.... I am feeling alright now. Heart still racing off and on. Feeling just "off" if that makes any sense. I medicated myself with benadryl and I am on methylprednisone so I am wondering...
I definately feel like im in a bad situation...They are supposed to call me back today they said so we shall see. My plan is...if I don't get a call back from them discussing what to do about taking...
Christine...I am very similar to you. I also had UP for the last 5 years but now has moved up into the sigmoid colon also with ileum involvement also. Imuran gave me serum sickness...
I have been on MTX for a while so thats not a factor...in fact I gave myself the shot tonight with no issues at all from it. My GI doesn't have any openings until my next appointment which is...
Bananagirl - humira shots are painful...already was on those for 1 1/2 years. Cimzia injections are not painful but it takes a little while to push the fluid in because the medicine is thick. How...
Started Cimzia and passed out after 2nd doses. Ever since then I have had rapid heart rate and intermittent chest pain with low grade fever. Not sure if its a reaction or not. My GI facility is very...
So I gave myself my first Cimzia shots on Saturday night and half way through my second shot I passed out cold. Luckily I was sitting on the bed when it happened...but when I woke up I was shaking...
well....any pred use is too long haha. Prednisone and me have a love/hate relationship. Only thing that worked for me and took care of all my symptoms. I had been on pred off and on for 2 years...8...
Hi I am 28 years old and just had a DEXA bone scan because of excess Prednisone usage. I am kind of bummed with the results...thought they would be fine! Couldn't get a score on my spine because my...
I have indeterminate colitis (severe proctitis and also involvement in my ileum and cecum) I have been on biologics for a while now....did remicade for a while and it didn't work and now I have been...
Wow thats great that your doing so much better. Hope your good health continues for a long time :)...
Equestrianne...I too live in western WA. I take vitamin D but i don't use coconut oil...
No I didn't have them test for calcium or oxalate. I will have my dr do that on Monday. Thanks for the advice!...
I have that often!! I have even had colonscopies that have severe ulcerations but the blood taken at the same time all comes back normal. I agree with you that you now how you feel. Im dealing with...
It just shows the inflammation in your body. Personally....I only have had a high sed rate a few times even when my Colon was severely ulcerated it can be normal. I think it just depends on the...
My pain started in the upper R quadrant thats been going on for around a month...I always have some abdominal pain throughout my gut so realy don't think to much of it The past 3 days I have had...
I drive 1 hour each way to see my GI....I did try a couple GI's in my town but really I just didn't feel comfortable discussing all my issues. I will stick with the same one as long as I can....
DeltaForce.... I have had 3 colonoscopies and 2 sigmoidoscopies in the last 4 years. Bleeding is one symptom that I can not get rid of unless I'm on prednisone and I was steroid dependent for 9...
2 times they were floating they rest of the times they weren't. Dr thought that the bile duct was closed off by a gallstone which could make white poop because of lack of bile but that wasn't the...
So on Monday I started pooping white stools and upper R epigastric pain. So I contacted my regular dr. They had me come in and thought it was an issue with my gallbladder. I had complete bloodwork...
Well I guess im representing the NW.... Seattle, Washington...
no calcium lately....i have been taking folic acid....
Nope I haven't had any scans at all in about 1 1/2 years....
Hey I haven't been here in a while but have a question for everyone. Everytime I have gone to the poop today (5 times) I have had white poop mixed with blood. Im used to the blood part because there...
I too have proctitis. I do have tenesmus but not as bad as I was a while ago. I always bleed with all BM no matter what meds I am on. I have had 4 colonoscopies and 2 Flex sigs in the past 4 years...
I was diagnosed with indeterminate colitis 4 years ago due to the fact I have always had inflammation in my terminal ileum and also my rectum. I have been doing ok since I have upped my dose of...
I was put on mtx injections. 12.5 mg every week. Started in September. 2 weeks ago I developed severe mouth/throat sores and my GI took me off of mtx for 2 weeks and bumped up my folic acid from 1 mg...
I am 2nd born and the only one to have it in my family...
I started methotrexate about 1 month ago. Haven't noticed any good on it yet but I have read that it can take a few months. Mainly it gives me massive fatigue and headaches right now...but I have a...
Hi minnietoty!! Thanks for thinking about me! Anyways...I am due for another shot tonight. My headache just lessened within the last few days so im kinda bummed I have to take another one tonight. My...
When I was on remicade I had the fatigue the same day and day after and was fine so thats not just you! Humira might make me fatigued but i have been dealing with low iron/ iron stores for the last 7...
I just had my 3rd shot last night and it gave me a sore, dry mouth and like sores in the corners of my mouth. Have you had any problems with severe fatigue, and horrible headaches with mtx?? Thats my...
I haven't had much of an issue with humira at all except for injection site reactions. I just started MTX and that kicks my butt...extreme fatigue, headaches, etc. Its hard to feel like that!! I have...