Thanks girls. Roni, you saved my life!! I checked high and low and come across some cream anti inflammatory, hydrocortisone. Antifungal, gram positive prescribed for humira induced angular chelitis,...
Chelle -e i think means the change of definition that occurs so many months after you first qualify, depending on the plan. First stage is "unable to perform any and all functions of your job" 2nd is...
Help! I'm having unmanageable pain from three pyoderma gangrenosum ulcers in my vaginal area. They hurt soooo bad! Im used to pain but this is like a religious experience. Seems theres little...
Cottonelle or royale. Charmin always seems to clog my toilet!...
I am on an antidepressanr, prescribed to me fr anxiety and panic attacks. I wouldnt use the term depressed, but am not the chipper type, never have been. Always sort of meloncholy, my whole life....
All its saying is that now some gastros in advanced hospitals can look for biomarkers to tailor treatment. Two types of crohn's- set of biomarkers 1 would be people with aggressive disease, need...
I take zopiclone too, when needed. I dont like the thought of sleeping pills but sometimes u just need to sleep!...
I agree, i would try ldn before cimzia. If youve failed on remi and humira, the chances arent great for cimzia. Theres another one too, in trials, but i ont ualify as i have an odtomy.. Natalizumab?...
Thank you guys. Clonehead, i never thought of it like that before.and its true, just buckling my 3 yo into his carseat and im exhausted by the time i sit down.. I agree with everyone about bloods,...
I have no idea except to watch the salt ( obv). I agree if its extreme you need to rattle doc's chain.. And im not one to say that too often....
How many hours is that? The most important thing is to know thy body. Make sure you don eat anything that triggers you to go (obv)... Dont be afriad of imodium or lomotil and buscopan. Also, when do...
I am sorry to hear that :( morphine is actually the only one im allergic to, i can even take synthetic morphine with noprobs (dilaudid) Keep on the imodium..experiment wih the 6mp, and try buscopan...
If youre taking narcotics for pain, you could ask to temp be switched to codeine ( but more of it for equ therapeutic dose) as its far more constipating than the others. Also, getting lomotil will...
You can take an ativan or have one prescribed and given at the clinc, if youre prone to anxiety. I take ativan, one tylenol, and a perc with tyenol befre leaving home. Then they give benedryl and...
Extreme exhaustion isn't even doing it justice. I'd practically rather cut off a limb than get off my chair. And when i do finally get up, all i can think is omg, omg, omg i NEED to sit down ASAP....
Those are practically my dates! I don't camp, but i suggest moderate calorie clear fluids in case you get sick and want to have fluids ( no bms).. If you struggle with urgency and accidents or...
You seem to have a malabsorption issue. I dont think its crohns, personally. Maybe a food intolerance? Sorry i cant be much help. I hope you find out soon what it is. If youre passing some mucous,...
thanks, guys! Dave- DL does have something called a GAC (guest access card) anyone can get one without medical documentation. I was thinking of getting one for oldest ds actually as he's got asperger...
Sniper- thats interesting, age of applicant? The older you are, the more likely you get approved? Ive always felt they are less willing to write you off when so young as it means theyll be likely...
Im the oldest, and no other family members have crohns....
Hey guys.. I am off to california in two weeks ..taking the kids to Disneyland and checking out LA area. My crohns is stable but aggravating. My main issues are: Urgency- buscpan and lomotil help a...
Olderthandirt- hair loss when weaning from pred is classic. I lost a LOT of hair during that time. Get it cut as short as you can handle.. My gastro explained that on higher doses, the hair thins,...
If you get a lawyer, they only take a percent of your back pay, and nothing if you lose. Did you see the soc security-d form before it was sent in? You have to have a condition considered severe, and...
Lordwood- perhaps i misconstrued your post. I got the vibe that being on narcotics for CD was not a good idea and it 'd be advisable to "suck it up". My post was to illustrate that some people do...
I grt mine thru my credit card company. Since its group out of ountry medical, they ont ask health questions....
Well, i do take percocet for my crohn's. Darn tootin'! If not i would be depressed as heck and have no quality of life. My gastro says im the most severe case he's ever seen..and my butt is a mess. I...
Ive been on everything, and only ever had hair loss when weaning off prednisone. And with being on pred, hair loss is the least of your worries! Acne, rages, buffalo hump, etc! I wouldnt worry about...
Whats up with taking 4 litres of prep? Holy crap. I take pico salax and you only mix it with 6oz or so, i thought that was bad enough! Though you need 2 pouches, so 2 glasses of foul stuff. Still...
I think that from the doctors perspective, if youre clean, thats the goal. I would stick with what you know works. I find they always tell me to take the prep too close to the procedure time and i'm...
Do you mean macrobiotic? As in, raw food?...
Pred screws with your blood sugar. The best way to control it is wth a low carb diet, as low as you can stand. Have a high protein snack beore bed and you shouldnt feel so wonky when you wake up....
Nope, no side effects from imuran. I take 300 mg daily....
I am Canadian. I applied for CPP - D , when forced, several years ago by my long term disability insurance co and was denied. This time, when i approached long term disability chang of...
Rej- thanks! Im not on the protocol anymore..the pharmacist i think did me a favor by ordering the clofazimine from overseas..because of getting the govt approval as a special access drug, i was not...
Jdiane- lol I'm off to the west coast soon, and was writing a list of all the meds i need to bring ( i usually put them in a large ziploc). I counted them, and there was 18!! Lol crazy but better...
Nanners- even Dr Borody himself says that MAP is not responsible for all cases of crohn's, which also explains why a particular treatment can work for some and not others. I has tremendous hope and...
That's interesting...I do know I flare every summer..hardly seems like that many times could be coincidence......
It's not Crohn's i would try some digestive enzymes, take a couple before each meal where u typically have trouble..and that should help. If it's only gas, try chewable simethicone. (ovol). It has to...
I have a colostomy.. I don't know if you're aware but there's an ostomy sub forum on healing well. Some things I wish I had been told: unless they remove your entire rectum which is unlikely, you may...
Suds mom, my psoriasis is only on my scalp and inside and around my ears. Is yours on your face? If you have dry facial skin, you should moisturize with a water suspended gel based moisturizer. If...
Hi Erynn, I was on humira for a year to try go heal some fistulas. It never worked. The humira caused me to have rashes and extremely dry skin. I mean, Extremely. And psoriasis. At the very first...
Thanks so much, guys! I now believe that it was bacterial conjunctivitis, which I tend to get several times a year. I think I infect my eyes while asleep as nighttime is so hard.. With all the...
If you cannot perform the duties of your job, you'll qualify as that's the very definition. Currently I'm out on long, Lon term disability..not phase one longterm but the other one. Are you having...
I am seeing everything go downhill at once so I think I'm flaring. At the same time, I'm developing what seems to be double eye pink eye. I've never had eye problems with Crohn's before so I don't...
well she would get bowel rest from liquid nutrition..but anything opaque like Boost is still gonna have her pooping. SHe could go with powerade and juices with vitamins for a bit. There is no need...
I can have coffee except when I'm flaring- then it makes me crampy and I instantly have to go to the bathroom- same as ice cream. Suppose it could be the cream but it's irrelevant since I don't do...
hmm. Breakfast- coffee with 1/2 a RTD atkins shake mixed with it small bowl cottage cheese Lunch- 2 sticks turkey pepperoni and a piece of cheese Supper- BBQ steak, broccoli, cauli, a few kernels of...
Do you need something for acute attacks or just a generalized anxiety?? I'm on cipralex 20mg.. Called lexapro in the states. Then I take 1-2 sublingual ativan for panic attacks. I would go with what...
Oh yesI have been on cephalex many times.. It's the number one thing they give me for a non crohns infection. It's only ever given me slight nausea. If I had to guess I would say she just had a bad...
I have another scope coming up. The sheet from the gastro wants me to take a dose of pico at 8pm the night before, and 7am the day of my scope, along with a snack pack of dulcolax sprinkled in.......