Hi needtofix- I wouldn't stop any of my current regimen if I were you but I have been using Terramin clay since this thread started way back when and do notice benefits to my IBD from using it. I...
fecal-cal level of 6860 holy cow!!!!!! The 50% remission rate at eight weeks is a little disappointing, but then again, only eight weeks in... I signed up for this trial five years ago and was going...
Hey lopomme-I've never had a problem that I could connect to dairy to I'm thinking of trying cow's milk yogurt on my next batch. (I used a quart out of goat's milk over the weekend). I was already...
Wow the results through five days are incredible. Hopefully you continue to see evidence the improvment correlates to the SCD. Please keep us posted! I JUST got my Luvele SCD/GAPS yogurt maker...
Here's one of the newer (2015) studies I've come across. I started SCD half-hardheartedly in 2009 and am looking back into now. I hate using anecdotes vs. cold hard data, but you can get some very...
Hi Mark: Quick question to pick you brain. I distinctly remember when taking the Orega-Supreme gelcaps (26 mg thyme, 40 mg oregano per capsule) that the next day I would have a loose/D stool at least...
Thanks hateUC! I was beginning to think you weren’t posting any more but I hadn’t forgotten about you :) I hope you have been doing well these last few years....
This is a slight tangent but definitely related. A few years ago on another forum I came across a thread on grounding and earthing. I went down the rabbit hole and started looking at some high...
I have ALWAYS noticed cucumber seeds seeme to come out much more often and much more unformed than any other similar size seed I eat. I never have issues with buttnernut/spaghetti squash seeds,...
@ songlady & Quincy. Thanks! I didn’t see you in any recent threads songlady so I thought you may have moved on too. Sorry to read about what you’ve gone through the past several years in your...
Please let us know what your new GI says! And do what I do...ask ten million questions lol.:) You got me so curious I went back to when I started at 40 mg in 2012 and added up my total intake and...
Thanks iPoop. Old Mike: It's pretty simple. I wash really well on my chest with anti-bacterial soap. I used to towel dry with 'lint free' cloths but would inevitably see some evidence of lint in the...
Thanks NSSG, beave. Yes, I have an appt. to talk to my GI on 3.5.19. I assume a scope will be scheduled. I was hoping the same thing about an infectious/viral agent and got more depressed each ER...
I admit I was not familiar with CT scans before Tuesday, so straight from the discharge papers: “CT abdomen pelvis with IV contrast only.” The tech’s only finding was that my appendix was slightly...
Beave-2014.09 last scope. I had a CT scan at the ER Tuesday and was told all looked normal... Thanks Mark. Yea I’m really getting worked up with worry and have to stop, it’s not helping. So what are...
I agree Jonny, this, along with MAP vaccine research (IMO) is where we could get some real results in the next several years. I too am anxiously awaiting the slow drip of information on this. I...
I do have Crohn’s but my flares have always been more UC-like. All my doctors initially said UC for years, and then the much lambasted Premtheus blood test showed “UC like Crohn’s” All my docs said...
I've actually been looking into the same thing as I just started my second dose of pred. There are a lot of anecdotal forum comments but I could never find any hard data, one way or the other. I...
Hey Guys! So it's been years since I've posted here, but I do lurk every now and again. It is pretty nostalgic to see a few of the other old-timers who are still around. I see Old Mike and Canada...
OK, here goes. I had a UTI in...ummm... 2005. I started having symptoms maybe two years later, late 2006/2007. When having the Prometheus Serology 7 IBD panel, my anti-Cbir-1 antibodies were...
Yes! The first night I put a couple of sodium butryate capsules in my Rowasa and the next morning was rough, pure liquid at least to start with. After a few days when I could conclusively link the...
Yes they do and I love them. I picked gallons of them in July and August :) I like them frozen better than fresh so I typically freeze them the same day I pick them. Here are some excerpts from an...
Absolutely. I think part of it is mental-as in you simply aren't thinking things like "i should be going in the next blah minutes or blah hours" because your mind is occupied with other things. Also...
Frozen blueberries, hands down. I pick a ton of fresh ones every year to last me into winter time. I typically freeze them immediately and eat them frozen....
I definitely understand where you are coming from. I'm of the opinion though that there are almost too many variables to accurately predict what hurts and what helps. Not impossible, but darn...
Good luck! Praying for a safe operation and speedy recovery!...
I do tend to flare a lot and would say I'm in complete remission less than 50% of the time. The good news is that my flares are very mild. As I mentioned blood is my predominant symptom when flaring....
Donkers, yes rectal inflammation is the hardest for me to control. In my first flare the GI told me it looked like raw hamburger meat and the rest looked great. (the ascending colon inflammation only...
I have a very similar story to you. I started bleeding in 06 or 07 and the doctor told me I had a fissure. I kept bleeding and finally went back to the doctor and he said the same thing. I finally...
The cure for UC, the holy grail has been found: civic minded bacteria. :tongue:...
I would love to try this as well. I've just been taking homemade cannabis infused coconut oil. I think it helps my guts. I started another supplement around the same time so I can't say for sure. I...
^I agree, based on my experience. I divide my mucus between clear, clear-ish, and white. I don't worry unless I see white mucus....
I have one I came up with last week hahaha. I'm laughing just thinking about it. It's weird...every...um maybe six months or so I'll go in the morning and that will be it for the day. 99% of the time...
I also count blood/mucus only as a poop. Having just blood/mucus means things are worse than if you didn't have just blood/mucus trips (obviously) so counting it as a bathroom trip is a way to see a...
Then that would just be nasty :) OK...revision 1.01: If a normal person without severe water restrictions in the area was at the point they would flush, it's a poop....
That's definitely two poops. If you flush the toilet, it's a complete poop. Period. I have wiped and stepped down from the toilet (I'm a squatter) and gotten right back up before flushing, and that's...
This is what I'm afraid of also. My VSL has already lost coverage. My other meds, since diagnosis in 2009 have gone from $30 to $70 and now to $100....
Wishing you the best of luck. I'm sorry you're having to go through so much with the parental fallout :(...
http://www.zerohedge.com/news/2015-06-10/profits-over-public-health-big-pharma-revealed-puppetmaster-behind-tpp-secrecy I saw this article about how the new trade bill being legislated would be a...
I'm banking on the anecdote a couple of people have heard from their GIs that UC tends to 'burn itself out' in old age. But seriously, I'm a constant worrier and in my attempts to de-stress I've been...
Hahaha. I didn't think my post sounded that spaced out. Maybe the cannabis IS making me paranoid. Woohoo it's working!!!...
Honey and a little coconut sugar here. I was already not much of a sugar eater (I haven't had a soda in well over a decade) before diagnosis so the paleo desserts I make satisfy my sweet tooth more...
Interesting. I believe it is gary who always posits a link between high intensity exercise and people complaining about IBD symptoms. I used to jog quite a bit but now do mostly body weight exercises...
No. I sometimes post while at work. I have two monitors and use one to quickly write something. I don't have much time so sometimes my posts have a stream of consciousness read to them and are...
Good grief 51 seconds and 130!! Except for some times when I'm flaring I doubt I'm ever over 5-15 seconds. These people need more fiber or something. I squat and have been for years (only at home or...
I wouldn't say suddenly, but it did quit over a very short time period for me. It's a shame to because it's effect the first time I took it were incredible. I've wondered if it would be any better if...
What I am saying is I have no 'traditional' symptoms: buzzed, tired, lazy, paranoid, high, crunk, stoned, etc. etc. etc. I wondered at first if I was doing it right but I can't see messing it up on...
So I've been taking cannabis infused coconut oil the since May 4th. I have seen a drastic reduction in blood (I wasn't bleeding badly but now it's practically none) I can't say if it is the cannabis...
Wow, great sales pitch pb4 :). I immediately looked it up on Amazon. The first review was from a lady with UC and was also praiseworthy. Mine is on the way. I can't see how stress can't impact our...
My first flare I took budesonide ORALLY and it helped my rectal/sigmoid inflammation tremendously, so I'm sure the supps would have been even better. Subsequent stints on them weren't as effective...