So sorry to hear that! Sending you healing hugs :)...
Hope you get better soon, Randy. I had a similar bout almost 3 weeks ago. My fever was 39 C and kept fluctuating between 38.5 and 38 for 8 days. I was put then on Invanz (ertapenem) IV antibiotics...
Had an MRI that showed I have a subcutaneous fistula. For more than a month, I still have perianal pain and itching and took 4 antibiotic courses and failed them all. When I saw my GI, he mentioned...
Clo, thank you so much. That was very insightful. I understand now why people opt for colostomies. Definitely, the idea is terrifying but having this constant pain without seeing any light at the end...
Since 2013, I have started my perianal abscesses. I developed my first perianal fistula in 2016 and for which I was put on Remicade every 4 weeks. After 3 years, the MRI showed that it has healed....
Thank you Clo for your tips on how to treat fecal impaction. I failed the antibiotic round for the 3rd time and my GI put me on the 4th round of antibiotics. He ordered an MRI to rule out a perianal...
Thank you so much, Clo! It turned out I have fecal impaction and the CR surgeon prescribed a compounded laxative and fleet enemas. I could finally have a bm. As for the abscess, after the radiologist...
Hi Randy HS is an abbreviation of Hidradenitis Suppurativa. Itās a dermatological autoimmune disease that appears like infected boils in the armpit, vulva, perianal, perineal and other places. There...
Thank you, Tom. Well, I havenāt discussed with my GI his future plans yet. The tenesmus turned out to be fecal impaction and I had to see a CR surgeon. He prescribed a compounded laxative and fleet...
Thank you so much, Clo. I took antiemetic tablets before taking the antibiotics yet I couldn't tolerate the nausea and had to stop them. When I saw my GI, he changed them to rifaximin and...
My immune system has been very active lately. I keep having perianal abscesses and have had 3 since the beginning of this year. Given that I have long-standing Crohn's and started to have numerous...
Thank you so much Clo for sharing your experience. Yes, abscesses are so painful. I'm now on 3 antibiotics and I'm struggling and trying my best not to throw them up. I don't think I'll be able to...
Thank you Susie. Saw my GI and we discussed all options out there. He mentioned that Skyrizi is similar to Stelara so it wonāt be successful for me as I failed Stelara. He added a new antibiotic...
I have now a confirmed diagnosis of HS along with Crohn's. It's really challenging. I keep having this recurring perianal abscess, which would in turn, activate the previously healed perianal...
Have been on it low dose for years. It has helped with Remicade....
This is my 8th month on Rinvoq. Since November 2023, my total cholesterol level was 211. It has always been within the normal range before starting Rinvoq. I tried to control it through diet but in...
Thank you so much, Clo. Itās you who has been a fighter. I really appreciate your insightful posts; they have explained a lot to me. Wish either my GI or my CRS are that understanding as yours. Mine...
Thank you so much, Clo. Scheduled for the MRI fistula tomorrow. Itās day 6 after I had started the antibiotic and the abscess is still there. Actually, they look like 2; one hard felt lump that...
@Clo. Thank you very much for sharing your experience. My GI insisted that I have to see a colorectal surgeon to examine it but I refused as Iām afraid that any cuts in the abscess may cause fecal...
HS is hidradenitis suppurativa. I appreciate your pieces of advice but I am asking these questions as I was looking for someone with a similar experience. Iāve always learned from other peopleās...
You are right. I donāt think Iām going to do this at the time being and have to postpone any drastic changes in my diet until my new abscess gets healed....
When I was on Remicade, I had multiple Covid infections. I had then to postpone my infusions for 14 days. Hope you get better soon!...
Have an abscess near the opening of the vagina. Itās very painful and there is a burning sensation. Thought it was caused by HS but itās under the skin and I have never had HS in that area before...
As you might know. I have been on Rinvoq for 6 months now. Though the colonoscopy, pathology report in addition to bloodwork show mild inflammation (notable lymphoid hyperplasia with no active...
Why does the total cholesterol level keep rising though Iām on the 30 mg dose? It was lower on the 45 mg dose. It was 211, now itās 242 and a lot of fellows here and in another support group told me...
@Geezernow: Lucky you! Fingers crossed...
Thank you all. Turned out itās not a form of blockage or obstruction but it was caused by the laxative I had taken. Iām still thinking of bringing the issue of not having a CT enterocolonography for...
My previous post was about a severe abdominal pain that I had in my lower right side. Finally I could see my GI. He told me that I have a reaction to the laxative I had taken (prucalopride). Btw, I...
Iāve had a colonoscopy more than 10 days ago and my GI mentioned that my colon looked āso goodā. I kept being constipated for 7 days afterwards. Took a strong laxative the night of the 6th day. The...
@Bacon Girl. Yes, I still have my appendix. I donāt have SIBO now as I donāt have diarrhea. I used to have it a lot before but would think about it. @Straydog. My GI had mentioned it before he put me...
Iām a Crohnie and I post here as not a lot of Crohnās patients are taking Rinvoq. I started Rinvoq 45 mg since mid August and went down to 30 mg 2 months ago. Ever since I lowered the dose, I started...
Wow! So interesting! Had a colonoscopy last week and had to drink 2 liters of Moviprep over two days. On the second day, I threw up some of it and couldnāt continue drinking the rest of it. When I...
Wishing you good luck! Did you try Rinvoq? Iām on it for Crohnās and havenāt seen any improvements yet but other fellows in another group, who have UC, have immediate improvement. They report getting...
24 years! Wow! You really gave me positive energy as you could struggle with this darn disease. People always tell me that I have strong will as I do not eat a lot of the food that Iām sure would...
Vent as you wish. We all can relate and understand. I too failed in a year Remicade and Stelara and started Rinvoq 5 months ago. Though I do have this persistent pain in the terminal ileum that...
Thank you, Sharon. Iāve always followed a restricted diet for my Crohnās and definitely my GERD is included. Iām glad it turned out to be a coronavirus reinfection and not GERD. I will also bring it...
Thank you, Sharon. Well, I texted my GI and he said I shouldnāt stop Rinvoq. Plaxovid interacts with Rinvoq so I donāt think itās a good option for me. I think he prescribes antibiotics since my...
I had a coronavirus infection on 5/12. I took then azithromycin for 6 days and became better. I was having issues with throat soreness as I have long standing GERD. Two days ago , I. saw the ENT...
Thank you, Quincy!...
This year marks the 25th year of having GERD. Iām also a Crohnās patient. My Crohnās has been relapsing since November 2022. I keep having recurrent sore throat episodes. Two weeks ago, I had a...
I was just talking with my mum about this. Interesting! Iām seriously thinking of switching to olive oil and am nowadays cooking all my food in the air fryer with the least possible drizzles of oil...
Hi all I used to use the same terms ācoronavirus ā and ācovidā interchangeably (lol). What I learnt is that whenever I have fever, I should stop Rinvoq for a couple of days until I get better. The...
Quincy I donāt know whether you mean I had to stop Rinvoq because of coronavirus, yes, my GI said I had corona. I asked him whether I should stop Rinvoq every time I have fever, he said yes too as...
GI replied that I should stop Rinvoq for a couple of days until I feel better....
Thank you, Susie I texted my GI and waiting for his reply. I think Iāll take the dose regularly as usual until I hear from him. I wonāt make any changes....
This is the third time in a row that I get a cold/ corona infection while taking Rinvoq. Last time, my GI said I should continue it. Iām having fever (38.3 C) this time. Should I continue taking it...
Dear all Thank you so much. Waited for a week hoping that I would get used to the new 30 mg Rinvoq dose side effects but I couldnāt. Diarrhea increased and so was the urgency, and pain in the...
Iāve had Crohnās for 16 years. The first 9 years I wasnāt eligible for biologics as my disease was still evolving until I developed a perianal fistula and took Remicade. It could heal my fistula and...
Isaachadzovic, what are phytosterol supplements?...