Well I haven't posted here for long time, haven't Evan peeked until today, bored, off work. I've had cd for 42 yr's. I have been in remission many times. I'm in remission right now, with no gi, gave...
Those sound like mini blockages, especially if you vomit dark green bile. Be very careful, could lead to obstruction. That's how mine played, and I needed rescetion(2 of them,total 9 ft of ti with...
Hey Han. Imuran itself almost hospitalized me. It does take 6 months to take effect. 6months and about a week I started to get lung infections, they got so bad that after 3 months o.f anti'. I mean...
I'm crohn's sufferer. But I felt nobody had worse gas than me. Terribly embarrassing to be in public. Absolutely can't hold them back or i will cramp. I was telling my new gi this problem, she said,...
I passed a kidney stone 2weeks ago. Def. on that, didn't realize that when passing kidney stone, effects your stomach,bad. All I could do was take pain meds and vomit from nausea for 36 hr's I lost 8...
Hey Hannah, so very sorry for your brother's death. I hada good friend die from cd related. I too have tried all meds, I also have esophageal cd impossible to treat, other than pred. I use very...
Sorry you have had such a hard time. I was lucky with my resections, they put me into remission with no meds, this was a long time ago, so there weren't many meds to take. Cd has now moved entirely...
I didn't read article, but slippery elm works like magic for acid reflux. I'm fortunate that a lot of natural products work well for me on certain issues. Does slippery elm cure cd, not in my world....
Hey randy; haven't been on here forever, so c2 you can sweep your broom at me. Sorry to hear randy about more issues, not a party at all. I'm stuck on 5 mg of pred, but that is all I take, small dose...
you could have a partial paralized lower bowel. making it very hard to have bm's. I have had 9ft of ti removed, so it's the oppisite for me, I need oppiate's to slow things down, otc. med's make me...
I've had cd for 42 yr's every resection brought yr's of remission. now I have short bowel syndrome, cd is in remission with unorthodox med's. I'm on ssdi. my med's are illegal to talk about on HW....
hey mitch; had to chime in, I would go to hr first. listen I was horse jockey, rode 18yr's in the closet. until I had to have resection, then I only lasted one more year, last resection made me to...
I follow a mantra. Eat to Live, don't live to eat...
same to you NCOT. how have you been? any better than the last time I was here.?...
thanks roni, nice to hear from you, hope all is well with you in Canada. AG...
I went to a gi 10 years ago. his name was dr gass. that totally blew me away. it was very hard not to laugh. the only thing I could say to him was, your name is very appropriate, but I'm sure he has...
yes it is, I'm in remission, and have loose bm's. But I have 9ft of sm. bowel removed, thats why mine are loose. My first bm of morning might be semi formed the 2nd 3rd etc. are not....
Pretty good Ivy, thanks so much for asking, hope all is well with you....
I was fine until it started working, took 6 months to start, almost to the day. then I got immediate chest infection, that would not go away, plus it did nothing for me, except horrible side effects,...
I don't have stricture, unless they never see it, in the last 2 years, I've had 4 endo's. yes that is exactly how my throat feels, when it's inflammed, it's like a chore to swallow or drink a lot of...
I have cd in esph,throat, and mouth, acompanied by canker sores, plus my taste buds on my tongue get inflammed so bad they slough off. when food gets stuck in my throat, it's because of those...
I had that, it ended up being fistula that what my lump was, and they did go and remove that and the infected diseased ilieum and secum valve, remission fro 17 years after that with no meds, mind you...
darn Randy, so sad to hear this news, good luck my friend AG...
well Kill, you know it depends on severity, diet, med's etc, but not to sugar coat, I'm sure thats what you don't want to hear, I'm on ssdi because of comp. from po-op issues, (short bowel syndrome)...
so I'll be the one who has had bad exp. w/imuran. bad chest cough and congestion, been on 2 rounds of anti's with little to none effct. So bad I finally just quit taking it, I have cd in esph, throat...
hey time out , I have cd in esph. and throat, cankers. the only thing is food gets stuck in those oncillias rings in throat, I've been battling this since i had heat stroke in Aug. 2009, since then...
hey dragon; when I had my surgeries, all the pain would be at antasmosis site, my last resection was in 1989, I was in canada at the time, they told me it was scar tissue, fast forward 2006 next...
Oh jackal, I feel bad for you, I'm old man 61, but I had cd at your age, I can't do bio-logics either, so what I've done is start with imuran, 3x 50mg, that made me have terribke side's, so I cut...
This used to be a great site, gail, I just e-mail, wonderful human being. Ivy same, she is the rosemund pilcher of HW. Ivy, you know what I mean. It's not the change, it's a few of the people that...
please folks this is reality, real life, REAL drama. true reality. god bless you dragon, it's your kids, man it's your kids. true heartbreaking reality. I wish I was a millionaire, because I would...
Oh dragon that killed me. we are going thru same, month to month, we've used up our savings, our biz is slow, but I'm feel like s***. we are going to have to give up our med. ins. I get ssdi medicare...
I had to go down to one 50mg of imuran, the side effects for me was not good at 150mg, but now that I'm down, it's better, I get awful cough, rem did the same, so I'm sure humira would follow suit, I...
I just wanted to say STOP IT; lets get back to supporting each other, isn't that why we came here, to find some answers, or to find out if you/I are not alone with this mess of disease, so really...
you know guys, I've been here around 2 years or so, and I've never seen mod's get changed. I hope and I really don't like to think this, but I hope it's not a religious thing. But I don't believe...
hey guys; I found ent. kicked in within a week, but I couldn't handle side effects, I work with my hands(artist) and ent. made my skin really thin, and I would cut my hands really easy and they never...
hey dude; nice to meet you virtually. I def. know what you mean when you feel jealous for healthy people, I really notice it alot when I'm having issues. I will be in a restuarant and watch someone...
after that car crash, I flared in migrating arthritis, and it started migrating in my left shoulder, worked down my left elbow to left fingers and wrist(I'm right handed) so the day it was in my left...
only you, my friend. AG good stuff...
Jon; I so remember that, if it's the one I'm thinking, I was involved in it. truthfully, I thought it was powerful thread. It brought out the inner thought s of us about our disease, so when we can...
Well; I hope it wasn't anything that I might have said, because I'm not sure34 I will post anymore if that's how the owner of this site is. truly most of us should stand behind them, there are many...
mine is smarter than Iam, it's got me figured out AG...
yea, unfortunatly it probabaly is the rem. I t did that to me, but mine was deep chesty cough with a lot of grey flem, I lasted about 8 infusions, I stopped rem. and went onto asacol, and fell into...
hey randy; we have 2 bodyshops hear in san diego; Oh those are stripper places, not that I've been to either of them, I HEARD about them AG...
hey guy's; well I can say from experience, miro, because you can sit at your desk or work from home, doubtful they would approve, right away that is, now you guy's know you can't be working and...
oh for sure I do, I have to take the 5 day that is good for 10 days, forgot the name, but anti's give me uncontrolled D, I just can't get appt. until this monday AG...
you guys know this is old post, but if you don't remember, I eat papaya's with oatmeal every morning, it's natural digestive enzyme, but I agree with fun guy, do not hold that gas back, for me I go...
thanks stripey; I don't feel near so bad, hearing that from you. AG...
so finally imurran has kicked in, and the reason I knew was I started to cough and spit up this yukkey grey flemmy stuff, so my Q, is it the imurran that has me coughing, or is my immune system so...
I think that's what caused my most recent flare(still in it), of esophagas and throat, so bad in my mouth, my teeth hurt, but I reduced my pred from 10mg's to 5, and man alive, my mouth, chest and...
do I need script for cipro, I'll try anything at this point, except bio-logics. Imuran is the only one that hasn't caused oppisite effects, my gut feels like remission, but it's my esph. and mouth...