Hi All- I have really been struggling the past few weeks and i can't seem to get any answers from the doctors. I have been exhausted, dizzy and disoriented. The only test that has come back abnormal...
Hi All- I'm fairly new to this forum, typically I review and post comments in the Crohns forum. This topic and string of comments has caughtmy attention. I too am a CP suffer for obvious reasons. I...
Ugh I too suffer from a perianal fistula. I have had my fistula for almost 10 years now. I go thru spurts where i have minimal draining but sometimes, typical with one of my Crohns flares, it becomes...
Hi Juniper- I can definitely assimilate. I suffered greatly in college but didn't realize there was any prospect of relief because my gastro never mentioned pain management. I know its even harder to...
Hi All- I was wondering if anyone here has had the unfortunate luck to get this infection? I suffer from a moderate/severe case of Crohns and lately i have been knocked on my butt. I have been...
Thank you all for the great feedback. Going to see my pcp on Monday, going to let him make the call. Thanks again!!!...
Saw my 2nd pain mgmt doc today and they pushed this drug on me. Any folks on this medication, doesn't seem to make sense with my disease and the type of pain I have associated w my Crohns. Did some...
Update. So I am going to my 2nd pain mgmt appt on Thursday to a local hospital. Got a referral from my pcp. 1st pain mgmt place only wanted to give me nerve blockers. Didn't do it because they had...
I have had Crohns for 17 yrs now and 99% of the time after a meal i get very painful diarrhea. The confusing part is when i get scoped the amount of diseased areas in my ileum (one of two major...
Thank you Keah, I have had two bad pain mgmt appts thus far. Both wanted to stick me nerve blockers, of course they would have to do two at different intervals because my disease is equally bad in my...
Thanks Jim and Straydog, unfortunately my PCP and GI take the same approach. Solve with the least amount of pain meds to do the job. Obviously it is what i want them to do but when my pain gets...
I am in the midst of a massive Crohns flare currently and can't seem to find any relief. My GI tells me that I already have a script of maintenance percocets to curb the pain. Problem is that it's...
I am in the midst of a massive flare currently and can't seem to find any relief. My GI tells me that I already have a script of maintenance percocets to curb the pain. Problem is that it's only 2...
I have missed a lot of work because of my CD, i average about 2-3 days a month. When i'm out i work from home but I am certain my promotion was held back due to the time i am away from the office. A...
Thanks for the response, amazingly its exactly what my PM doctor said as well. She said she has not had any Crohns/Colitis patients but it has helped some of her patients with a lot of abdominal scar...
I put a post under the Crohns forum but got no feedback, so I figured i would try here. Has anyone here done nerve block injections for either Crohns or Colitis? I am went to a new PM clinic and they...
Two nerves, one they said was under your ribcage and the other was somewhere in my back....
Hi All- I was looking for advice in regards to nerve block injections. Today was my first vist to a PM clinic. I have been had a tough go of it for the past year (resection, multiple perianal/fistual...
Currently I am on Apriso, actually I was thinking of switching to Lialda because it does nothing for me. I have been on it for 3 months now. My co-pay for the med is $30 a month and since i'm not...
I have had CD for 15 yrs now and pain meds have always been a very important part of med regiment. They have given me a quality of life i could not have gotten without them. I don't have a set amount...
I was like most others and got the disease when i was 17. I was in my 3rd or 4th week in college and my symptoms came on hard and fast. Persistent gas pains and cramps, 10-20 bms a day and a lot of...
Thanks for the responses. I am taking Apriso instead of the Lialda which is also mesalamine, I guess there is a difference in the dosage and the release points in the intestines. I have taken imuran...
Even when I am healing because of the Humira I still get blood in my stools. But yes the pain starts to dissipate and hopefully subsides completely, or at least for a week or two before I need my...
I am on the last of the 3 major biological meds (Humira) as remicade stopped working for me about a year and a half ago, Cimzia didn't help at all. My belly pain, cramping and diahrea is tolerable...
Just taking a concensus of those that have taken all three drugs and what seems to work the best. I was on Remicade for about 6-7 years and that kept the majority of my Crohns symptoms at bay for...
In response to Straydog and antbuggey too, everytime he does make these offhand and snide comments i fire right back at him with the 'if you don't trust me' spiel. He always interrupts me and tells...
Thank you everyone for your informative responses, they are very helpful and hopefully if I decide to go the route of a pain dr it will help me choose the right one to fit my needs. In response to...
I have had Crohns disease since i was 17 (35 yrs old now) and I have used percocet as a pain reliever for the past 5 years. Over the years my reliance on opiates to curb my pain has grown. Instead of...
I would suggest to continue with the sitz baths, they were essential in the healing of my two prior surgeries. The healing time of both surgeries varied greatly, the 1st time it took 6 weeks to heal...
I was on Remicade for 7 yrs and just made the switch to Cimzia because the Remicade wasn't working anymore. What r some side effects that the group has experienced?? After only one week after my...
I don't have an actual name for my porcelain bowl but I do use the abbrevation 'H.B.A' quite often. H.B.A translates to Home Bowl Advantage... there's nothing like it!!!...
I had pretty much the same experience as amy, I had about 10" removed and started experiencing symptoms after 2 or 3 months similar to what I had before surgery. Unfortunately my Crohns came back...
Dr. Shah is very good, I actually see another GI in his practice Dr. David Schreiber. I have heard many good things about Dr. Shah. Good luck!!...
I would be completely lost without my percocet script, it dulls the aching associated with joint pain but most importantly it slows down my digestive tract and takes away the persistent and knawing...
I get my remicade every 10 weeks but I am afraid to get it more regularly due to the fear of not knowing what this drug is doing to my liver and/or body. I was hoping to avoid going every 8 weeks or...
Hi All, just wanted to see if anyone could give me advice on what to do about having a moderately diseased rectal region due to Crohns. The only thing that works on healing that area up is Remicade,...
I was on a higher dose of Ibuprofen when I was in college and it gave me a bleeding ulcer. My reg doctor prescribed it for me. I was hospitalized for two days....
Hey Dancr- My GI informed me that there have been rare cases where patients taking Azathioprine and Remicade have developed some form of lymphoma. I was on both for a short period of time before he...
My flares always hit me the hardest in the summer months. I tend to have flare-ups in December-January but that can be attributed to the holidays and the change in my diet. Something about the heat...
I try to avoid pain meds but sometimes I have to take 1 percoset (325 mg) when the pain becomes too much to bear. Tylenol or Advil has no effect when I'm in the midst of a flare up. The positives for...
I've been on remicaid for as long as I can remember, has anyone heard of any long term side effects that would sway my decisions to up my dosage or to change the frequency of my treatments? Truely...
Hey folks just had a question on what others are taking for pain associated with CD when flare ups occur? I usually have percosets on hand to deal with the seamingly unbearable pain when I'm at the...
I can totally assimilate, I still get the look from my gastroenterologist when I ask for pain meds. I wouldn't know what to do without percosets. I need a new bottle every 3-4 months to help me...
I have been on Remicade for about 5 years now and I have had no side effects or adverse reactions during infusion. I do admit that the drug is not as successful as it once was, my body has developed...