Maybe you just need to have it more frequently. I never made it to the 8th week without symptoms. We did a level before an infusion and I had no remicade in my body by that time! So I'm now doing it...
I'm 30.5 week pregnant and on Remicade every 6 weeks. I didn't get my first child while on it, but she was breastfed while I was on it. I just had my last infusion and will get it again once I've...
You have it on week #8 so if you had it april 1st, you'd have it again on may 27....
They say you can't have remicade if you're on antibiotics, and you have to wait 10 days after the antibiotics are done to get the infusion. I call it BS and I've had my infusion while on antibiotics...
I saw a huge improvement the day after my first infusion! The effects tapered off as the weeks went by and by my next infusion, I was having symptoms again. The day after my treatment, I was back to...
I'm on Remi and they never asked me about my vaccination status. I'd say better be safe than sorry and get the vaccines. You can't have the live ones while on immunosuppressants tho (steroids,...
Hey welcome to the forum! Sorry to hear about the Dx though :-/ I'm also pregnant, 17 weeks, with my second. I am a physician as well. Thankfully I'm doing very well during pregnancy crohn's wise,...
It means that you've been infected by EBV a while ago, as shown by positive IgG and negative IgM....
Have you been tested for both? EBV doesn't respond to acyclovir and CMV needs large doses... Usually starting IV. I had EBV several years ago. I was on 6mp at the time. I was really sick and was in...
I agree with what everybody else said! Those drugs are totally safe while pregnant (I can't comment on lexapro though) and you should NOT come off of them, especially if you're not in remission. I'm...
I had lip swelling as well in my early crohn's days (I was diagnosed at 10, now 29). Haven't had this is ages though. I'm not complaining!! It was definitely a sign of active disease for me though....
Thanks Duffle. I am going down by 5mg every 7 days. I can't come off of it soon enough. I feel miserable on this stuff. But like you, I usually have to go super slow in the weaning process. ugh ugh...
She should stay on 6mp. It's safe while pregnant as well as breastfeeding. I got off of it before I conceived, because I'm stubborn and I wanted to see how I would do without meds for a while. Well,...
I've been on pred for 6 weeks, starting at 40mg for 3 weeks, 35 for 2 weeks and now on 30mg for last 4 days. For the last 2, I've been up at night with horrible joint pain in my feet, back and...
I breastfed right when I came home and I got a huge dose of fentanyl and versed. If you are able to sit and hold your baby, then you're good to breastfeed! I did the same after a general anesthesia....
I can only answer your question on breastfeeding. There is no such thing as pump and dump anymore (except in exceptional cases), because very little is transferred to the breastmilk. I had a...
kazbern, you are totally right that I need to gather as much info as I can in order to make my decision. While being sick with viral infections suck, it is much better than being in an active crohn's...
Thanks Kazbern for the link. That's reassuring! I hate that some GIs say no to 6mp while pregnant and/or bf'ing and others will say it's all fine... Then the decision is all up to me. Sigh. I have to...
Hi everyone, I would like to know how many of you breastfed while being on 6MP? I went off of it before I got pregnant and I'm now flaring up again. Currently I'm on 40mg of pred and I need to start...
Hi! I haven't been on the forum in a while but decided to check in today and saw your post. I am 28 and I've had Crohn's since the age of 10. 6 months ago, I delivered a beautiful, healthy baby! I...
I have a 4.5 month old, who is completely healthy. I was in solid remission before getting pregnant and decided to go off the 6mp a few months before trying to conceive. Pregnancy went very well, and...
I've had CD since age 10. My husband since age 14. We are the only ones in both our families, but I am pregnant with our first. There are good chances that our kid will have Crohn's. But since we've...
I am 18.5w pregnant with my first. I was on 6MP but decided to stop, even though I know plenty of women gave birth to healthy babies while on it. I was in remission before the pregnancy and had been...
What about Cimzia? It's not quite used that much yet, so I dunno it that would be available for her. I think switching to Humira would be safe, but I guess if her doc is not willing to try, then you...
Hi everyone, I stopped my 6MP in January for multiple reasons, after having been on it for 12+ years and maintaining remission for a major part for it. In fact, since I've been off of it, I've been...
Thanks for your replies! The spondylitis association site is very useful, so much info there! I was glad to read that the inflammations markers aren't all that often elevated with this condition. My...
Hi everyone, I just came back from the rheumy and it seems like I have the symptoms that fit for CD related axial spondyloarthropathy (ie sacroiliitis). I had an xray right at the beginning of my...
I get reccurent cold sores from the 6mp. I was "infected" a couple of years ago and since then, they keep coming at least every month, if not every 2 weeks. Very annoying. So I was prescribed Valtrex...
I just started taking Culturelle a couple of weeks ago. 2 capsules at first because I was having D, now I take only 1 because of less (to no) diarrhea....
The arthritis affecting the spine will flare on "its own", unrelated to the disease activity, unlike arthritis in the peripheral joints, that will follow the disease activity. I'm in remission and I...
I've been flying from Canada to Europe every other month for a year without any problem :)...
Hi all! I'm wondering how much you pay for azathioprine (not Imuran, I really mean the generic)? I am on Purinethol and it costs like 300$/month (I'm on 100mg/day). Just curious... Thanks!...
Prednisone will increase your neutrophil count and lower your lymphocytes. High hemoblogin- how high?- isn't a major concern, maybe you were a bit "dry" when you had your labs done?...
It's BO (back order) because it's brand name and we don't have generic here in Canada. I'm on 6mp and it's BO AGAIN. It was last year for a few months, and there it goes again......
@carmen: I've been on 6mp for 10+ yrs. I doubt this is the cause of my back pain ... WantRelief: what do you take for the sacroiliitis? anything that helps at all with the pain?...
I've taken Famvir several times and right now I'm on a prophylactic dose of Valtrex for reccurent cold sores. I haven't seen any changes in my condition......
Hi all! I need your help! I've been having this lower back pain every single day for the last 4 weeks. It hurts at night, in the morning, but also during the day. It's worse when I lie down (getting...
Up to a week shouldn't cause you problems. I've stopped it a few times for a week or 2 and nothing changed. It stays a while in your body so you should be fine....
I took Pentasa in the beginning, it didn't work... that's why I had to switch to 6mp. As for the metabolites, yes I had them measured, and it came back ok....
So I've had Crohn's for 15 years. The first few years were quite a rollercoaster but now I've been stable for a long time, last scope showed mucosal healing. I've been on 6mp for over 10 years, it's...
I've on 6mp and the BC pill (Yaz) for years with no problem. Both IBD and the Pill inscrease the risk of blood clots, but I say it's not worth the risk of getting pregnant if you don't want to. As...
In my case, it's diffuse or RLQ pain (mostly)....
I got denied as well, although they stated that it was because of my abnormal LFT, for which they want me to have a liver biopsy. Hell no! I know ppl with Crohn's who have been accepted, to a greater...
I have the same problem. Although I will wear jeans every once in a while, they are uncomfortable to me. I have found a couple of pairs of pants that are skinny/straight enough on the legs but loose...
To my fellow Canadian Crohnies, the brand name Purinethol is back! I picked it up at my pharmacy yesterday. I'm glad it's back, because I don't know if it's just a concidence, but since I've been...
I went through he same thing a few years ago. They finally Dx'ed me with IBS on top of Crohn's (oh great). Now, after a few yrs of remission and only minor symptoms such as morning D, I have pain, D...
I've been getting more and more GI symptoms lately, but my labs look perfect. I've been in remission for while now, but when I was young, my bloodtest results weren't really reflective of my disease...
Whenever my CD flares up, fatigue is the first symptom to come and the last one to leave... Anemic or not....
I need a solid 10 hours of sleep. I can function with 9 hours, but 8 is definitely not enough. I also take a nap in the PM whenever I can......
Let me know if it worked for you all! I just received another batch of 6MP. phew!...