Thank you for sharing your update. Do you mind if I ask a few questions? How long did you have the temp ileo? Was it for crohns, uc, or something else? It sounds like you didn't have the colon and...
Calmoseptine. You'll probably have to ask the pharmacist for it as it's behind the counter, or go to a medical supply store. That stuff is magic....
I've been in the Stelara trial since June and I haven't had any side effects at all. I had to quit Remicade and Humira because of bad side effects affecting my skin, so I was pretty nervous about...
If tysabri worked for you, have you thought about getting into a trial for vidolizumab? It's supposedly very similar to tysabri. I just dropped out of that trial, it helped my symptoms but didn't...
I had surgery for fistulas two days ago and had two abscesses drained and four setons placed. The surgeon didn't give me much information about the setons before or after the surgery. I was surprised...
Has anyone had an MRI for a perianal fistula? I'm wondering if I have to drink the barium contrast stuff for this test? I'm having it done tomorrow, I've had the MRI enterography with the three big...
My dr had a practice pen that she had me practice with, and then she did the first shot. I did two and my husband did one. I definitely preferred having the control of doing it myself. It is painful...
I'm in the vidolizumab trial right now. I started in the double-blind part in July and then open label in October. My symptoms didn't change at all in the double-blind phase, and I started to have...
I've been going to Mayo for about 6 months now. I was referred for my initial GI assessment and it took maybe 4-6 weeks for me to get an appointment. They instructed me to plan on 5 days for the full...
I didn't have joint pain while taking Remicade or Humira... but when I stopped my humira I had horrible joint pains for about 2 months. I was on a weekly dose as well. The only thing that helped my...
I just recently went to Mayo for the first time. I was referred by my GI because I've been having a hard time finding a medication that works and that doesn't cause bad side effects. I saw Dr....
Yes! This happened to me about 4 months after I started Humira, taking one shot every week. It kept getting worse, even getting zits all over my scalp and my chest. I stopped taking Humira about 2...
I'm an OT/hand therapist. What you have sounds exactly like ulnar neuropathy, or cubital tunnel syndrome. You probably sleep with your elbow bent all the way, which puts pressure on the ulnar nerve...
Congrats!! There really are truly caring people out there. I was 24 and single when I got diagnosed, and it's been a rollercoaster with meds and sickness and side effects ever since. Two years ago I...
First- inflamed, best wishes to your son for good health! It's awful that you're in such a position, and having to worry about a lack of patient care when you're already stressed and worried. I live...
Vent away! None of this is easy, and it's so hard when people just don't understand. I don't think anyone truly can understand if they haven't gone through it themselves. Your doc probably gave you...
Update... feeling slightly better today, the fever topped out at 101.7 and then went down, stayed below 100 all day! My doctor's office called and I guess the doctor got the message about my...
Thanks everyone. I'm going to go to the ER tomorrow night. This sounds weird, but I have to go be fitted for my wedding dress tomorrow and I'm getting fined (I mean, "storage fee") every day I put it...
I am beyond frustrated with my doctor's office. I have been calling to try to get an appointment with ANY doctor and they are booked out until mid-April! I managed to get an appointment at another...
Thanks for sharing that, it's interesting to see what it's like because I've never had surgery- but I'm afraid I may have to soon. I'm amazed that you're feeling so much better already! Keep getting...
I'm going through the exact same thing with Humira. It sucks... after the loading doses I thought I had my life back, and now I feel worse than I did before I started the drugs. I hope you start...
Once every two weeks just isn't working for me. After the loading doses, I felt great! Now, after two regular doses (one shot every two weeks), I feel worse than before I started. I've also had a...
Pen. It's so easy. Just make sure you ice the area first- it really makes a big difference!...
It depends what they were looking for in the biopsy. The pathologist who read the biopsy may have been looking for cancer, granulomas, other stuff like that, and didn't find any, hence normal. But if...
Any of you recent humira-starters have updates? I've been reading along with your experiences and I'm wondering how you all are doing. I'm starting Humira this Friday and I'm starting to get nervous....
I felt that way after my first infusion, I went home and slept for four hours! I did feel better the next day, but I didn't start feeling WAY better, Crohn's wise, until the second or third infusion....
Just had my pre-op physical... I drove 20 miles to my primary clinic, sat on the table, and they listened to my lungs as I breathed. A $30 copay for that! And they'll probably charge my insurance...
I went in for my 5th colonoscopy today. I recently graduated from grad school and moved back home from out of state- this meant switching doctors and having a scope done at a new clinic. When I had...
Hi Geetar, I don't normally post on this forum, but I saw your post and wanted to help out. I'm an occupational therapist specializing in hand therapy, and as a student I did some clinical work with...
I was on Remicade for almost a year and I decided to quit because I was having a lot of the same things you are experiencing- weight gain, infections in my piercings (which closed up completely), and...
I've had no problems with the pill. I've found that the ones that don't switch horomone levels throughout the month (monophasic) are the best for me. You might have to switch brands a few times to...
I don't know much about Lyrica, but I think that skipping one pill wouldn't work; lots of drugs will stay in your system for a long time, even if you skip them for a few days. Definitely ask your...
As a student in healthcare, I'll share my two cents. Electronic records are incredibly valuable. Any and all information you need about a patient is literally right at your fingertips- you can look...
I think if it were my cat, I would definitely want to know. I just had to put my dog to sleep today- he had Lyme disease, which caused kidney failure- and I feel better knowing that he's at peace....
I definitely know what you mean about not wanting to be on more meds than you have to be. I was on Remicade for about 9 months and it made a world of difference in how I felt, but I wasn't in...
Certainly no doctor is going to tell you it's ok to tan. Ultimately it's your decision, and you know that. I've never been on pred, but I've been on almost everything else, and I've never had a...
Wow, butterfat, thanks for posting this topic. It's pretty similar to what I'm going through. My GI is a very visual person, apparantly, and since he sees active disease when I have a scope, he...
Make sure you tell the doctor/nurse/anesthesiologist/whoever that you took it before they give you any drugs tomorrow. Hope it goes well!...
Loren, I loved this article. You are a great writer! What a good way to help people to understand what it is we go through- not just the pain and sickness, but the loss of control, the uncertainty,...
The antibiotics will probably work- tonsil abscesses are very different from skin ones and perianal ones. I used to get abscesses often when I was young. I was even hospitalized for a week when I was...
I developed excema a few months after stopping Remicade... my doctor doubted that there was a connection, but I think there could possibly be a connection there. I've never had excema before. I got a...
Biotin! I swear by it. I lots lots of hair first from being sick, and then from being on Imuran. I'm off of Imuran, and I take 3000-4000mg of biotin a day and my hair is definitely growing back- I...
There is something called referred pain, where you feel pain in places in addition to the place where the actual problem is occuring. Maybe that's the cause? I don't know why that happens but maybe...
Belleenstein, Thanks for sharing your story. I think you're absolutely right, and your experience with dealing with the loss of your daughter shows that acceptance is a long, non-linear process....
It's probably not a good idea. There are different classes of antibiotics that do different things. The bacteria that Flagyl kills may be different than the bacteria causing a UTI. Which antibiotic...
Even though I had constant diarrhea for a LONG time before I was diagnosed, right after my first colonoscopy I was constipated for a few days... it kinda freaked me out, but it was nothing. I think...
I think I remember seeing this article discussed on CCFA. I'm not sure exactly which one it is, but if you go to www.googlescholar.com and put in "Crohn's" and "pregnancy" you'll get links to a lot...
I love soda- but in my part of the country we call it pop :-) I'm trying so, so hard to cut back but it's so difficult. It's not the caffeine and sugar because I drink diet caffeine-free Dr. Pepper....
I was recently at a lecture with a GI named Dr. Reuben (spelling might be off). I don't know where exactly in Chicago he practices, but he was absolutely amazing. I think every Crohnie in the...
When I was really sick and had an abscess before I was diagnosed, I was so cold that I'd literally cry. It was insane! It was winter and I was living in a cold climate, and I remember coming home...