I have JRA with my Crohn's & everytime it rains or is cold they ache like crazy. My Crohn's always gets worse in the end of winter/spring also. There is a link between season changes &...
No problem!! I was able to finish out the school year & passed in my honors classes!!! My lowest average for the year was a low C so I can accept that! I will stay in touch and hopefully will be a...
Aww :(( Hugs!! It is okay!! You are loved & are such a help even when your sick! I haven't been on the forum & actually switched to another one with much more support & people wh are very...
I think it's just very rude to come on a website, and claim that people wo have been dealing with this disease for over DECADES, are doing it all wrong. I think they have a lot more knowledge on this...
Oh yes! I never forget though because 3 days after my shot I feel so miserable that I'm counting down the days to my next dose! I have had blood back in my stools so maybe my GI will bump it up to...
I've only had surgery on my GB & that was to take it out(the CD was messing it up) but I feel for you! If it makes you feel any better, a friend of mine w/ Crohn's started Remicade around the age of...
Hey! I am 15 & I got Drug induced Lupus after 2 treatments of Remicade. I went on Humira next & although it didn't work right away, after a few months and getting my shot bumped up to every...
I've ALWAYS had dry skin. I use a special lotion, body wash, shampoo, conditioner etc. for that problem. Along with my "smell good" bath & body works stuff. When I first started getting Crohn's...
I lost 50 pounds in 4 months so my pcp admitted me to get a feeding tube. I then lost 35 pounds more in the next 4 months. I lost 85 pounds in 8 months. I still haven't gained it back. My GI now just...
Every February for the past 3 years I've had a Crohn's flare. I'm hoping that maybe the Vitamin D I'm taking will prevent the next flare when Spring comes. It will be neat to find out. I know of a...
The Prometheus doesn't give a definite answer. One of my Prometheus tests said I had no geneti length(yet my mother has Crohn's disease) & it said I was "negative" for IBD. It was wrong. All of my...
Muscle relaxers don't help me much. They only add to the constipation I have from bowel thickening. I have taken Bentyl like a lot of others but it didn't help much. I get some relief from flexeril,...
I have chronic gastritis caused by my Crohn's(biopsies showed my Crohn's affected all of my stomach) & it is sometimes worse than the intestinal pains. It causes me some gastroparesis type issues. I...
My family isn't "rich" by any means. They bust their butt to allow my brother & I to go to a very nice private school. We had to talk to the insurance companies constantly(my mom called them so many...
@ Kazbern & the poster: I had my scope in april while still on Prednisone. I took the pred the night before but not the morning of the procedure. I was fine & just took the dose when I woke up. I...
I have been flaring horriably these past few weeks, which is why I haven't been posting very much. I'm positive it's from stress because I semester exams tomorrow and next week. I've been eating one...
I got my letter saying I was accepted to be a camp counselor, despite recent scope/test results! So, if any of you are going, or have kids/teens that are going to be campers or counselors in Georgia...
A friend of mine was "diagnosed" with Crohn's Via Pillcam. She went on endless rounds of prednisone is now on Cimizia. Now her GI is probably going to "take away" her diagnosis because: 1) They never...
There is. I had my GB taken out at age 12. I was the second youngest in the hospital's history to ever have the gallbladder taken out. I also experianced my first "major" flare right after. It was...
During my cycle & the week before I have horriable stomach pain & usually don't even go to school because I'm throwing up or using the bathroom nonstop. Sometimes I'm even bleeding out of the rectum...
Everyone is different & most people on here do SCD or go gluten free. For me, gluten free didn't help at all. I actually just tried a GF candy & I have been throwing up for an hour....Yet my stomach...
Liquid diets are best for me. When I'm flaring really bad, I can't seeem to tolerate anything & GF, SCD & all the othe "IBD" diets just make me miserable. The only thing that cuts down my bathroom...
You have not seen the many posts by others saying "I cured my disease" ? I see at least one new post everyday on here stating that but 80% of them are deletd by mods....
It's nomal to have irregular bowel movements after a colonoscopy, especially if your used to being constipated like I am. Because of the gas they pumped in you colon as well as the prep which can...
Well, I've had a "UTI"/kidney infection/bladder infection every 2 weeks for almost 3 years now. I get my urine tested a lot due to all my flares & the meds I'm on. The doctors used to give me...
Hey & welcome to the club :) I agree that it sounds more like Crohn's & your disease is very limited location wise at the moment & that's good. It can spread to other parts & only time will tell....
I disagree with Clonehead: I am steroid refractory. I could never digest the steroid pills(or hardly any pills for that matter). I felt little relief on IV steroids. Most of my pain was from partial...
Today I've had a LOT of relief. I guess the 2 days of benedryl worked. Now I only have very minor itching. I guess I found the right combo of shampoo/lotion/body wash/meds. Yes, most of the cremes...
Like Kazbern & Pb4 said only I'm going to add this: UC only affects the colon. Crohn's can affect anywhere from mouth to anus(mine affects everywhere). Also, UC can be cured by having your colon...
Exactly my point. All my other friends with JRA/Crohn's arthritis, no matter who their Rhuemie is, have been prescribed muscle relaxers. Mainly because it helps calm the gut down & ultimately the...
I'm 15 & my arthritis pains usually start before my flares & then the arthritis stays active for as long as my gut is active with crohn's. Rhuematologists can't do much fo the pain. You kind of have...
I have a friend who is my age w/ Crohn's & he does 6mp with his Remicade after just plain Remicade didn't help. When he switched to both Remicade & 6mp he gained 20 pounds and grew 5 inches in about...
I have this problem. I take my Humira once every 7 days. I was on every 14 days but because the disease was so severe(like most pediatric cases) we bumped it up to once a week. The GI & Rhuemie were...
The question is, are you sure the biopsies would still show the infectious inflammation along with other things? If so, and it's not a waste of money, go for it! It couldn't hurt! Sometimes our pain...
I find that VERY funny too! My dad is a paramedic(so he knows a lot of the doctors at the ER) & everytime he came and got me in the ambulance to take me to the hospital they treated me like...
Thanks ya'll! I had this itchiness on Remicade & after the third infusion I got diagnosed with Drug Induced Lupus. That wasn't fun at all & I still have some of the symptoms. @sudsmom: Psoriasis came...
I have been having issues with extreme itchyness over the past month! My lower abdominal pains have came back these past few days & I'm hoping that clears up tomorrow with my Humira. The...
From what I've heard, when it comes to the Mayo clinic & places like it(clevland clinic) just because you get assigned a doctor DOES NOT mean that that will be the one you see. Several people on the...
I remember when I used to go to the ER with extreme tummy pain(for one reason or another) & since I'm always constipated(scar tissue/a lot of inflammation), I get excited to drink the barium because...
I'm praying for her & you Kazbern! I hope it's not IBD but you just have to think; their are SO MANY GI diseases & conditions out there. It could be another GI condition with a cure or easier...
Call me defiant, but I have been feeling pretty great lately & want to stop taking the steroid suppositories. The only issues are that 1) I don't want to waste my parents money & 2) everytime...
I get impacted all the time & used to go every two days to the ER for a full impction(that's right. From cecum to rectum) from when I was 18 months till 3rd grade. All the ER doctors told my parents...
Hey! I'm 15 have Crohn's as well! I've been in & out of the hospital & seeing a GI since I was about 18 months old. It gets old VERY quick. I've never taken Pentasa but I've taken simmilar meds & it...
I've been given prednisone on Humira & other biologics. Every Crohnie I know personally has been on prednisone with their biologic(humira, cimizia, remicade) at least once in their life. I wouldn't...
I drink about 4 cups of miralaz a days plus stool softeners. It honestly doesn't matter. Just make sure you drink a lot of water. Miralax is OTC for a reason. You would have to be an idiot to "OD" on...
GRRR...I don't like your past GI already!! I'm so sorry you've had to deal with inconsiderate GI's! I promise they all aren't like that! I hope you get better soon :( My situation: My GI(whom is...
Skin tags & hemmis look a lot alike. So it could be nothing. I get hemmis when I strain & fissures(both are common in other GI Diseases & disorders) that cause bleeding. Just try to ease your mind!...
I have struggled with chronic cnstipation since I was born(I saw my 1st GI at 18 months old) & it's sometimes worse than the horrid 'D'!! I remember my parents taking me to the ER evry two days with...
I do both medicinal treatment & alternative treatment. It's the best of both worlds. I have seen A LOT more improvement in my health with medical treatment rather than alternative treatment though....
Last year my CD went into remission spontaneously without any meds, diet etc. One week I just woke up & felt better. Then it just got great from there. It came back with a revenge a few months later...