Congratulations! Both you and baby look beautiful! :) It is so uplifting to see some happy news, all the best!...
Hey NCOT, I don't post a lot on here but I do try to keep up with the posts and what not. I am really sorry that you are having such a hard time, I am a 23 year old female and I am really nervous...
I see a naturopathic Dr. who has Crohn's disease. I first went to him to talk to him about starting biologics and my concerns with it, and it turns out he takes Humira for his Crohn's! This made me...
I took Imuran for a few months, but started to feel pretty terrible. It made me extremely nauseous and hung-over feeling in the mornings. My Dr. suggested I try taking it at a different time, but I...
Also, some of the "High" and "Low" results are probably normal due to your son's conditions and/or medications. My Platelet Count always runs high when I am having a bad flare, and my 6MP and...
Hi! I work in a hospital lab, so I hope I can help you out a bit :-) The name at the beginning of each line indicates the test, so I will use White Blood Cell Count as an example, from the March/5/12...
Hi SunshineSmile! I love the videos that you have made, they are really funny and clever! I decided to comment here because I definitely had a rough time before I was diagnosed. I ended up in the ER...
Thank you so much everyone for the advice! I guess I am just nervous about stopping the 6MP and going into an even worse flare, but I don't think it is worth the risk of staying on the 6MP. I get my...
Hi everyone! I have not posted here in a little while, I always read the other posts, but I am in need of advice. I have been on Remicade (every 8 weeks) for almost a year now, but in November it...
That's great that you are doing so well on the Remicade! I get tired on Remicade too, but that is pretty good if that is the only side effect! Here's to hoping for a low CRP!...
Hi dixie jo, I have the exact same issue as you. I am soo tired and weak all of the time, and since I have started Remicade it has only gotten worse! Do you receive any meds prior to the Remicade...
Hey Jackel, yep that is prednisone exactly for me too. Has your doctor prescribed you anything to help the side effects?? I was taking sleeping pills and the occasional ativan. I could not sleep at...
Hey Jackel. First of all I am sorry you are having such an awful time, Prednisone effects me in almost the exact same way and it is so frustrating. I really hope you find a medication to work for...
Hey Nancy, here in Canada we have Imuran made by GlaxoSmithKline, which is Azathioprine. 6MP is not Azathioprine, it is Mercaptopurine... From my understanding, and I have been on Imuran aka...
Hey jeanneac! haha it is nice to relate about lab related problems, and I like your detailed lab results. I was diagnosed in a similar fashion, and my sed and crp are still high even after a year of...
I am sorry sparkleplenty for your work issues. I am a pretty private person, and I prefer to only tell my family and friends about my disease, and I do not appreciate when some one else divulges...
I have had some serious bladder issues since starting Remicade! I have had numerous kidney stones, and constant blood in my urine. It is seriously annoying (and painful!) but my GI wants me to at...
Hi Ziggy! I have been taking Remicade for about 8 months, and while it took awhile to kick in, it does seem to help! Do you know if you are doing loading doses, such as first infusion , then 2 weeks...
hah the ER is for sure always the same and I will avoid it at all costs. My doctor gave me a lovely cocktail of dilaudid and zofran to pass the stones at home, but honestly they still hurt! Oh man, I...
Oh my goodness! 10 is terrible! Yea I am trying to keep out of the ER for sure, I am there enough on crohn's business. Thanks for the lemonade and beer tip, very interesting!...
Try glaxal base and like everyone else mentioned, lots of water. Good luck :)...
Ah thanks so much for the heat tip, I have a bean bag (microwave kind) but I wasn't sure if it would help or not. I really hope I am done passing them, but thanks :)...
Hey Everyone. I know this isn't completely Crohn's related but how many others have suffered from kidney stones?? I just passed my third and seriously, this pain is terrible. I have had a CT done...
Thanks tooth for the info!...
Hey, I found this on a website, I have been meaning to research it further. Inflammatory Bowel Disease, A Guide for Patients and their Families, by Stanley H. Stein, M.D. and Richard P. Rood, M.D.,...
Hey Julia, thanks that is great to know!...
No, I don't have infection yet. When I lost the teeth (crushed) there was a lot of damage in the root and I lost portions of the tooth, even underneath the gumline. They are worried I will get an...
Welcome Calypso :) Hope the Asacol works for you!...
Yea I am worried too. Both hernia repair's and root canal's are high for chance of infection. I know you can go off the Imuran without weaning and start again, but how effective would that even be?...
So 2 years ago while swimming in the ocean in Mazatlan, I thought swimming "like a dolphin" would be a grand idea. Well that beach was called Playa Bruja (witch beach) for a reason. I went out too...
Aw thanks, ya it is nice to get out of bed now and be able to live the day a little bit!! Thats freaky about the reactions you had, I am very nervous of that!! During my first remicade infusion I had...
ahah Wii IS my workout! Honestly, good fun. So sorry to hear about school, I really do consider my self lucky to have finished. Unfortunately I am not working right now, but hope to be back soon! I...
Hey Adam DoubleYoo, Lymphoid Hyperplasia can definitely sound scary but usually is not a cause for too much concern. Like Nanners said it is a rapid growth in cells, but this is almost always a...
ahah Video games seem to be a must for some of us Crohnies!! Sorry, I am a Wii girl, can't help out too much with suggestions. CollegeStudent, that's terrible about not being accepted due to your...
Congratulations on starting a family!!! It is nice to see that you are researching it so well, and taking the precautions even though you are not the one carrying the child and giving birth. From...
Nice to read your story Bane! Crohn's in High School most of been really difficult. I am dealing with similar things with my disease, mostly that I had to stop working and move out of my condo and in...
Hey takilra, how did it go?? Feeling okay today? Hope it went well, enjoy the game tonight!...
Oh an Imuran is actually originally used for a transplant drug, usually kidney and transplants. From my understanding, it binds to the the cell and damages DNA in the cell and ends up killing the...
Hey, I am also at 150 mg of Imuran and also getting frequent tests. The major thing they are testing for is that you kidney's and liver are not shutting down. I just got test results a few days ago...
Hey, I have the exact same problem with 150 mg of Imuran. Not so fun :( I now use the same cleaning spray I use for when I have really bad diarrhea (its for fecal matter and urine so it is safe to...
Hey I am on Remicade too, and I would say to avoid tanning if possible. Do you have access to spray tan instead? I have read a few articles about Remicade causing photo-sensitivity so that would...
Hey Tabicat, sorry to hear you are feeling so poorly! I too feel worse around that time of the month, but it is too bad you are feeling so ill all of the time. I started getting really bad pain a few...
My next infusion is Friday too! Looking forward to it as well, and hope your infusion goes well. and GO CANUCKS:) ahah I am from BC, what can you expect?...
bahaha randynoguts that is pretty ironic, but a good laugh as well....
ah Bane, cereal was how I survived before Crohn's. Carnation instant breakfast and cereal was how I got by, especially with the shifts I worked at the hospital. I still eat it (with lactaid milk) but...
Hi Chopsusie! Welcome :) I am pretty new here as well, and new to Crohn's. I am also on Remicade and Azathioprine, so I am curious to know your experience with the drug combo. I have only had 2...
I too only experience any lactose problems when I am having a bad flare. I guess this makes sense as lactase (enzyme that breaks down lactose) is present in the intestines, and I guess while a flare...
I am a 21 year old female, and already have joint problems :( I was diagnosed with Crohn's in Sept 2010, and also diagnosed with fairly bad Osteoporosis just a few months ago. I am pretty sure it is...
I hope we all live to see the cure :)...
Wow, lots of genetic history here. What sort of environmental triggers have you guys heard about? The only thing I could think of for me (and my twin) is when we were 18 months old, we were...