Yep. I've taken it. Neither of my docs (PCP/GI) had an issue with it. I'm about to take it again because after keeping the weight off for over a year, I went on Remicade and have suddenly gained 45...
I took it for a year. It didn't work for me....
I was allowed (American Red Cross), but tried during a flare and it was a huge mess. They dug around for several minutes, trying to find a vein. I almost passed out. They finally gave up and told me...
I started Remi in January at 5mg/kg every 8 weeks (after the 3 loading doses). It's just not helping as much as it should be, so I'm going up to 10mg/kg starting next week. Still staying on every 8...
If you stop in time, they will go away within a few months. Sometimes, it's permanent. I use my heating pad 8 hours a day, for the past year and a half....
Apparently, over-use of heating pads can cause erythema ab igne. I found this while trying to figure out what was going on on my abdomen. Mine looks exactly like this picture....
I got silicone implants (and abdominal liposuction) a year ago. I was on Cimzia at the time and mildly flaring. I didn't even think to mention it to my GI. I recovered very well and am very pleased...
I never had painful sex, so nothing changed there. I'm on Camrese. I think it's a generic for Seasonique. I have no breakthrough bleeding or menstrual symptoms of any kind. I do have two kids, but...
I was diagnosed with Crohn's in 2003 and Endo in 2006. The only way to really diagnose it is visually through a lap surgery. I had that done and they scraped away the endo. I went on birth control...
Did Remicade help the first time? If not, I'd go with the Humira. So you had a nasogastric (NG) tube in the hospital? For nutrition? Did that seem to help? I'm on Remicade and azathioprine and it's...
No way would I commit to 4 years of possibly being med-free. Why are they even doing trials on Remicade still? It's been out around 10 years....
That gives me hope. My GI has a conference with the medical director at the insurance this afternoon to appeal the decision....
Good luck! I also failed Cimzia and my doc wants me on Remicade (never tried it), but insurance won't approve it. I'm in limbo now....
Well, insurance hasn't approved yet, so I'm rescheduled for Monday. Not happy....
Thanks. It's right after lunch, so I should be good there, but I'll make sure I take my water bottle. I have books on my iPhone, so those will come in handy....
Welcome! I haven't tried either of those. Did your doctor prescribe anything?...
Actually, it's been 13.5 months. It's getting old. /community/emoticons/rolleyes.gif Anyway, started Cimzia last February. Had a month of improvement (but never remission), then started going...
I went gluten free (as well as dairy, soy, egg, sugar) for 6 weeks. I only got worse. I added things back slowly and did not notice a difference. It didn't work for me, unfortunately....
I started it 4 months ago, but it's doing nothing for me. I'll be stopping it after my appointment tomorrow....
For me, I didn't have any side effects with Entocort. When Cimzia stopped working for me, we split the dose to one shot every 2 weeks. I read something that said there's no indication of success in...
I'm glad you called your GI. Don't be afraid of anyone 'making' you take steroids. I refuse to take them due to the side effects (mainly the mental ones). I just won't do it and all my GIs have known...
I'm on Cimzia and Imuran and I take probiotics daily. My integrated doc recommended them....
I've never heard of a pen version of Cimzia. Do you have someone who can inject it for you?...
I tried it for a couple weeks and didn't notice any difference. I was drinking 1/2c mixed with pomegranate juice (1c) and water (1c). I was told sipping on it throughout the day was most effective. I...
Interesting. I was dx with Crohn's in 2003 and endometriosis in 2006....
I've never had one, but I've heard they're very painful. Of course, everyone has a different pain tolerance, so who knows....
If your nurse said to go to the ER, there's probably good reason for it. From what you shared, it doesn't sound emergent to me, but I would recommend taking the nurse's advice over someone on a forum....
Azathioprine=Imuran. 6MP has the same active ingredient as imuran. Pentasa is in the 5ASA class (with Apriso, Asacol, etc.)....
We all love Sniper and hope he gets better soon. Please keep us updated....
A lot of people with Crohn's have a sensitivity to gluten....
Welcome! I second the suggestion of being on maintenance meds. I'm trying to get my flare under control with diet because the meds aren't working, but I plan on staying on some sort med once I get...
Oh, you poor thing. I can't imagine. I have no advice. I hope they get under control quickly for you....
I'm not a fodmapper, but I'll still be on my elimination diet over the holidays. We're spending Christmas day at my brother's house and his wife is doing all the cooking. I'm planning on making a...
I understand how you feel. I recently had to switch GIs due to insurance. I had been with my previous GI since right after my dx 8 years ago. He knew me and how I liked to be treated. I got new...
I'm so sorry. The stress is not going to help things, either. I hope they continue your benefits....
Great post, Ivy! I was one that disagreed with some of the locks/deletions and what seemed like picking on some members. However, I have always liked you and Gail and appreciated your kindness and...
Just wanted to update. Nine weeks on Imuran and 9 days into the elimination diet, and still no improvement. SBFT was normal, so no small bowel involvement (yay!). I'm still holding out hope that...
Good luck! I've never tried Remi, but it's next in line if I'm not better by January....
Certain classes of drugs cannot be called in. At least that's how it is in TN. I know certain medications, my doc can fill/refill online or by fax, even if I'm in their office. Others, they have to...
Yes, I just started taking a probiotic a couple weeks ago. I also added L-glutamine, curcumin/turmeric, and Bastyr Formula B. Those were all recommended by my doc. I have NO problems with stress....
Thanks for sharing! So nice to see more awareness out there....
Welcome to the USA! I hope you're able to control things until insurance kicks in. This disease is expensive without insurance (I did it for a year)....
12 staples for a laparoscopic surgery?? Wow....
I got headaches the first few days on Imuran, but they went away....
I've never had a BT, but wanted to wish you luck and welcome!...
sparkleplenty said... I did an elimination diet for 6 weeks this summer, and definitely feel better in some regards having eliminated dairy, and I go back and forth about how well I tolerate gluten....
He did not fire them because of their gender. It is not sexism. It was an adminstrative decision. He doesn't have some sort of vendetta against all women. Good grief....
I've recently started down this path, after numerous drugs have failed to achieve remission for me. I'm on week 2 of my elimination diet (no dairy, soy, gluten, sugar, egg). I haven't noticed any...
Welcome! I never lose weight with flares, either....
:( I wish NO one would leave over this. It was a change that came out of nowhere, but we're all still the same people. We need to continue to support each other....