cleanfreak, I for one really appreciated your post. I feel the same way. Thanks for posting....
lol matthew, I hope you feel better soon! Kathy...
Gee Richard, So sorry to hear of your problems. I have no wise advice. I just wanted to thank you for your service, and hope you feel better soon. Better days ahead for you and your poodles! Keep us...
so sorry to hear of your situation. I don't have any wise advice either, but can relate for real on the anxiety problem. VENT AWAY, the people here "get it". I think we all suffer this problem, like...
hang in there Randynoguts! I hope you find relief soon. Kathy...
I am on Imuran too, yes...Nausea! All day. I took 100mg per day in morning. GI suggested I take 50mg in morning, then the other 50mg at night. So far (about a week) I still feel nausea most all day....
I just had resection surgery in the small bowel due to obstruction. (october) Before my surgery the pain was unreal, and came in waves. I was down to 92lbs. I couldn't hardly get out of bed. Had to...
feel better soon! I sure hope you don't flare after all of that. Kathy...
Hey Randy, Sorry to hear this, I hope you get relief soon. Feel better friend, and keep us posted. Kathy...
I too was on entocort...after a resection in Oct they put me on immuran. 100mg per day. So far the plus side is I can now leave my house. It really helped with my D episodes (lots) and also helped my...
No Way!!!!! 3 trips per hour maybe......Sheesh! Thats crazy...
Hi Navy, That is excellent! It's great to hear one of our own has gotten some relief. I am so glad you found a good doctor, I hope you never have to go through all of that again. Kathy...
Geez Wendsday....I couldn't have said it any better! I have had the same experience with the pred. Even lost all my upper teeth after high dosages at the age of 40. This year (49) I broke my right...
Hi Lady, I had my resection in October. They took 18" of small intestine. I loved the TPN because, like you I was under/malnourished. 5'6" 92 lbs. It took about a week to notice a difference...I...
I was on 100mg imuran for a couple of months before backing my dosage down to 75mg. I got terrible nausea from it. Also,the muscle thing...it's like they are really tight! When I stand up its hard...
I had similar symptoms, Major D, major pain, no appetite, throwing up, went to ER and had an x-ray...it was an obstruction. I hope thats not your situation. I do think mine had been coming on for a...
I sure miss Snipers posts. I always looked forward to his humor. It's just not the same without him. I only wish the best for him and his family. Please keep us posted on his condition, thank you!...
Hi there, I just had small bowel resection done in Oct. They removed 18 inches. I had a major obstruction and was in soooo much pain for a long time, the surgery seemed like a breeze, and I felt like...
I don't know if this is a good answer, rather something to consider. When I was major flaring and soooo tired too, doctor did a simple blood test for thyroid. Sure enough, that was the problem. It...
Hi Kiwi12 So sorry to hear of your pain...all we want is a little treat once in awhile! I am interested in learning about the FODMAPs as well. I am terrible at making good food choices, and so far...
So, yes I have officially quit smoking (almost 6 wks). But now I am addicted to black jelly beans...I really am terrible at making good choices food wise. Any suggestions? I chew gum a lot. I am...
Thank you all for your experiences. They sent me home on 6 pills of Pentasa...by day 3 I thought I was dying! Heavy D, Mucas, Blood, couldn't walk (so weak). I stopped them. I feel better now, but...
I had a resection where they took out 18" of small intestine..oct 21st. I have started eating some regular foods but having major D. They told me to take it easy for at least 2 months. It is hard. I...
Thanks to you both for your encouragement. I did start the chantix, and i have to say it has helped for over a month. I tried cold turkey, but felt too weak to stick to it. Chantix and lots of...
Thanks so much Nanners. ! I hope you are feeling better as well. It is encouraging to hear that some have had such good results with immuran for so long, but my regular doctor just told me that it is...
I think your smart to get another opinion from another GI. After 8yrs. I'm on my 3rd GI. I think he may be doing me good. (first 2 didn't) So, I wish you well and good luck. It's frustrating when...
Mine I feel like are same reason as Artistguy. So underweight here and always dehydrated. Maybe low on pottasium, so try to eat banannas once in awhile. Good luck. Kathy...
omg Mtgman! Thats funny, well not funny....but ya know. I have too done that once. Some say they spend so much time in the can they take their pillow. But that might look funny for you at work. ha ha...
I wish you well. I just had a resection (1st) one due to blockage. He mentioned fissures were almost there .... scary. They sound painful. Have you had any surgeries? I'm sorry I don't know much...
Thats GREAT! So nice to see some excitement here, I wish you and family all well! Keep us posted on baby Jacob. (cool name btw) Kathy...
I never had any side effects from Entocort...it was good to me, not like Prednizone. That was aweful. I hope you have good luck with it if you decide to use it....
I had same problem with fatigue, and doctor checked my thyroid. It wasn't working anymore due to malabsorbtion and being underweight. I am also anemic. But once he got my dosage of synthroid down...i...
((((Nanners))))) Sending prayers and positive wishes your way as you return to work. Bless your heart as you have helped so many of us here with your great support system. They better be kind to...
Im glad you updated us on your whereabouts, as I have wondered where the heck you went! I have been on here more as of late due to being hospitalized 3 weeks now for resection surgery. So...naturally...
So, Still in hospital (going on 3 Wks) now. I had my first resection surgery last friday due to a small bowel blockage. Doctor took 18" out. I feel like a million bucks right now to be out of all...
So, I'm guessing not many smokers? or ex smokers? Well, I started the chantex, it is helping with the cravings. I am still hospitalized so cannot smoke here, but worried about how I'm going to do...
I have smoked a pack a day for 30 yrs. I have tried and quit with patches, gums, etc. Longest quit time has been 8 months. I ended up the hospital 10 days ago. They have me on IV feedings, no real...
hello, I also had lame insurance that wouldn't cover the only drug I can tollerate. In oregon my price for entocort was well over 1500.00 per 90ct. WOW so I like dave, order mine from Jan Pharmacy...
I'm sorry, in my earlier post I said needle when I meant knife! I don't know about laproscopic. I do know he described the 3"incision under the bb. That will be a question that I will ask him...
Hello NCOT. Sounds a bit like we are in the same boat. My pain and distended colon scared me so much last week I had my son drive me to a hospital. They admitted me after x-ray showed blockage in the...
Hello Miss Sunshine, Welcome to this great group of crohnie's! This group has helped me so much, they will help anytime day or night. And you can ask anything, there is no such thing as TMI here. I...
So I have to have surgery on Friday for a small bowel obstruction. This is my first time under the needle, they plan to remove about 1' section. Do I want staples or stitches? For those of you who...
I live in Oregon and my insurance will not cover the entocort. It is over 1400. per month. Who can afford that? Last month I ordered the entocort from Jan pharmacy in canada and it was 192.00. they...
Hi Nanners, I'm glad the entocort is kicking in for you. I am still waiting for mine, I went through Canada to get it. I know what you mean about worrying about long sleeves in the summer, plus I...
Hi Phoebe, It's good to hear you are doing well. I am in a flare right now, and this forum is full of wonderful, helpful people who really care. I find If I'm having a bad day, I can come here and...
Thank you all for your offers of help on this matter. I checked into all the different pharmacys, and they all looked great to me. I went with Jan Pharmacy as they assured me the entocort was the...
Hello, I just ordered my entocort from Jan Pharmacy (thanks dfdavedf) and the clerks said it may take up to a month now to reach Oregon as the postal service is currently on strike. Just my luck! But...
I'm sending up prayers for you Nanners, I hope you feel better soon. I admire you for going to work and helping so many of us here at the same time. I'm currently in a flare too, so just getting up...
I too am having this same issue! but mine is being caused by too much D/wiping. When I wipe, it feels like there is shards of glass there...sooo painfull. It keeps me up all night. I got desperate...
I had this problem to the point where I passed out in the shower. That scared me enough to go to the doctor. He tested my thyroid and it was way off so put me on thyroid med. It seemed to help...