Thanks. I do belong to the IBD and LDN group. Also, no meds have worked for me which is why I am doing LDN now. Can't combine it with other meds :(...
I just recently started on LDN. For anyone that is interested in what the drug will do, come follow my journey at www.aguywithcrohns.com ....
Sorry Jason. Humira is a nasty drug. I have been on it for a little over a year now. I have delveloped psoriasis because of it. I have heard of people getting Lupus because of it also. Humira lowers...
NCOT, I understand your frustraition with the Nurse, however, why are you letting a nurse dictate how you are treated for your IBD. Why aren't you seeing a GI Doctor. Doctors are the one's trained...
Kaycie - I have to agree with MMMNavy. I know someone that got Lupis effects due to Humira. They were and still in severe pain even after stopping the meds. I am sorry you are going through this....
Sorry that your not feeling well Lauriebaby. I know what it is like to be on all the different types of meds with no success. Losing weight with IBD is no easy task. I have found that Weight Watchers...
Thank you This-To-Shall-Pass and Lovetogarden. I would love some feedback if there is anything you would want to see in a blog....
Thank you lamb61. I am trying to be open and honest so everyone that reads it and has IBD knows...they are not alone....
I have a new blog out there for everyone to read. www.aguywithcrohns.com I talk about my life with Crohn's and offer advice to everyone else who has it. My ultimate goal with this is to show everyone...
Have you seen a dermatologist yet? It can be EN brought on by your Cimzia or it could be psorisis/eczama. A dermatologist would know better and can take a biopsy. Feel better....
Welcome and sorry about your pain. I don't have the constipation but it is common for people with IBD to have that symptom. There are a lot of people on here that have complained of it. I hope that...
NiceCupof Tea, I do agree with you to some extent. However, I am from the point of trying to find alternative solutions. I have been on almost every med there is with no sucess. I have been on...
I have to agree with everyone. Get your iron and B12 checked. In the mean time, start taking a multi vitamin. Some on here might say that it is hard for someone with CD to digest and absorb the...
Sorry I am a guy but I had to read the thread. Dreamer what meds are you on? It could be a side effect from a med. Right now I am on Humira and have really bad eczama from it. One of your meds can be...
I am also doing Weight Watchers so I am not eating a lot of sugar. I just don't know if it because of eating more veggies and fruit or not. I haven't had a problem with them in the past. Roni...going...
I started going gluten free last week and I have noticed that instead of feeling better and going to the bathroom less I am getting more urgencies and looser stool. One reason for going GF was to try...
I have to say, when I heard the commercial, I turned to my wife and asked if I was hearing things. To me getting a colonoscopy is not winning anything....
I know I am a guy, but I know a little about PCOS as my wife has it. If I am not mistaken, don't they have to do an ultrasound on the ovaries to give that diagnosis. Blood work can not be the only...
I really like Randy's advice the best. Also, if you want to get a little even with them, email them links and posts about CD every day. Send them some pictures of inflammed intestines. :) Maybe then...
A lot of different products can be made on one machine. So Rice Krispies may be made on the same machine as say Frosted Flakes. Since they can't say with 100% certainty that there isn't any cross...
Flowery, I know Sniper was informed that you were looking for him. He has been a little sick but I am sure he will eventually reach out to you...just give him a little time....
Sending you good vibes for tomorrow. Have a speedy recovery....
I think that is the funniest thing....every time I had to give a stool sample I couldn't go. When I first started this flare I am in I was going 30+ times a day. We were thinking I had C Diff so I...
Thank you everyone for your responses. I did some internet searching over the past couple of hours. Although the low residue diet is probably to most logical thing to do I am probably going to ease...
Thanks Nanners. I hadn't thought of that and thinking about it now it makes more sense to start there....
For someone that loves food...I think a liquid or IV diet is not the way to go for me. I am leaning towards just a gluten free diet with sugar restrictions. I already try to aviod sugar as much as...
I have been flaring real bad lately and I no longer know what to do. I am just about out of options with meds and have been real depressed from this. One thing I really haven't done is altered my...
Andie, I wish I could say that I know what you are going through...but I can't. I also have had the DD from a young age. I started when I was 15. Missed my last 2 years of High School because of...
They made them into a movie? There is no way they will be as good as the book....
I just finished Left Behind by Tim LaHaye and Jerry Jenkins. I got it for free for my Kindle. I am not big on religion but find it interesting to read about and learn about. This book is suppose to...
I am a guy so I can't offer to much here. From what I do know, I don't think Crohn's can cause you not to have a period for such a long time. I would recommend seeing a gyn. Also, you could have PCOS...
He gave me a steroidal cream which has done a whole lot....
I have to say...on the off chance you don't get the meds...to be off all meds for 4 years is nuts and not smart. Then what if you develop the anitbodies to Remi within the 4 years. Are you alll of a...
I have to say that after looking at the website...I want to run out and do this. I take Prilosec 2x a day and I would love to get off it. My only concern is will it be a solution for the problems...
NiceCupOfTea, A fever can be either higher or lower. Yes most people tend to go higher but I have seen people that have a lower temp when they get sick. It can also be that Skip has a natural low...
Just wanted find out how your doing Eva Lou. I just got the results from my biopsy and the dr says it is eczama. I don't believe it and I think the dr is full of it. Not only did he take a sample...
There is a possiblity you have more than one problem. You might be bleeding from the GERD. What meds are you on for that? As for the IBD, have you had a colonoscopy yet? That is probably the best way...
While I do agree with you Somedude, I have only had inflammation in the colon. Luckly it hasn't spread anywhere else. Hopefully, it never will....
So I have been feeling lost and a little depressed lately thanks to this DD and I got to thinking. Humira isn't working and there isn't many meds left for me to try. I have been in a flare for about...
Not related to the blood....but I remember when I tried Lialda. I will never forget it. I only took 1 dose. about 12 hours later, I started having intense intestinal pain. I could literaly feel where...
I had the same question so I called the manufacturer of the drug....there is no pen available. It only comes in a syringe....
I just found an interesting article about Tysabri and it's link to cancer. http://www.forbes.com/sites/matthewherper/2012/01/20/tysabri-the-model-for-facing-a-drug-safety-crisis/ ...
I had a question for anyone on Cimzia. I saw from the video on the website that you have to do a fast stab with the needle into the skin. My question is does it have to be a fast stab or can you do...
Alistair, I am curious..why do you put surgery as a second option. I think that should be your last option. Also, you have forgotten clinical trials as an option. The only catch there is that you...
I honestly don't know what I am going to do..and I think it will be a long conversation with my GI. Humira isn't helping at all so it needs to go. I already did Remicade and developed anti bodies. I...
I know just how you feel. Those darn rashes drive your nuts, don't they. If you do some research, you will se that Humira, although treats psoriasis, can also cause it. I think that is what might be...
It is still made from corn, so I would guess it all depends how you react to corn. Corn syrup isn't as addicting to the body as HFCS so no worries there. I guess if your body can tolorate it...go for...
So glad your feeling better. In answer to your question, yes 6MP can raise your liver enzyme levels. My levels also got raised when I was on it and they never came back down to normal since going off...
Gotcha. So it sounds like meds aren't helping anymore :( Have you tried Cimzia yet?...
I am so sorry you are going through this. I see from previous post that you are on Humira. From you are saying about your colonoscopy, to me it sounds like it isn't helping you. Has the doctor...