It worked great on my joint pain, but I had an allergic reaction to it. I guess I am allergic to sulfa meds. Definitely start off small. I think the problem I had was that I was started off on a...
RALEIGH NC- I had similar experience as you with the very same dr. I saw him several times and he did several unnecessary procedures, tests that could've been avoided if he'd just read my chart,...
Whelcol tablets work well too. I took those for a few years. In fact, with the D I have been having lately, supposedly from pelvic floor dysfunction per GI dr. Whelcol had no side effects and did not...
I am so sorry. I have had similar experiences. It does make you depressed and feel hopeless. Best thing to do is stand up to him, chances are he will either start taking care of you correctly or walk...
I have had the same problem for years. Then I went to a Uro-Gyno. They specialize in gyno and urology issues. She diagnosed me with pelvic floor dysfunction. It is muscle spasms in the pelvic muscles...
I have had several bad doctor's. I live in the Cleveland, Ohio area. We're supposed to have some of the best medical care in the world. I've been to both major hospitals here in Cleveland that have...
Good point, kazbern. I did not even think about that. I should've, though....
InSoFla, Thank you very much for the links and suggestions. I've heard of the Paleo Diet before. Definitely something I will look into. Checking out these supplements too. I have had such severe...
SBFT is probably what I will get. I had forgotten all about that test. It's a good one to get. It's not nearly as expensive as a CT scan. This GI wants to do CT Enterography, but I said no. I have...
Thank you for the replies!!!! This is the 3rd opinion I have gotten. I have joint pain, high sed rate, high crp, and abdominal pain. I've never had a pill cam. Since I have had a resection in the...
Yesterday I saw an expert in the area regarding Crohn's Disease. He said based on my previous colonoscopies that I won't need biologics. That the joint pain is probably fibromayalgia, the abdominal...
Actually, biologics can make some gain weight. There's quite a few articles online about research results that do show weight gain. It doesn't cause it in everyone and they're not sure why it...
Hang in there. It sounds like it could be a fistula, but only the dr can tell for sure. I have a RV fistula and rectal inflammation. Even when the crohn's is controlled elsewhere I have this issue...
I have the same problem. I would love to juice veggies and fruits. It is time consuming, though. Definitely something to try. Juice veggies that wouldn't bother you is a good idea. I can only have...
So, I received an email from the landlord. They said the mold test results came back as black paint. They said black paint from the concrete of the wall from original construction. However, they...
I did contact the health dept. They had them pour bleach on it and then mailed them a ltr stating the mold issue has to be resolved by 4/16. However, they said nothing about them fixing the exterior...
Well, met with the attorney today. Basically, he will represent me at the Rent escrow hearing on 4/13/12 for $250.00. He said it's highly unlikely that I can get them to pay for me to move to another...
Also, I got suspicious when they wouldn't answer my questions regarding who pays for med bills, moving, transfer of utilities, etc. Then, when they gave me 2 days to leave apt so they could fog it....
Thanks, Ides. I have no problem with any of my posts regarding the mold issue being shown in court. Thank you for the advice, though : ) I can sleep on my sister's sofa, but have to come back to my...
Thank you all for the replies. Here is an update. The landlord wanted me out of my apt, but would not put me up in a hotel, would not let me view the unit they want me to move to, wouldn't answer my...
Thank you both for your replies. In Ohio, where I live, the tenant laws stink. According to the attny I spoke to I have to put my rent into escrow until this is resolved, either in court or by them...
I have Crohn's Arthritis and it can be so painful. It comes and goes for me. My Rhuemy told me that it will be under control once the Crohn's is under control. Although, no matter what meds I am on,...
I live in an apartment where my window has water pouring in through it and the ceiling for 5 months now. It's due to exterior issues and the apt mgmt has been saying it will be fixed in 3 weeks for 5...
See if they can add at least 1 mg Folic Acid (it's by prescription) to your treatment. Sometimes these Sulfa meds can deplete us of Folic Acid....
Find a new doctor. He's not concerned about your health. So much of our disease is based on how we feel. We know our bodies and know when something is wrong. Just because nothing shows up is not a...
bump!...
I gained 40 pounds while on it. Gained weight too with Cimzia, but not as much....
Great subject matter! I'd love to see the video when you are done. I have been told many things by many doctor's when they don't know what's wrong. My first GI dr told me to "stop overreacting...
I run into the same thing with Cipro and the dr's. No one wants to put me on it long term for the fistula. However, it's the only thing that keeps my fistula in check. When on immunosuppressants I...
Thanks for sharing. Very interesting : )...
It sucks having these fistulas. They're difficult to treat. When I was on Cimzia my fistula kept flaring up, I'd go on a round of antibiotics (cipro), it would go away, then a couple of months later...
Good luck! I hope you get answers soon....
Chiba- Thank you for the supplement suggestions. I will look into those : )...
I'm so sorry you're going through this. These dr's who treat Crohn's Disease should be able to get us in asap when we need it. They should promptly call us back too. It's ridiculous that when we need...
Bammer- Thank you for letting me know that your cousing w/ Crohn's takes MTX for the joint pain. My GI said it is ONLY used as a last resort in Crohn's and for bowel to bowel fistulas. That it's not...
Good point! Disability attny definitely the better option : )...
You could contact your former employer's HR dept or the ins co directly. I would think you'd be able to file and keep the benefits, but I'm not certain. I feel for you. Sending good wishes your way....
Thank you for all of your replies. I have decided that to find a good dr I am going to have to interview them. I've got a list of questions I will be asking each dr. If they don't pass then I move on...
Thank you for the replies and support. Good idea dfdavedf....I live outside of Cleveland, Ohio. I definitely would like to find a new GI doc. It is difficult to find a GI in this area that is not...
I had an appt w/ my GI dr today. She had referred me to a Rhuemy for treatment of Crohns' induced joint pain. Her words to me then were 'I am a GI. I do not know how to treat the joint pain. You will...
Wow! She's lucky to have a GI that is well versed in diet. That is very rare : ) Many more GI dr's s/b more educated and aware of diet and the effect it can have on Crohn's....
Kudos to you for being supportive. CCFA.org and Healingwell.com are the two best out there. You can find a lot of info on Healingwell just by searching other posts. Your girlfriends seems to be in a...
Try taking papaya enzymes after each meal. They help digestion and really help my acid reflux. I have gastritis and when that flares so does the acid reflux. You could get a script for acid reducer...
blankstare, I had the same reaction as you. I had my setons removed after 2 weeks because of the pain. It ended up that I have pelvic floor dysfunction (muscle spasms) and the setons caused that to...
The surgeon should be able to determine if the bands can be removed. I'm not sure what the criteria is for having them removed. I had mine taken out because it was excruciatingly painful. I have...
I'm not sure what that could be. Definitely mention it to your doctor. Good luck....
that's funny!...
I thought this was interesting. http://gma.yahoo.com/endometriosis-tied-higher-risk-crohns-colitis-000808619.html...
It took about two weeks to help my joint pain. Unfortunately, I had an allergic reaction and had to stop taking it....