Hey everybody! It's been a while since I posted on here. Since my last post not much has changed as far as the Crohn's disease. I am still flaring and waiting for financial assistance for the...
Thank you all for sharing your experiences! It's good to know that I am not alone! It's really frustrating that the medicines that are supposed to help cause you to be sick as well. I am wanting to...
I totally understand! I am also getting the eyes popping out my head feeling as well. I talked to my doc a little while ago and he said to try lowering the dosage to 30mg. I am hoping that will make...
Thanks for the response! I could probably handle not getting sleep much better if I didn't have such a severe migraine. I am gonna ask my doc if I can lower my dosage a little. Like I said, I don't...
My doc put me on 40mg of pred to taper down through the course of two months. I am having severe side effects and was wondering if any of you have had a similar experience and if so, how did you deal...
My gi said that he was gonna check and see what financial help he could get for me, but he's on vacation for the next two weeks so I am trying to see what info I can come up with in the mean time. I...
I finally got into my new gi. He says that I need to be on humira or cimzia injections. The only problem is that the county health maintenance program I'm on wont cover them. He said that they cost...
Cudos southpaw! Wish there were more men like you!...
Thank you all for these posts! You have made me cry,both in joy and sadness. While I have found that relationships have been impossible for me probably because I haven't found the right person. All...
And state is supposed to be STAT. hehehe...
Distils was supposed to be fistula... stupid spell check. LOL...
Andi, I have the same probs, but can't offer much in the way of answers as I too am newly diagnosed8/11. I do have a history of numerous kidney stones as well and have had occasions where I couldn't...
Well, know that you're not alone. I have been acutely flaring on and off since May/2011. I finally found a gi that volunteered his services through a program here called We Care. However, since then...
Hey Andi! I have been having the same problem w/ this flare for the last day and a 1/2. I have been using gas x extra strength and taking the Max amount. I wouldn't say that it's cured it, but I...
Hi grin! Thank you for your post and being so honest. I am new here. I was just diagnosed 8/11, although I have had symptoms since 2003. I have yet to find a definitive treatment that works for me,...
I read some of the posts on perianal skin tags, but I was wondering if CD also causes skin tags on other parts of the body? I have them on my legs and hands and have never had a doctor able to tell...
Oh yeah, I still think that 14k likes is not nearly enough. ;•)...
Oh, ok I didn't know that. Thanks for the info! I just wanna make sure that this disease is getting the attention that it should get!...
I went to CCFAs page one Facebook and found it rather sad that on 109 people liked it. It's a good page that keeps you informed of events. Please take the time to check it out as Facebook is the...
Thanks gumby! BTW... I am wanting to make my email address available on my profile and invite people to private conversations,but can't figure out how to do it. I'd appreciate help. Thanks in...
Well, I ended up going to an Urgent Care Center yesterday. They were pretty nice. The doc agreed that I was in the midst of a nasty flare. Thankfully she put me on solumedrol, flagyl, cipro and...
Sorry about breaking the rules....
I am on a clear liquid diet and have contacted WWW.ccfacommunity.org and they don't offer any hotlines and the nearest support group is over an hour away. Ugh... I don't know what to do....
(Yes, it is against forum rules. Sorry!)...
I am extremely scared, frustrated and confused. I am new as I am sure some of you know. I am currently having a really bad flare. I went to my gp last Friday as I am waiting on a referral to a new...
Thanks kazbern! I will ask my doc about the vitamin d. I have already left a message for him today, but I have a feeling he's going to tell me to go to the hospital. He seems to be getting tired of...
When I was dx w endo in '01 I had a laparoscopy and another in '03. I finally ended up having a full hysterectomy in '08. I didn't know that I had CD, so I thought that resolve my issues....
I have been trying really hard to watch my diet, although it's been difficult to change some old habits. I do take a probiotic every day. As far as vitamins, I was just told not to take any vitamins...
I am 31yrs old and I was diagnosed with Endorsement in 2001 and CD 8/11, symptoms of CD since 2003. I havent had any verification from a doc that they're linked, but then again I haven't found a doc...
Hey everyone! I thought I would try and draw on advice from those of you who have more experience w this nasty disease. I have real problems in the morning dealing w this disease. The D and cramps...
Since the go that did the colonoscopy was a volunteer, he didn't really take time explaining the disease and meds and other issues associated with it. I have been sick since '03 and even though I...
I am on Vicodin 7.5 for pain. I have asked my doc to try me on anything thats like Lialda, but maybe it wouldn't have same side effect. He just blew over that question and said he'd put me on the...
Thanks for commenting. As far as the GI is concerned, it's the health plan I'm on holding things up. My primary doc has to send the referral to them for approval before. Can get the actual referral....
Hello... I am new here. I am 31yrs old and I was just diagnosed with CD in August '11, although I have had severe symptoms since '03. I was so sick and didn't have insurance so I ended up going to a...
Hi everyone! I have just recently been diagnosed with CD, although I've have had symptoms since 2003. Due to insurance issues, I've lost my GI and my primary doesn't seem to understand or care about...