It has been a while since I posted as things have been going well for my son but of course the crohn's has risen it's ugly head again and we need some help. My son has been on Humira for over two and...
Hello, Congratulations your little boy is beautiful. Hope you are feeling well....
Hi Betty Sue, My son had a small bowel resection when he was 16 on an emergency basis. I do recall that he had an epidural which helped great with the pain. Also, I believe that it could only be in...
Hello, My son was diagnosed with a sinus infection today and prescribed an antibiotic. Under normal circumstances he takes Culturelle one capsule daily. However, he has a C-Diff history and has not...
Hi Gumby44, My son had the same thing happen to him once he got down to one a day his symptoms returned so I just found his paperwork he restarted with one cap 4 times a day for fourteen days, 1 cap...
Hi, My sons GI Doc suggested it to us recommending that he should see the Derm once a year. He also has taken 6mp and Methotrexate which I think also increase the risk. Waiting patiently for the...
Hello, My son is currently on Humira and went for a skin check on Tuesday, they took three biopsies on what they considered to be suspicious moles. Out of my mind with worry waiting for the results...
Hi Betty Sue, My son had a stricture in his terminal ileum that caused him a bowel obstruction, it was after he had a resection he was diagnosed with crohn's. Never had any stomach pain or diarrhea...
Hi Chronie 25, Sorry to hear you are going through so much. Mass General has a great IBD Center. I believe that they do Fecal Transplant there and they conduct several clinical trials. I also live in...
Hi Beave, Last colonoscopy was last September, one scheduled for December. Called on call GI this morning and told me to call his Doc on Monday where he has no pain and no blood clots. Just had...
Hello, My son has been doing really well on Humira for almost a year. At first he was using it in combination with Methotrexate for six months and had to come off Methotrexate due to severe...
Hello, My son was taking Methotrexate 25mg once weekly with Humira. Everything was fine for about six months, then he started getting a severe headache for about two days after taking the dose. Doc...
Hello: Thank you all for getting back to me, I am going to give the G.I. Doc a call today before we head to the Dentist. He takes Culturelle everyday so I hope that will help. I am just so worried...
Hello, My son is complaining of pain in his wisdom tooth. Will be calling the Dentist in the morning for appointment. I was just wondering if any of you guys had a wisdom tooth removed while you were...
Hello, My son has been on Humira since November '14, he uses in combination with Methotrexate seems to be working well for him so far. Gained weight, more energy and eating basically whatever he...
Hi Christina, Glad to hear your son is getting stronger. There is a forum for Ostomies where I am sure you could post and get some good advice about his stoma, fortunately my son didn't have to have...
Hi Christina, How is your son doing and how are you holding up? Hope he is getting better and stronger. Hopefully the funding for the medication is getting sorted out for him as well. My son is in...
Hi Christina, How is your son doing? Make sure before you leave that your GI Doc has a plan for maintenance meds for him. They may have removed the diseased area of bowel but as you and I know too...
Hi Christina, How is your son today? Hope things are better for him. That was awful what happened to him the night before. I hear about the hospitals and the NHS in the UK all the time from my family...
Hi Christina, Didn't realize that you were in the UK sorry, it is just so wrong that he may not get his medication and I just feel so bad for him and you because you guys have been through so much. I...
Hi Christina, Glad to hear your son is doing better, it just seems so unfair that you have to worry about funding for Humira on top of trying to get your son back on his feet. I don't know what kind...
Hi Christina, I am so sorry that your son and your family are going through so much. My son had a small bowel resection back in 2011. He was put on 6mp and Asacol as maintenance meds. In 2014, severe...
Hi Skytrooper82, Could you ask them about the combination of Humira & Methotrexate, I believe the risk for cancer is still there but less than if combined with 6mp or Azathioprine. That was the...
Hi, My son takes Humira, Methotrexate and Folic acid since November of 2014. Prior to that he had been taking Asacol and 6mp. Since he started in November he has grown back a full head of wavy hair,...
Hello, My son does not take Remicade but takes Humira and Methotrexate. However, when he was making the decision as to what combination he would use his Doctor said that they are not using 6mp with...
Hi, My son is on both Humira and Methotrexate since November. Early days yet but he seems to be doing well on both with no side effects. Before he started in November he was having very little...
Hi Pez927, My son started Humira in November after 6mp and Asacol no longer were keeping him in remission. He uses it in combination with Methotrexate. It has been working really well for him he has...
Hello, My son had one behind his ear a while back and we just happened to have an appointment the next day with GI Doc, she said it was a swollen lymph node he had a zit close by so that is what she...
Hello, Gumby did you do a taper? My son took a second round of Vanco 4 times a day for 14 days and then did a big taper which took about another 4 weeks or maybe even longer. I think the key is the...
Thanks so much for the replies it is always such a help to talk to people who are dealing with this horrible disease. My feeling is that his crohn's is aggressive as it is only three years since he...
Hello, Just wondering if any of you guys have success with Humira alone or is it necessary to use it combined with Methotrexate. The plan was that my son who is 19 start the combo in the coming...
Hello, My son started college this year and we made an appointment with the disability office before the semester started. They looked for official documentation from Doctor or hospital confirming...
Hi: My son is due to start Methotrexate and Humira in the next couple of weeks. Were bloods being monitored on a regular basis? The experience you and your family had is very concerning....
Hello, My son has taken 6mp for over 2 years and has had some hair loss nothing crazy though only seems to become noticeable when his hair starts to grow in. Good luck I hope everything goes well for...
Gumby My son has had a resection it will be three years in October. He had a colonoscopy in December and the Doc said that they were able to get through the anastomosis no problem but after that they...
Hi Beave, His current treatment is 6mp alternates between 75mg and 100mg nightly and he takes Asacol HD 800mg twice daily....
Hi, Haven't posted for a while but I really need some advice from those of you who have had a pill cam. My son is now 19 and doing well, other than having two episodes a few weeks apart of bleeding....
Hello My son had taken 6mp since February 2012. Before he started it he had to be tested to see if he had a specific enzyme in his body that would enable him to break it down. Once he started to take...
Hi KaitD, I don't have much advise for you but my son went through a horrific time with C-Diff. Flagyl and rounds of Vancoymycin including long tapers. Felt hopeless as we were doing everything that...
Wishing you the very best of luck you deserve a break you go through so much....
Hi Mr. Positive: My son had a resection in October 2011. When he had a colonoscopy a year later there were some ulcers at his resection site (terminal ileum). He was put on a 6 months of entocort and...
So glad that your daughter got to the Doc and that all is well. Take Care....
Hello Tom, This also happened my son who takes 6mp and of course the worse case scenario came to mind right away also. Fortunately for us we were meeting for our scheduled appointment the next day...
cookie38, How long in between surgeries?...
Hi Aussiegirl2008, My son's resection was also at the terminal ileum . Although, he never had real bad stomach pain or diarrhea (until he finally had a bowel obstruction) before he was diagnosed he...
Oxycodone but he only took them for one day. I do remember the Docs saying that they can slow the bowels down and he wanted to get back on his feet quickly so he just put up with what discomfort he...
Hi, My son had a small bowel resection back in 2011 due to obstruction at which time crohn's was diagnosed. Pain after surgery was well controlled with an epidural for I believe seven days. After...
Hi Vixen, So glad to hear your son is doing well. As a mother of a child who will be going to college next fall I found your post very encouraging. When my son was diagnosed at 16 he was so sick we...
Hi Bullz, As you are aware now there is no cure for crohn's yet. My son was sixteen when he was diagnosed and from the start I got him to read as much as he could about the disease and to understand...
Hi Ashley, My son who is 18 has taken 6mp for almost two years now. I too was so scared about him starting the drug. He started off at 75mg but after Promethus tests to check his therapeutic level...