Thank you Scaredy Cat for your response. We will probably go on and try the generic and see how it goes....
My son was just prescribed Lexapro for anxiety/depression. He is 18 years old and also has Crohn's disease. We are undecided on wether to ask for the brand name or take the generic. I have read many...
Thanks PV. That is so great that your hub has done so well! You guys have your act together! I will definitely look at the bee propolis. I also want to try some alternative anti inflammatory...
Hu1988.....I knowmhowmatressfulmthis has to be for you, but as has been mentioned above, you just need to find the med that works for you....kind of trial and error. My son also tried many meds...
Thanks so much for your responses kiri and PV. I think his doctor is more concerned about the c-diff than his crohns so we will try to be patient and hopefully can start again as soon as he is done...
My 17 year old son, one month post resection surgery was just diagnosed with c-diff and is on antibiotics. He is on remicade every ten weeks and is due for an infusion this comming week, but now his...
Great thread....I've been wondering that myself. My son was diagnosed with CD 3 years ago at age 14. He has gone through a bunch of meds ending in remicade. They said he was in remission as per his...
My son had an ileocecal resection three weeks ago. All was going fairly well until last night when after dinner he had bloody diarrhea. Tonight was the same but much worse. He never had this before...
Se should be getting blood work each time she goes for her remicade infusion so this should give you an ongoing picture of her inflammatory markers and Hgb levels. The other thing that I would have...
Thank you so much ChronieToo and Dingleeire....you have helped me so much. I have been in a total state of anxiety, wondering if I'm doing the right thing, questioning everything that has been done...
Dingleerie, I forgot to ask you if he is on any dietary restrictions? I ask because my son has had to eliminate so many foods from his diet and he would really love to be able to eat out more,...
Thank you Dingleerie. I'm sorry to hear that your son is having issues after his resection. How old is he? Why did he have to have an emergency surgery? Have you researched fecal transplants for the...
My 17 year old son is scheduled for a resection around the IC valve but I am worried because I am not sure it will solve his problems. Here is the recap.....diagnosed in 2010 with Crohn's and was put...
It is so hard to see our kids in so much pain. Hopefully they can get you in to see the GI SOON. Have they checked his calprotectin levels? I think it's pretty sensitive and was done for my son...
Oh dear, Digleeire, it truly is neverending. It sounds like you and your son have gone through alot. I keep thinking it's just a matter of hitting on the "right thing" and each time they start with a...
Thank you ALL so much for your input, I feel confident that the Doc knows what he is doing, but every once in a while I get a wave of doubt. Being able to communicate with all of you and hearing your...
just a quick question. My son had a colonoscopy in January 2012, It showed he had a stricture and were not able to go into his terminal ileum (where he had his original problem).He was started on...
Wow, thank you for giving me further views on this issue. Bane, you are so right about making sure I allow my son his input and decisions. I feel that we have done this, but I know what a big...
Thank you so much for sharing your experiences and for your suggestions. When the doc first said surgery I was shocked...never thought it would come to this. But after hearing your stories and words...
Hi all, I am the mom of a 17 yo boy who was diagnosed with Crohn's when he was 14 (RA when he was 10). He has been on prednisone, pentasa, 6-mp, and remicade. His symptoms are under control as long...
I am so sad to hear all that you and Ko have gone through...so many worries. My son was diagnosed at age 10 with arthritis and at 14 with crohns (probably had CD since age 10 in retrospect). Fatigue...
The doctor just said to go from 75mg to 50mg and then didn't say anything further. He's already taken the 50 for one week so maybe I'll go to 25 for a few days and then will stop. But I think you are...
My son is about to start Remicade in a week and he has been on 6MP for a year. We have been weaning him off the 6MP only since last week, Is there a time period one should be off the 6MP before...
Thanks Kazbern, gumby, and Jenna. I will ask the gi again about the stricture or if it is one. We did talk about doing the 6mp along with the remi and he will ween off the 6mp to minimize side...
Thanks for your response Kazbern, I think that you are right about his growth being the most important at this time. We saw the GI today and he said the biopsies from the colonoscopy all came back...
My 16 yo son has a GI appointment today and the doc will probably recommend Remicade and I'm not sure if it's the right thing to do. The reason he suggested remi is that a recent colonoscopy showed...
My son who is 16 yo had a colonoscopy yesterday which showed a stricture (which meant he could not see past the cecum which is where his disease has been most active). The GI said he would probably...
Hi jhicks, My son suffered from weight loss and absolutely zero appetite for over a year. Recently he was prescribed an appetite stimulant (it's actually an antihistamine) called Cyproheptadine...