Thanks to you all for the info. You've all helped me to better anticipate what to expect. My mom is planning to come to help my husband with our two young children and I'm trying to figure out how...
It seems I may be facing this surgery in my near future depending upon what my next colonoscopy shows (scar tissue or just inflammation). Doc thinks we're dealing with scar tissue since no meds have...
Thank you very much, InSoFla. That is very helpful. :)...
Sorry. I just now got a chance to come on and see the replies. 2 young children and a husband recovering from minor surgery have limited my internet time for the past day or two. THANK YOU all so...
Surgery or Remicade? My doctor has said I can try Remicade but he said the response rate for those who didn't respond to Humira is <30%. The last thing I want is surgery but my last small bowel...
I've been on Humira for a few months now and have seen next to no side effects. I had some bruising at my latest injection site, but nothing to be concerned about. Only thing I really noticed was...
This may be a little farther than you'd like but Dr. Brian Behm at UVA in Charlottesville, VA is awesome. He's pretty much the go-to Crohn's guy around here. People come to see him from West VA, PA,...
Thanks for all of the great tips! I got an email from my nurse and it sounds like the insurance co. doesn't care (I didn't think they would... they've been pretty awesome so far), so it looks like...
Thanks for all of the info everyone. I had my appointment yesterday and they had to draw labs to test for Hep B and I also had to have a PPD placed for the TB test. Currently, my nurse is getting...
also wanted to add that when I was tapering from my steroids, I started to flare but it took a few days for that to happen....
I can't say for sure, but it seems unlikely that the taper would cause a flare that quickly. If I read your post correctly, he took only 17.5 for the first time yesterday and by last night had pain....
It's nice to know the Humira is working for you. I hope I'm that fortunate. I can't imagine letting MY husband give me a shot. He's not real sure-handed with things like that and it would make me...
I was part of a clinical trial for Pravastatin. It is typically used for high cholesterol but they were finding it had anti-inflammatory effects in high doses. I completed the trial and had a...
Hello! It's been a while since I've checked in. I've been on Imuran for at least 6 months now and thought I might be close to remission. I had a small bowel follow-through a couple of weeks ago that...
Sad they just up and deleted the group! I'm a former Farmville addict. I'm now addicted to The Sims Social. :)...
Oh I have to second the comment about bringing a book and a sweater or fleece. I've had one SBFT and was smart enough to bring a good book but didn't bring anything to warm me up and it was COLD in...
Thanks to everyone for the input. I had the fillings done yesterday and lived to tell about it! :tongue: It was super easy. They did put the topical gel on to numb the surface before doing the...
Tooth, you were beyond helpful... thank you! It's great to hear from a dentist. You've put my mind at ease and now I feel like I can feel good walking into the office tomorrow to get this done. Now,...
I have been on Imuran for 3 months now -- gradually walked up the dose every couple of weeks. After the 3rd step-up in dose, I noticed nausea and headaches creeping in. I had bloodwork done every...
Has anyone on Imuran/6MP or Remicade, etc had dental work done? I'm supposed to get 2 cavities filled tomorrow. They had to get an authorization for work to be done from my GI. He signed it and told...
Hello! I was actively flaring when I got pregnant with my son. We got pregnant the first month we tried and it was a very healthy pregnancy... I actually went into temporary "remission" during those...
Hello and welcome! You've already received some great, informative answers. I just figured I would add my 2 cents. :smile: Since I was diagnosed in Jan. 2010, I have flared EVERY month right before...
Hi AK Cat. I'm so very sorry you've been suffering so much. I was actually diagnosed with Crohn's 1 year after having my gallbladder removed (and a subsequent ERCP to remove stones from my blocked...
It just hit me! This flare started shortly after I started taking the generic Entecort. I know it's a long shot but hmmmmmm..... That's the only thing that's changed....
I'm so sorry you're having such a hard time. I second the Diflucan suggestion. If you see your doc, they may prescribe that for you. The peeing a lot and pain in your back should definitely be...
Thanks, Nanners. I needed a hug. :-) I actually have a standard follow-up appt. with my GI on Monday so it works out rather well. I have never tried Immodium since I've been diagnosed. I was thinking...
Oh man. I've been flaring for a week or two now and it's been awful. This is actually the worst I've been since I was diagnosed. My labs looked great last time and indicated the Imuran was starting...
I'm in central VA near the epicenter. We sure felt that trembling here! Have also felt a couple of aftershocks, the most recent being last night around 1am. Not a nice way to wake up from a dead...
Thanks to both of you for the kind words and support. clonehead, I'm glad to hear that the doctor decided to do something about that worthless nurse. You kind of touched on one of my frustrations...
Thanks, Stripey. I realize now how whiny my post must have sounded. I realize that many, if not most doctors are like yours -- very difficult to get simple answers from -- have to make an appt, etc....
I guess it wasn't much more that a week ago that I was thrilled that my blood tests showed the Imuran to be working. Problem is, my headaches, nausea and aversions to MOST foods has returned. I...
Thanks everyone!...
Scott Extra Soft Mega Roll - I dunno how much we use. I loose track because I have a 3 year old who uses WAY too much when she's not being monitored. /community/emoticons/eyes.gif...
I have been on Entocort for 1.5 years and find that I am typically colder than usual -- it's usually during the day with me. I also have a space heater under my desk at work! :) I tried weaning from...
Have only been on Imran for just over 1 month now. My 2 week blood work showed my CRP to be elevated (as always). Just got my 4 week bloodwork back and didn't anticipate any change in my CRP yet but...
I'm sorry you're having new flares. I hope it gets better for you soon!...
Do you have CD in your esophagus? or is this intestinal CD somehow causing a sore throat?...
Thanks for the encouragement and I'm so glad you're doing well! I hope it continues this way for you! /community/emoticons/smile.gif ...
Me again! Since my doctor told me I could space my dose out, the headaches and nausea are enormously improved! Now, I have another concern. /community/emoticons/cry.gif Since I started Imuran, I've...
I would imagine they will allow her in the area where you change and do paperwork, so she can wait with you. I doubt she will be able to go to the actual treatment room though....
Ugh. Another headache this morning. Just took some meds.... hope they help. The nausea is back off and on too. Very little appetite. Overall, other than the headaches, the side effects have been...
Hi there! I was scared before my colonoscopy as well but I agree with Aces. The procedure itself was a piece of cake. The drugs they put into my IV were very fast acting and my apprehension just...
Thank you! I was thinking (HOPING) it would get better after I adjust. I still have one more little step up in mg coming in 10 days. We'll see how it goes, I guess. So far so good....
Thanks.... I'm not feeling anything other than headaches. No fever, aches, chills, general malaise. Nothing like that. Just had nausea when I first upped the dose but now that's much better. Only...
I have been on Imuran for 2.5 weeks now. Started out on 50mg-- no side effects whatsoever on that. Been on 150mg for 3-4 days now. Had some nausea for the first 2 days but that has already improved....
Praying for you Gail!...
Oh, I'm so sorry. I understand about not wanting to go into the bathroom at the office. I work in a small office with 3 other guys and everyone knows when someone goes into the bathroom and for how...
Wow.... technology sure is cool. :)...
Good luck, Nanners! Hope all goes well! :)...
Hi there! I just wanted to throw my experience in there. I have just started Imuran after being on Budesonide (Entocort) for 1.5 years. My doctor told me that Entocort can put some people with mild...