Keep experimenting! And keep asking questions (both on here and with WOCN nurses)! The learning curve here is steep and knowledge and experience will help a lot! :) Best wishes!...
I also had shingles a while back and was warned about possible nerve damage. Luckily, seems to have abated for me. Best wishes!...
Do you use a one piece or two piece? If two, and the bag is still in good shape, you can reuse it if necessary....
I've done the very same thing several times with my nails on the bags. I use a two piece, so I just changed out the bag. Do you use a two piece? If you do, if necessary you can just reuse the bags if...
Sorry JS44. None of that is true. Such a terrible attitude! I've looked imto martial arts myself and you can find many ostomates who are successful in the sport. Many use a supportive belt and/or...
There are lubricating deodorants thst will not only help with the smell but help ease the movement of the output to the bottom of the bag. Though as Clo mentioned, baby oil works and is probably...
Tbh I kind of agree with Shaz. Ive had my ostomy for 7+ years and can count in one hand the number of leaks I've had both in and out of the house. Even in the relatively short amount of time I've had...
Throwing a quick thought out there... I was once offered hyperbaric chamber therapy. Have you given any consideration to that?...
Tom gave a really good detailed description of his process. Mine is very similar but I stand in front of a full length mirror. Some of the best advise I found when I was new to the ostomy was on this...
I had a grascillis flap procedure for an abscess in June. I'm about 9 weeks post-op. I still have blood coming from the 'hole' above the flap. Nurse calls it a bloody return and says it's a good sign...
The muscle has completely recovered. For me, there's no difference from before surgery as far as amy kind of limitations. The scar is a bit gnarly though. It's a bit over a foot long. First time...
For a couple weeks after the muscle removal I was limping. The leg was more painful than the butt after surgery without a doubt. I was told the gracillis muscle is the muscle you use to cross your...
Originally I had a temporary loop ileo as well. But the disease got progressively worse with abscesses and fistualae. Got the permanent total proctocolectomy. Painful but very happy I did it. In June...
I always change in front of a mirror. It definitely helps in seeing all of the angles. That is unfortunate that you have to have the stoma nurses approval. Yes, I would be much more assertive able...
Thanks to you both for the replies! I really really appreciate it. Yeah the pain gets really bad. I was at a doctors appointment (unfortunately, not one who would be able to give me any answers) in...
Thanks for the reply Bane! There doesn't seem to be any source for my gas. I've woken up in the morning with it. As my surgeon told me, the gas pains just come with the territory of the surgery. But...
I've never used the Sure Seals with a one piece but I put my Sure Seal on while the bag was on. I never cut it but just pulled the bag through. A lot of people seem to have trouble figuring them out...
Definitely try the moldable Synergy. Convatec also has the SUR-FIT Natura Durahesive Moldable Convex Wafer. It's also moldable and 'turtlenecks' up to hug the stoma. The durahesive part of it is made...
So after having my surgery (total proctocolectomy?) , took everything out, sewed up the rectum and permanent ileostomy, I've been having severe gas pains. They started two days ago, 3 weeks after...
So after having my surgery, took everything out, sewed up the rectum and permanent ileostomy, I've been having severe gas pains. They started two days ago, 3 weeks after surgery. I've never had gas...
Hi there! This is not solving the problem, only a quick fix. There are products you can place in your bag that will thicken up your output. ReliaMed Ostomy Pouch Absorbent Tablets and Cymed Iles-orb...
I wish you the best with what you're going through! I was on Remicade for approximately 6 months when I was diagnosed with thyroid cancer. Once the cancer was found I immediately went off it. No...
Hi smile! I do not have pelvic floor dysfunction but instead Crohn's. I am having surgery very soon but currently have a temporary ileostomy with all of my insides still intact I have had the ostomy...
And operatic, just to clarify, do you use it specifically for Crohn's or for another illness and just benefits your Crohn's? I also just thought of a question. Is MM used as a treatment for pain in...
When I had my big flare, everything hurt. I couldn't sit up in bed, couldn't swing my legs around and physically couldn't stand up from sitting. I remember that specifically well. I was in the...
Hi not creative! I have had zero problems with anything GYN related and nothing in my medical background has anything to do with this. His comment about the tubal ligation was kind of off-handed, I...
Hi ladies! Thanks so much for the replies. I agree that anything short of a hysterectomy is no guarantee. I even know someone who gave birth after having her tubes tied. His comment about the tubal...
Hi all! It's been quite a while since I've been here dealing with this and that. I currently have a temporary ileostomy since 2010. I'm not going to go into the details because it would take forever...
Ah yes, I'm so proud of you! I can only imagine how you are feeling, too many emotions! We'll all be here for you for th both before and afyer! Definitely make sure to pack your bags well before....
Big thanks for that number! I'll take a look at that avenue if I need it. Thanks, I really appreciate it!...
My biggest worry with you is that you are so soon into your temporary ileostomy. I really don't want to jinx anything, but things can change. You've only had it for six weeks. Please just remember...
CrohnieToo- I seriously have to thank you on this information regarding lung issues and Remicade. This is the first I have ever heard of it and will ask my GI about it ASAP. Thanks so much! asc- That...
I feel for the both of you, as you obviously want to overcome this obstacle but it seems so daunting to overcome. Everyone else replying has given you great information. There are different options...
Oh that is so wonderful! So proud of you and also a little jealous, too. Tehe What kind of thoughts do you have on for saving up on that something special? Are you considering something like a...
Ides- Much thanks on the info regarding Aethena. Might not be the best, but it's good to know everything! I actually always mix SSDI and SSI up. SS has accepted me as disabled and unable to work and...
CrohnieToo- Thanks much for they reply. I honestly have a ton of health problems with tons of doctors and none of them have a clue as to what is wrong with me. That's why I really like when other...
Within the last few months I had the bloodwork to check my antibodies to Remicade. I don't have them, awesome! :) However, we just found out that my insurance will not cover the bloodwork. I've got...
By the way, just wanted to let you know that you don't HAVE to have the normal Crohn's symptoms in order to have Crohn's. In fact, you don't have to have ANY of the normal symptoms. You don't have to...
B'Dereh, you said it perfectly, "...the worst part of having a stoma was, very simply, being afraid of something happening." I completely agree, it is all about thinking of it as a practical...
Oh, NCOT, I'm so proud of you! You've been on the misery train long enough, it's time for you to get some relief! I really am so happy for you. We will all be here for you while you get through the...
vallerygirl, where are you guys located? I feel so desperately feel your situation. Have yoy tried looking up some videos on YouTube? I know there are some videos of young boys and girls with...
fairweather- I have it and it can be EXTREMELY painful. The pain is severe to urinate from the alcohol in the urine to tough the sores. The sores can completely dominate the vaginal area to the point...
Almost all of my Crohn's is extraintestinal manifestations. The only part that isn't, is my perianal issues. Besides the perianal, I have no problems w/ c or d and there aren't any specific foods...
I'm looking for one of those funny lines that say "We put the..... in.......", to insert here. We all understand how difficult something like supplies can be for someone that just had surgery and...
Do you simply push the food around on your plate or do you actually get a forkfull and pretend to eat? I have yet to master this or had a serious situation where this has come up. In the past, I've...
Quick question: I am not trying to be suggestive, but can your insurance company penalize you for ordering lots of different supplies when they cover everything but the co-pay?...
arox- we're glad to help a fellow ostomate in need! I cannot imagine going through what you are, it is incredibly unethical. You mentioned you are currently using Coloplast. Would you be up to trying...
I was in a similar boat before. I was in the midst of cancer treatment and the like while I was dating a man who I really believed to be the one or close to it. Unfortunately, I had to have an...
Before my ostomy I always slept on my stomach. Unfortunately, I cannot do that now. How do you guys do it? You're laying directly on your stoma and the bag; where does output/gas go? I can only...