Ides, I see this post is older but I was wondering how you are doing with the PAD? I also was diagnosed with it according to my ABI tests. I do not have any pain when walking at this point but am not...
Just curious if anyone has heard of this Mongersen drug or has anyone been prescribed it? I was reading a little on it....
I had no sign of Crohn's by way of colonoscopy. I had a small bowel follow-through that diagnosed me with it. Malinda...
I am actually down to 12.5 mg at this time. I know being on this drug causes your immune system to be no good and I am careful to wash my hands and take precautions. Thanks for the response....
I am wondering if it is safe to get on amusement park rides while being on prednisone? I guess I see them as maybe an adrenaline rush and did not know if that was something that should be avoided?...
Just curious how many have the disease in the terminal Ileum and are still surgery free? have just been stressing on what the future can hold and the fear of so many things that could go wrong or end...
Hi I recently was hospitalized from July 6 -9th and was given iv steroids for 3 days and then sent home on 40mg for a week 30mg for a week and 20 and then 10 but by 2 days into 10mg I flared and was...
I have been put on antibiotics for an infection and have been switched a couple of times from one to another and am now experiencing some diarrhea and feeling icky. I was diagnosed w/ Crohn's in 2012...
Thank you for your respenses. I am just a big wimp when it comes to trying a med with such horrifying side effects. Malshay...
I started Imuran 5 days ago and been doing some research on it and seeing that my enzyme is intermediate and I still was put on it makes my fears worse. How do I know if my bone marrow isn't being...
I am scheduled for a Agile Patency Capsule for Wednesday morning and I have to admit I am freaking out. First the dang thing looks huge and secondly I was told I have a stricture so what if this...
Hi I was just wonderimg if anyone here has had any luck with Pentasa alone with CD in the terminal Ileum? I have been away from here for a while due to trying to figure out who to see for my...
Hi just wondering for those who have strictures but have never obstructed or needed surgery...how do you keep it under control and if it is possible. I was told I have stricture in the TI and limited...
I was diagnosed in Jnauary. I realoly do not have bad symptoms. Like I said in my post I do have soft stools but usually only once a day. My abdomen is rarely in pain. I am currently on Pentasa after...
I had a colonoscopy done last week due to some rectal bleeding..that I now know is some hemmorids I have...ewww...But my GI performed my colonoscopy and this is the letter he sent me.The examination...
Does anyone have Crohns of the ti in the small bowel who has not had to have a resection done? Just curious I am not wanting that done unless absolutely necessary. Scared for one and another I cannot...
If this LDN works so great then why would the docs not prescribe it? That to me makes no sense unless they want to keep watching us all suffer. Just starnge to me....
Just wondering if anyone here is from Iowa or surrounding area?...
Thanks everyone..Kazbern do you have a stricture? I read a little about gluten free just seems so expensive is all....
I do have a stricture is it possible to be in remission with a stricture?...
Thanks all for your advice..:)...
YA it is usually once a day pretty much. But I do have a stricture so I think fiber is out of the picture. Not sure if there is anything else to try or not. But thanks for your response....
Is it possible to be in remission and still have loose stools? I was told I was in remission but I go to the bathroom once every morning and it is almost always loose....
So does anyone have crohns in the small intestine at theend of the terminla illium..not sure of spelling sorry.. but I am told I have strictures and many people can live with strictures on a low...
I had D last week like 3-4 times in the morning every day. Then yesterday and today it was just once this morning but no solid at anytime. It is wierd cuz I go to the bathroom once a day but it is...
Minnie he has me taking 1000mg 4 times a day of the pentasa....
I had a colonoscopy done in 2009 so my GI feels there is no need. I did have a small bowel follow through in January that diagnosed me with Crohns. But never any blood work or anything like that. He...
So I was diagnosed in January and put on prednisone taper. I was not put on a maintanence med. Then last week I tapered down to 10 mg and started having the D! I called my doc and he said oh that is...
I have been down to 15mg of pred for 1 week now and have one week left until I cut to 10. But today I noticed that my stool is getting more loose than it was this last month. My doc has only put me...
Well my son had his testing done on Friday and does have Chrons..:( Ver sad mom here. They wanted to start him on remicade and I refused. I did tell the doc that I know there are more mild treatments...
As a new member I may be out of line but understanding that there is no cure for Chrons..I have accepted that but as far as doc's doing all they can is contoversial. There is such thing as Insurance...
I was recently diagnosed with CD and have been on pred taper for over a month now and have had no D...Now I have my period and D! Is this normal even while on pred? Thanks...
I am now on my 5th week of prednisone..started at 40 mg/day for 2 weeks then 30 mg for 14 days now I am at 20 mg for two eeks then to 15 for 2 weks then 10 for two weeks then 5 for two weeks and I...
Amazing story thank you so much. No he has not been diagnosed but the first thing they asked was if anyone in the family has CD. Just scary to me I guess. My son is very active and plays baseball...
Is your CD in a certain area?...
Just wondering if anyone here has been able to maintain remission withou having to have surgery? Curiousity kills the CD..:) Mal...
I am a 38 year old mom of five diagnosed with CD two weeks ago and am started on PRED! My youngest son 13yrs old has had blood when wiping and had some blood work done after finding a anal fissure....
I alos had a colonoscopy resulting in...Oh everything looks good....Had a samll bowel follow through to show Chrons in the small intestine. Colonoscopy is great for many reasons but can "miss" CD...
I recieved a letter from my GI today. Says the abdominal exam was normal that I had Friday and gave my pred tapering schedule and thinks my CD is in remission. Will like to see me back a month after...
He said it is limited to the last part of the small intestine right leading to the appendix and that it could be an option to remove that section...I found odd...But also said it was mild. I am just...
No I am just doing the three months of pred and then go back. He never mentioned any other meds to try out at all....
I was told by my doc in one breath that my disease is mild and limited and then n the next breath saying things like surgery is an option and remicade. Do I have the right to suggest milder...
Thanks for the replies.:).. Blue are you on a maintinance med now? I just found it odd that he would sya that when I go back in April that I will may just go off of my symptoms and see what it...
The thing is I had started on 40 mg of pred and am now doing 30mg for two weeks then I will decrease by 5 mg every two weeks till I am off. The GI ..who has been in practice for 38 years..tried to...
I have been put on prednisone for my newly diagnosed CD that my GI described as mild and limited...Is it strange to be put on Pred? And I am on a tapering schedule for the next few months and was...
Just Curious Ishaman...Why did Imuran almost kill you..or what had happened with that? I am trying to keep my options open on when it comes down to discussing my treatment plan with my GI. I am not...
Was curious if anyone could tell me how often the GI tests to see if you still have inflammation. I had a small bowel barim that showed Chrons and was put on pred and have to go see him on the 27th...
Nicecupoftea, I think it is ok to join even if I am newly diagnosed. I was diagnosed with the same Illness and it helps me to know I am not alone. I am sorry if I sound like I shouldn't be here , Yes...
Kazbern I see you were diagnosed around my age. Do they know if you had it for quite sometime? Have you had any surgeries due to CD? I am just so curious on this that I feel it is taking over my well...
Thank you all so much for your support. I guess when I read all the horror stories of what CD can do to you it gets me so depressed and I need to stop doing that. Lol......