It is disappointing but as you say it will be worth the wait. I wonder if, as times goes on and there is more and more evidence that this is a paradigm shifting treatment, there might be a argument...
Best of luck HabsHockeyFan - I hope you get the chance to put it all behind you with this new treatment. Disappointing not to see more responses about this - its a major breakthrough in treatment, I...
It so exciting but also soooooooooooooooooooo frustrating waiting for it to be approved. I'm hoping that the results from the current phase 2 trial will be so good that it speeds up the process....
Personally I don't see anti map as being any more effective or exciting than the current set of medication which suppress the immune system. Qu Biologics is where its at - its a polar shift in...
CBD is non psychoactive and is a safe and effective treatment for IBD in my opinion. The thing is though, for CBD to be most effective its best to take capsules rather than the oil. The body has lot...
Interesting thread - I hadn't realised Simponi was so effective. Like you beave, I had thought that Simponi was shown to work better in tnf naive patients....
Has anyone else got any QBECO SSI info or chat they can add to this tread?...
If you want to loose weight you should think about when you eat every bit as much as what you eat. I practice time restricted eat so I eat from 10am-6pm and fast the rest of the time. Its an...
If you are gong to try CBD go for the capsules rather than the oil and start slow on a low dose. Normally they would not prescribe a Biologic unless you have moderate to sever Crohn's disease. What...
The current trail is phase 2 and has two stages. The first stage is a 20 patient open label trail followed by a 150 patient double blind placebo controlled trial. Participants will take QBECO SSI for...
I often wonder why this treatment is not more widely know in the IBD community. Its going to be a major step forward. I also wonder why big pharma, as far as I know, has not taken much notice. There...
I'd go for the capsules so they go into your digestive system whereas the oils are sublingual so I did not find them as effective. At the moment I take one 15mg capsule per day......
Do they have a different scale for measuring calprotectin in the US/Canada compared to here in the UK? My last flare I was about 300 and I felt like I was on fire but I've constantly seen people on...
Not sure how much I buy into this. Results not particularly impressive....
This is the closest thing we are going to get to a cure in the next few decades - its very exciting but I just wish they would hurry up and get it out there. After all the crazy poisons I've been...
This is a good example of less board activity - its exciting news and would be great to hear other members views on this but hardly any replies.....
Someone on Crohn's forum mentioned that Dr Gunn recently commented at a conference its about 4 years from being commercialised. They will be conducting a phase 3 trial in 2019 where participants will...
As with all these types of forums they tend to attract those that are feeling unwell. I have a 3 year remission recently and never even thought about healingwell once, never mind logging on. Now I'm...
I don;t know about anyone else but I just feel like I'm sitting around waiting for Qu Biologics new treatment to be approved and hoping I can stay as well as possible until then......
Iron suppliments can upset things. Perhaps you should ask your doctor about getting an infusion?...
So exciting - I just wish it was ready to be commercialised sooner.......
Of course I believe you - I'm just saying, everyone with IBD is different and what works for one person will not work for another. I my case Green Smoothies have improved my health across the board...
That article has been around for ages and has been very widely discredited. I drink a green smoothie every morning and it has done wonders for my health. Green Smoothies are an exceptional source of...
There is no issue with spotting Imuran cold turkey because it builds up in your system over a period of months. So when you stop Imuran, it gradually disappears from your system with no need to...
I am the same. I was on 6MP and Remicade for a year and which point on the basis of my bloods and stolls samples they decided to take me off the 6MP. That was about 3 months ago and things are still...
Try fermented Cod Liver Oil - best source of vitamin D on the market....
Have you considered a biologic like Remicade?...
I have been taking fermented cod liver oil which is the best possible source of vitamin d - far superior to these synthetic vitamin d supplements. I've been taking approx 2 teaspoons per day and its...
I have also been diagnosed with indeterminate colitis. To be honest it does not bother me at all - what's the point in getting hung up on labels, I definitely have IBD and it needs to be dealt with,...
It was a compassionate use program so all 68 got SSI. The ones that were given the placebo were then given the SSI at the end of the trail....
SSI is essentially killed bacteria that is derived from E-coli and injected into the body so you 'trick' your body into thinking it has an infection so you get all of the benefits of acute infection...
Successful and moving forward www.qubiologics.com/qu-biologics-announces-initial-results-in-randomized-placebo-controlled-crohns-disease-clinical-trial/?platform=hootsuite...
I've been waiting a couple of years for this news after first reading about SSI. SSI aims to restore the body's immune response and will porvide a therapeutic alternative to current treatments which...
Successful and moving forward http://www.qubiologics.com/qu-biologics-announces-initial-results-in-randomized-placebo-controlled-crohns-disease-clinical-trial/?platform=hootsuite...
Its not been a problem for me. It has definitely improved digestion as I feel a lot less bloated after meal - honestly I feel great. Like anything with IBD if you're going to take it, its best to...
Yes I am using cracked wall organic chlorella powder - its the only way to go. Ever since I was given a course of antibiotics, my gut has not felt the same, I've struggled to digest certain foods,...
Just wondering if anyone has tried this? Its excellent for digestions and is a prebiotic that has been shown to help the good bacteria in the gut multiply at 4 times the rate of normal. I've been...
Last time I was in hospital (last May) I ended up to steroids, 6mp and Remicade. As I was 'triple immune supressed' as my doctor put it, they gave antibiotics and since then my gut has not felt the...
The best kind of alcohol is... none at all! Why risk it?...
I've tried both - for me the psyllium seed powder is infinitely superior....
First of all - congratulations on being in remission for 10 years, that's fantastic. I understand where you are coming from and why it is a difficult choice but I am sure there many many IBDers out...
In my experience the seed powder is far, far, far better - give it a go....
I have never been pre medicated for my Remicade and as far as I can tell, neither are any of the other people tat are at the infusion clinic while I am there. At my clinic you get your first 5...
That's fantastic - congratulations, this is the most promising treatment around as far as I know. Please so keep us up to date with how you and getting on. Good luck!...
I hope so - that's the thing, I've been on pred a few times before so I understand what it feels like coming off it. Its just a few lingering symptoms that are slowly fading away - I just wish it...
Its frustrating because there is not much I can do, it's just a waiting game....
I was on pred for about 5 months including a week of IV steroids. They eventually gave me remicade which has put me into remission. I came off pred 8 week ago today exactly. While in general things...
Psyllium seed powder Blue Ice cod liver oil taken with high vitamin butter oil (amazing!) Chlorella Pyrenoidosa (broad spectrum supplement)...
I was in a bad flare in 2009 and wound up in the hospital and I was chugging cod liver oil prior to admittance - no effect. I am going to checkout vitamin butter oil because I believe in p-seed...
Recently I've been taking blue ice cod liver oil and high vitamin butter oil and I feel great, my poops are amazing, my skin is great and I am sleeping better. I read that if you take these two...