Just to be safe, I would suggest calling them again and asking if you can speak directly to your GI or primary care doctor. Years ago, I had meningitis (viral), but before they knew what kind it was,...
Hi all, A few years ago, I was diagnosed with drug induced lupus. However, it's never gone away so I had an x-ray done a couple of weeks ago, and it shows damage that's linked to psoriatic arthritis...
Hi there, I was on Remicade for about 5 years, I think, and was diagnosed with drug induced lupus. Since then, I've to find a new rheumy and he thinks it could have been Crohn's arthritis all along...
Based on what you've told me, I wonder if that could be what I have. I had an x-ray done on my lower back in 2007 and it was negative for Ankylosing Spondylitis so my new rheumy doesn't think I have...
Sorry to bug you, Ides. Is your gastro able to help you with these flare ups or do you see a different doctor for them?...
Oh wow. What if cortisone shots don't work? I've tried them before and my body didn't respond to them....
When this first started, my first rheumy checked me for gout, and it was negative. He did suspect that I could have possible psoriatic arthritis during one of my appointments. When I told the second...
Hi all, I believe the swelling in my big toe lasted for a few weeks. From there, it moved into my ankle and stayed there for a good 2-3 months. It was so swollen, I couldn't walk or drive and had to...
Hi all, About two and half years ago, I was diagnosed with Drug Induced Lupus from Remicade. Sadly, the Rheumatologist that diagnosed me suffered a heart attack last year and has retired. I saw a...
Hi all, Does anyone here suffer from Crohn's arthritis? And if so, have you ever gotten REALLY swollen from it, so much that you absolutely cannot move the joint, and it's red and warm to the touch,...
Thanks all for the great ideas! I'm sorry this thread caused some tension :( I'm going to apply for financial assistance with my hospital debt or ask for a reasonable payment plan. I do wish that...
Sadly, I have so many medical bills from both Crohn's and lupus that my credit is bad and I've been considering bankruptcy. Anyone else have financial struggles from this disease? I hope it's ok I...
Hi all, I'm pretty sure I'm in a Crohn's flare up right now. My blood work showed inflammation but my fecal calprotectin test was 42 and in the normal range. Has anyone else experience a normal test...
Wow Becky20, that's horrible!!! I cannot believe they could be that mean and I am so sorry that happened to you! I guess we can't make anyone understand what we are going through. And maybe if I do...
Good afternoon all, I have FMLA for my Lupus and recently my supervisors have been giving me grief over it--for example, they believe/think I can predict when my Lupus is going to flare up and when...
Hi working2Bhealthy, I still have the drug induced Lupus and my last Remicade infusion was August 2013. The titer my doctor uses to differentiate between DIL and SLE has gone down so the drug induced...
Hi Akkami, With your fingers wanting to curl into a fist, are your fingers swollen and painful? The reason I ask is I have something similar to this and my Rheumatologist has said it's Lupus related...
Hi there, I've been on prednisone since December (my Crohn's is in remission, but my Lupus is not). The lowest dose I've been able to get down to is 5 mg a day. I recently had to bump it back up to...
For those of you who suffer from pain with your Lupus, have you found that sometimes pain meds and prednisone just don't knock it out completely? I am currently in a flare up and my hands/wrists hurt...
Hi anonymous27, I was diagnosed with drug induced Lupus from Remicade back in August 2013. I am so sorry--this form of drug induced Lupus seems to take A LONG time to go away. I still have symptoms...
Hi there, If you don't mind me asking, what meds are you taking for the Crohn's? I developed drug induced Lupus from taking Remicade--my ANA is positive 1:1280 with a homogenous pattern......
Hi all, I was diagnosed in 2008 with Crohn's Disease and back in August I was diagnosed with Drug-Induced Lupus from having been on Remicade. At this point, my rheumatologist thinks my blood work is...
Hi all, My rheumatologist gave me the ok to try plaque-nil and I am really hoping it will do the trick, in time! I'm still on prednisone for the lupus symptoms and every time I try to go below 15 mg,...
Hi ediekristen, Thank you so much for the reply. I am so very sorry you're going through this again. Please keep us posted as to what you find out regarding the Lupus--I hope you get answers soon and...
Thank you all so much for the replies! I did the fecal calprotectin test and my number was normal--actually lower than it was back in October, so the inflammation is not coming from the Crohn's. I...
Hi cooltiger, I am so sorry to hear you are going through this! My last Remicade infusion was in August and I am still dealing with the Lupus antibodies. Feel free to ask me any questions you may...
Yikes that's scary that yours probably started with Remicade and then really came out with the Humira. My ANA titer last month was 1:1280--I would hope I would not start another anti-TNF until that...
Thank you so much, Ides. I spoke to my gastro and she is going to repeat a stool test to see if I have any inflammation in my gut (I think it's the calprotectin or something like that). To be honest,...
Hi Ides, I am still really struggling with the Lupus. My symptoms are getting worse instead of better and my blood work shows an increase in inflammation. My Rheumatologist ran blood work about a...
Hi Ides, Thank you so much for the reply. Currently I am on Imuran for the drug induced Lupus. I did have a cortisone shot administered at the Rheumatologist a few weeks ago but it didn't help me. I...
Hi Ides, Thank you so much for your reply. If you don't mind me asking, did you have really bad joint pain and swelling with it? My ankle/foot is so swollen right now I cannot get a shoe on and it...
I was recently diagnosed with drug induced Lupus, most likely due to the medication I have been taking to control my Crohn's Disease. My Rheumatologist told me there's a chance the Lupus could go...
Has anyone here been diagnosed with Lupus from Remicade (or from another TNF drug) and not been able to get rid of the Lupus? I was diagnosed this week with drug induced Lupus, most likely from...
I had viral spinal meningitis in May of 2007 and before that, I had a few sinus infections plus the influenza. I believe my immune system was knocked waaay down and when it came back, the Crohn's...
Anyone ever feel like Crohn's bloats your stomach (from gas or maybe inflammation) and it makes it stick out more than it usually would? I've felt this way for a couple of weeks and I'm late on my...
Hi and welcome amjwh99, I have Crohn's and suffered from eye inflammation too (episcleritis and scleritis). I have tried A LOT of different drugs--prednisone, MTX, Imuran, Pentasa, Entecort (however...
I am so sorry you're going through this. I hope you're able to get some help soon! Please keep us posted!...
Thank you so much for the replies. I did take pain meds and they helped A LOT. This morning it hurts pretty bad again--not quite as bad as yesterday. I have taken some more pain meds and hope it will...
Please forgive me if this is TMI but I am a tad worried. I've had this HORRIBLE pain in my right side all day long, right around my hip bone. At times it radiates to around the back--not to like the...
Hi All, Long story short, my fiance suffers from extreme gout (I have Crohn's Disease). Anyhow, he's in the process of applying for disability which doesn't bother me because I figure anyone can end...
I was scared before I ever got on it. I have been on it, I believe, two years next month and it has literally given me my life back. I now have days where I even "forget" I have Crohn's. Before the...
If it helps any, about a week or two before I get my Remicade, I will usually get bad arthritis pain. I also have a "typical" flare cycle (mouth sores, fatigue, arthritis, stomach problems, etc) so I...
Thank you both so much! I hope she will understand when I tell her I have been trying. I am fine with even uping my exercise too....
Long story short, I was told by my internist I needed to lose weight and this was about a year ago. Anyhow, I am seeing her tomorrow (time for a check up and I think I have a sinus infection) and I...
Has anyone on here ever been hit hard financially because of this disease either directly or indirectly? Not only do I have what's left of my Remicade bills after each infusion, but I also got really...
Thank you so much for your replies! I think now it WAS a stomach bug. I am feeling a lot better and my sister is home with stomach problems now... Thanks for being supportive and caring, as always!...
Does anyone here suffer from stabbing gut pain and nauseau? Usually I get diarrhea and other symptoms when I flare, but this past week, I have been really sick to my stomach which is unusual for me...
Hi Bella, Please keep us updated on your condition! I have been on Remicade for about a year now and it has helped me out a whole lot. I wish it could help everyone out! Take care and I will keep you...
Welcome BWS27! I have been on Remicade for almost a year now and I LOVE it! It has helped with both my intestinal and extraintestinal symptoms. I sincerely hope it works for you. Be sure to let us...
I have Crohn's and I am overweight. When I had the pill cam done, they found Crohn's in my small intestine and in my large when I had the Colonoscopy done. I was on prednisone for about a year and...