Hi, I am going in for a resection and ileostomy next week, I've had one before and had suffered with terrible dehydration...when I'm back home visiting Scotland I usually stock up on diorolyte...
I had to call my Gastro doc and ask for some Anusol suppositories ... I got a call from Walgreens saying my insurance wouldn't cover it .... 14 suppositories?? why? well, apparently because they cost...
Thanks Jennifer, sounds like me ....2 strep tests this week ....I've falways felt it might be the Crohns ....you learn to know your body well, hopefully endoscopy will find out for sure!!...
I'm on Entyvio, and I can only drink warm tea or water ....cold and sweet hurt!...
Has anyone else had throat and mouth problems? I have been having on and off mouth sores for a long time now ......the last week or so my throat has been terribly sore ,.....I'm sure there are ulcers...
they are internal and external, banding for internal and hemorrhoidectomy for external...... and some tags she said. Def hemmies ....they are huge blueish but more fleshy when inflamed and raw on...
Hi, I go for a hemorrhoidectomy tomorrow, they don't like to do them on us crohnies but, they are soooo bad she wants me to go ahead. I have read the worst horror stories about it, I just wondered if...
Hi, I'm on Cimzia and methotrexate pills....not been working for me ...it's slightly better for a few weeks after I take it....but then the old pain comes back. I start today on Methotrexate...
Hi Leebie, I found Calmoseptine cream really good, all the prep H stuff didn't seem to sooth it as much, you can get it on the shelf at Walgreens and a lot cheaper....
Hiya folkies, latest news ...had a pillcam last week and, as I suspected ....crohns still there ...I've been on Cimzia for a few months.....I think I've become immune to all these drugs now, (had a...
Hi ....just a wee question ....I'm having a flexiscope tomorrow ...I'm an expert at the old colonoscopy ..... but, my first flexi ...I just wondered what the procedure was like ...I know it's only...
Well ...I've had my 3rd dose of cimzia ....the last couple were late..darn clinic and its scheduling ....sigh ....today I'm having hot flashes ...which I often do as I am a woman of a certain...
I have been gluten free for 3 weeks now ...not seeing much improvement ...in fact having a wee flare up just now ....tomorrow I'm also starting dairy free and we'll see what that does ...I've also...
oops forgot title ..Ivy ...thank you :-) Doc is phoning me back later this week to arrange a date to start. Look forward to hearing how you get on nikki :-)...
Hi ....me again .... Doc called today ...he'd like to put me on Cimzia ....I'd love to know from other users ...what it's like.... and if anyreally bad side effects? I became immune to Remicade,...
Hi Roni, I had a resection last August ....there was a leak (surgeon thought he used wrong size staples) it went undiscovered for 2 months ..a lot of ER visits and high temps during that period...
Hiya .....you guys were right.... had my colonoscopy today ....and the crohns is back after only 4 months since last op....(3rd op in 6 months) though as yet ....just ulcers and no inflammation. I've...
Hiya mimi ....I had a resection last year ....then a couple more ops .....only had antibiotics through an iv 2nd & 3rd op.....never had to stay on them!! That seems quite severe to me ....its quite...
Oh my .... that is so scary for you ....my thoughts and prayers are with you /community/emoticons/smile.gif ...
Thanks folks for all your input ..... it helps to hear other peoples issues :-) I've been finding it quite easy ...just bread that I miss ...so many products out there now that are gluten free...
hi folks, 3 months since op ...still get pain ...having a colonoscopy in a couple of weeks ....doc is sure that it is too soon for crohns being back .... I am going to go on Gluten free diet ..... I...
Oh sorry to hear this Nanners ....speedy recovery .....think how bad it might have been if you HADN'T had your flu shot!!!! ....I got my Pneumonia shot along with flu ... glad I did now :-) x...
I had 4 blissful years ..... so just you make the most of it ....sigh :-)...
Thank you all ....been a real help!! I went on cruise Spring Break ....and of course did nothing but eat ...especially after having such a restricted diet for so long ....so I think you're prob right...
Thanks guys ...had to take pain meds tonight ... hoping its not a blockage .... that'll learn me not to go mad on the stir fry's ...one can get too darn cocky ....will stick to bland diet for next...
Hi folks, I had a resection last August ....which went bad as surgeon used wrong sized staples ...and I had a leak ....which went undiagnosed until too late ....so another op and had ileostomy bag...
Hi Abby, I had my reversal one week today .... its been ok .... they also had to open the old wound to clean up some adhesions ...it was more painful ...but, the actual take down was no prob ... I...
Hi, I am having my reversal on wed ....and I've been given the pills and potion ... I tend to get dehydrated at the best of times ..always kinda low on sodium ...even though I think I drink...
Hi Mustang, I've been having the same problems ....and Im 3 months into it ... It apparently can take a while. I do eat the thickening foods ... cheese, rice, pasta ...marshmallows ...but can't say I...
Miralax is way better than Colyte .....ewwww I thought I was drowning .....a whole gallon !! I asked why couldn't I have the one with only a couple of glasses but, they don't like them for...
Thanks Leslie, I've been putting lots of salt on my food.....drinking Gatorade.....I'm starting to feel short breathed already today ...so even put salt on my toast this morning lol I've also added a...
Thanks Rosemary, I went in yesterday got some fluids .... you were right it was the sodium (will def try the salty broth).... and bicarbonate .....wasn't even that low ....but, when I walked around...
Thanks summerstorm ..... feeling slightly better today ..........trying desperately to catch up, drinking loads....... I drink water and decaf green tea ...... the nausea makes gatorade and the likes...
I've was on TPN up until 2 weeks ago, I have been having nausea and am very shortbreathed ...... even going to toilet takes it out of me .... are these symptoms of Gall Bladder disease? I had my...
Hi folks, I have a temp ileostomy, had it 9 weeks or so ....still have trouble with it thickening up so still lose a lot of fluid .... I eat all the correct foods and follow the BRAT diet ..... for...
Thank you ... both :-) Ohio ...its def just an Ileostomy. I do have the occasional thickening ... and I do the BRAT diet .... pasta seems to be good ....but still a hit and a miss. I'll just have to...
Hi, I went in for a "simple" resection 3 months ago ..... had every complication from a leak to abscesses ..... however 7 weeks ago I got an ileostomy .... I was on TPN at home until last wednesday...
Thanks for replying :-) I've been taking 4 immodium a day ...will maybe up the doze. Just getting paniky as I'm hoping to return to work next week and am still breathless! I never noticed an Ostomy...
Hi, this is me now 3 months after my "simple" resection ..... boy... have I had the worst luck ....think I had every possible complication there is .....even got a huge black eye falling going to the...
p.s When you have a leak then infection .....is that classed as Septicemia or is that only when blood is affected???...
Thanks guys ....saw my GI on Fri ...he wasn't happy with it all as still in lot of pain so readmitted me. Had CT scan and there has been a small leak which has sealed itself ...so back on IV...
Hi folks, Well, thats me home from 3rd stay in hospital since resection 6 weeks ago! Second visit was obstruction .... which happens......bloody paindul ....but one of the hazzards. So, I've been in...
Thanks Nanners .... I was being good with my diet ...but got too cocky and had some roasted Almonds on Thursday ......probably had a lot to do with this flare ....jeez you'd think I'd know better...
Hi Guys, well its been over 4 weeks since op ... and I'm still in a lot of pain..... there have been a few good days when its been very mild. but some when very sharp and achy ......Doc says this is...
So thats me 18 days after re-section .... was having a great recovery ....then was struck with Ileus ....and a partial blockage...12 days after .....which was worse than op ....anyhoo ....it has now...
good news ...they've put me on clear liquid diet ....so i can have some broth and coffee .... funny thing is ...I'm a tea drinker ...I don't ever take coffee ...just wanted the side effects of it :-)...
hi all , so I get home from hospital after resecton a week last sunday .... things were going great ..... good bm's .... wounds healing up nicely....then Monday evening I take these godawful pains...
Hi, been a week since surgery ....everythings been fine ....just all the usual complaints. I just wondered if all the swelling/bloating was still normal after a week ....still 15lb heavier than when...
Hi, good luck with your surgery ...I'm sure it will all be fine! One week today since I had mine ..... I'm doing great .....obviously a tad sore and stiff .....and look like a balloon ...but on the...
Hi there, I've had mouth troubles for couple of years now ....mine is more just burning.... very red and painful I've often wondered if Crohns but prob more Iron def ....!! I have a mouthwash I got...