Not to hijack the post - but I have a question about those CDC guidelines, Susie. I have been on 25 mcg fentanyl and up to 60 mg oxycodone per day since September. Every now and then I will take a...
Hi Maria- I was in the same situation this past year. Loved my GI and had been with him since the start of my Crohn's diagnosis (2005), but he was getting older and closer to retirement and just...
Oh my gosh - I feel like I could have written this post. I went into the ER a few weeks ago after weeks of feeling just awful, but nothing specifically bothering me. Turned out I had a blood clot...
You can opt to get a colonoscopy without drugs - it just may hurt, especially if you have any active inflammation from Crohns or UC. For my first colonoscopy when I was about your age, I asked for...
Do you mean TPN? I have been in TPN for about 5 months now and don’t notice any taste. Any chance you were given the antibiotic Flagyl? That can cause a metallic taste in the mouth. Hope you are...
Sounds like a gastro issue. I think a colonoscopy is a good idea. Usually having BMs at night indicates some gastrointestinal distress. Cold be anything from celiacs, bacterial infection, IBS, IBD,...
Hey Barbz - How are you feeling? It's hard to say if the Stelara is working, I've had 2 doses so far. My mouth and throat ulcers did clear up, so that's a definite positive. I most likely have 2...
Was your surgeon a colon-rectal surgeon? If not I would get a second opinion from one. Was a seton an option? That keeps the fistula open so you're not going thru the abscess, pain, break open,...
You were just in the ICU, I think you deserve a few weeks rest. I would get a doctor note and stay home until I felt physically capable, if possible. I have made the mistake of going back to work too...
I would look for a different doctor. What would hormone shots do for Crohn's Disease?? Sounds like what straydog said, maybe he is being pressured by outside sources. I also think it is...
Oh my gosh, NCOT. I was on a PCA pump with morphine every 4 minutes for a week following my open resection and stricturplasty and was STILL in pain (no epidural though). That is terrifying. I am no...
Yes, I did notice that. I was just wondering if there was a different PM willing to take her on. I obviously am not as familiar with chronic pain treatment given that my pain comes and goes depending...
I am in NY, not sure if it is more liberal here or not. To be honest, the last time I needed narcotic pain meds was 4 years ago for about 2 months before surgery and then one month after, I never had...
It's a scary time to have a chronic illness with significant pain associated at times! I have found that they are very generous with the pain meds whenever I am admitted to the hospital for an...
What Straydog said in your other post is probably the reason you are being weaned. I don't think there is a specific law or guidelines that state that GI patients shouldn't be prescribed pain meds....
Hi Barbz - I just responded to your other post. What state do you live in? I am in the middle of a big Crohn's exacerbation and my general practitioner has prescribed me a low dose fentanyl patch and...
Hi Barbz - you are on a fairly lie dose, so that's a plus. I have weaned off much larger doses of oxy, but only after a few months use. I think if you wean slow enough it should be fairly painless....
I agree with others that is sounds like biologics are your best bet - hopefully thy provide you with needed relief. With that much ulceration I bet your not absorbing much of what you eat. Has your...
Many classrooms have more than one teacher, especially in special education where integrated classrooms are utilized. I would agree to inform your supervisor of you additional needs and would also...
Thanks for the input. You are all right, I do need a new GI. I will say though, my GI is specialized in Crohn's Disease and up to date on all the research - he's just in semi-retirement mode and...
Hi Friends. I have had a horrible summer and am hoping there is some end in sight that does not involve surgery. In May I had an allergic reaction to Humira, went on prednisone for 2 months, and...
Hi! I had a similar surgery a few years ago. I probably put the surgery off too long because by the time it was clear I really needed it and there were no other options I was very sick and actually...
Hmm. maybe I should have it looked at closer. My son and husband have extremely sensitive skin so we are careful to use all scent and dye free cleaners and bath products, but you say this chemical is...
Thank you! I has a test done in September to test the drug levels in my blood, but I don't think that looked at antibodies specifically. My GI wants me to re-do the blood work again now that I'm...
Anytime I have taken Entocort I have started on 12mg and then weaned off when directed by my Dr. I honestly never found Entocort to be very effective for my Crohn's, but definitely didn't have any...
Hi Everyone! I have been on Humira twice, first time from 2008-2012 then again from 2015 to now. Lately, I have been noticing that I am breaking out in rashes suddenly. At first it didn't worry me...
Some doctors claim that Pentasa is not effective for Crohns. Did you Doctor discuss biologics? If your pain is from inflammation then really the pain is due to food trying to squeeze itself through...
Yeah, unless you are transitioning to a maintenance med then I think it is inevitable that your symptoms will just return as soon as the pred levels are low enough. The only time prednisone as led to...
What types of pains are you having? If they are contraction-like pains I would suggest sticking to low residue foods. Sometimes when this gets really bad for me I will do liquids only (smoothies,...
Thanks for the input. I am in Humira every other week right now. I did talk to my GI about upping it to once a week but he wants to do blood work to check the humira levels first and then go from...
I recently had a seton placed and a stricture in my rectum cut open and was initially given 5-10mg of hydrocodone to take every 4-6 hours. The surgery was on a Friday and I had significant pain once...
Crohn's disease is chronic and varying in severity. But I do feel like it can be progressive as well, meaning gets worse as time goes by due to scaring and surgeries. I have been in remission and...
Thanks for the replies. I obviously got in to see my surgeon and she in no uncertain terms said it needed a seton to drain. Upon further inspection under anesthesia, she found two fistula and a...
Thanks for the response Drew. I do have a doctor at the Cleveland Clinic that I can go see if this does not seem to help. My surgeon seems to think any other procedure would just be unsuccessful due...
So I had what was supposed to be a seton placement Friday. My surgeon said things we're a lot worse than expected. I had 2 fistulas that she placed setons in and opened an abscess which has resulted...
How do they know the stricture is due to scar tissue? Obviously this is your decision, but if I were in your shoes I would try remicade or humira first before jumping to surgery. I had a resection...
I agree, reducing your dosage of an opiate has the potential to cause anxiety. Just going cold turkey once your body is dependent will almost certainly result in anxiety-like physical symptoms as...
Thanks for the input. I have taken the flagyl 3x now and I guess things are about the same. Painful but not completely effecting my day. The flagyl is making me nauseous which is almost worse than...
I would ask your preferred pharmacy to look into it for you. I know not every state has or knows of Wegmans, but it happens to be the best chain of grocery stores ever (joking sort of, but not...
An NG tube should keep your intestines free of gas, so if it's very painful they may resort to that. NG tubes SUCK (pun?) but they are pretty effective at keeping pain and nausea at bay. Is the...
Did this work for anyone? I have had this abscess that was seeming to come and go, but never really broke open on its own. It has been very painful the last 2 weeks or so and just recently when I...
Hi Barbz - Are you getting bloated and distended with your pain? Crampy? What does the pain feel like? It could be food having trouble passing through, which is pretty typical when you start eating...
Sorry you're having a bad day Labradorite. I wish I had advice, but I really did get lucky when it comes to understanding family. Sometimes my husband is even to an extreme, encouraging me to rest...
I don't remember nausea being a specific complaint, but I was taking zofran pretty regularly for the 2 weeks that I was in the hospital. I also was barely eating anything because I still had the picc...
I was very sick prior to my resection - like too sick to actually get the surgery at first. So I was given a picc line and TPN for 6 weeks in order to get my weight and nutrition levels up and given...
Non-steriodal anti-inflammatory drugs (NSAIDs) are typically not recommended for people with Chrohn's because they can cause stomach ulcers or bleeding. This includes asprin products and ibuprofen...
I was in remission when I got pregnant with my son and had a perfect pregnancy. Was also on Humira. I did, however, flare after his birth. I think one of the problems was that I was so busy taking...
Sounds like me when I was breastfeeding (although I don't think you should be gaining weight if this is the reason). Breastfeeding burns thousands of calories. I think the above ideas about...
Motrin or Advil? I'm not a doctor, but I personally would avoid any NSAIDs, especially so soon after an abdominal surgery. Typically a week after a resection you would still have access to narcotic...
Do you have a colo-rectal surgeon? Generally for me, my fistula doesn't hurt unless they are infected or abscessed. If it's really bad I think it warrants a doctor visit for pain meds, that pain can...