I am shocked at reading the neurological problems some of you are experiencing, I am so sorry to hear this!! Is it possible that Cimzia would be a better option? Humira and Remicade are very similar...
Its really nice to hear such a caring, concerned mother. She is lucky to have you :) Sending hugs and prayers your way~...
Which meds are you on / tried?...
I'm on Humira, prednisone and other immunosuppressants. I'm not saying that when I get sick its a walk in the park, or that a cut or bruise doesnt last weeks instead of days, but its really not a big...
OMYGOSH bkz you have been thru it!!! DUDE I feel for you!! I highly recommend to keep fighting for a GI that listens to you. Obviously, you've had some horrible doctors in the past, but I promise...
Idk what the leaking means, I'm so sorry to hear you're going thru all of this!! I've never had an obstruction or a colon resection though either. I can tell you that Remicade worked miracles on my...
Thank you Dagger, I really hadn't thought about it that way, and you are right. I actually asked if he would take off work to be there for me before and after the lap, he was happy to :) My chances...
congrats dusty!! o the small things that others take for granted that we never will again :) Life's grand little moments!...
Hi Dooly, I'm sorry to hear you're struggling!! Idk much about you but everyone seems to tolerate different things from what I've seen which makes it hard to relate. Umm though, definitely toast,...
Omygoodness!! I agree that its for sure bloodwork is not the only indicator. This is drastic, but I feel you should do whatever you can to see another GI. Ask your primary for a personal call to get...
Symptoms: I had really heavy periods as a teenager. Missed school every month and passed out regularly on my period, but it all improved on birth control pills. And it wasnt until just before the...
Thank you for your responses, I will repost in hope of some support and understanding....
Awww good luck cleanfreak! I'm in the US too so I cant help you but maybe repost and put "attn fellow canadians"??? Its so hard when a trusted doc retires, I cried when in the doc office when I had...
Mmm I was never told of withdrawal symptoms either. What side effects of Humira are bothering you? About six months ago I switched from remicade to humira because the remicade was causing drug...
O I'm sorry Cindy! I hope you get checked out soon! It seems to be so many different things that can trigger things into going active, maybe stress? Maybe any change in your life, who knows, maybe...
I'm so sorry to hear you suffering so much, the emotional toll can be just as bad ad the physical! I hour you take the advice above, it really helps to change your diet. Everyone can tolerate...
Oh the STRESS diagnosis!! I agree ncot, the first time I started having problems I was told it was stress, turned out that it was crohns. The second time I was told it was stress, it ended up being...
I agree with Malakai and am so glad you have made an appt to get checked out. It is so important to have someone with you, things can be interpreted and remembered differently, it had been very...
*reminder...
Can someone tell me why please? I.was really looking for some advice and some friendly reminds that I'm not alone in this pain. Is that too much to ask?...
sounds like ur on the right track to determining cause of pain :) keep us posted. maybe u just ate something that disagreed too......
Omygosh I was just thinking about starting yoga dvd's then classes too :) So glad you guys posted so much on this thread - thanks!...
I'm so sorry to hear that she is afraid of food, it happened to me too and slowly it does come back. A craving for something weird like Oreos (for me anyways) will bring her back slowly but surely....
Hugs and prayers to you Dunny - wish we could hang out in pain together - this stuff is making me SO stircrazy AH!! lol...
Well I'm still in a ton of pain and an invalid at my parents house. Struggling, well getting grumpy, about being taken care of 24/7 because I've been doing things on my own with Crohns, but this pain...
tumor is size of golfball in my spine. and non crohns, non remicade related probably so i prolly shouldnt post here. but i'm a little scared. biopsy tomorrow, 1 inch incision right above my butt...
PV I'm sorry to hear you and your husband are having such a hard time getting this under control, you are being so proactive in his care with these doctors which is incredible. Glad to hear you're...
Stay hydrated sweetie!! And agreed severe pain = ER, just to make sure, best of luck through the flare. Keep us updated!...
I have a tumor in my spine. They need to biopsy, next appt is Wed so will keep you all posted. As of right now it seems though that this may be completely unrelated to Crohns and/or Remicade...
I dont have any swelling. But i just got back from an urgent care facility who ordered a MRI for me friday morning of my SI joint and sacrum, I'll let you know how it turns out when I found out where...
Please dont be discouraged by Remicade from our experiences, I've always been a prodigy and not the norm with stuff so do NOT take my experience as something normal. There is nothing to ensure at...
HAHA Yes Crohns is officially cool when its reached House lol!!! Thats something worth celebrating...
I was hoping to get a LOL at least out of someone on this!!! Come on!! :)...
The people at GNC Nutrition and other vitamin places are amazing sources of information for helping supplement vitamins based on our disease, they really take the time to talk to you and follow-up on...
Goodness girl you are getting the run around!! Hope you have some definitive answers soon, its so hard to get the right people listening but once they do we can just hope and pray they move fast :)...
http://www.overstock.com/Jewelry-Wat...8/product.html ...
The joint pain in my hips and back seem to get worse everyday, so in order to try to be an amazing date for my BF yesterday, I took an extra pain pill and drank some wine....
I see a psychologist and psychiatrist, mainly due to PTSD but have found it very helpful getting thru this last year with Crohns. I highly recommend professional help :)...
Thanks for the advice My joint pain is so excruciating now I'm constantly crying and had to get my mom involved, she's much more able to express how bad I am to get someone to do something here. They...
WOW lady that is a LOT to go through, I know I'm captain obvious... lol. Hope all the best for you though as you recover, keep us updated...
Wow this is an informative post, definitely a good one for all women to read on here, seriously, thanks guys!...
I've been taking Bentyl twice a day for some time and havent noticed getting hungrier tho until they just put me on Prednisone to replace Entocort......
Actually she did put me on 40mg of Prednisone a day, thx so much PV for the advice on getting the antibody test, I look forward to calling tomorrow and asking about those other drugs too! Gosh they...
Had my 3rd infusion last Tuesday, each infusion seems to make the joint pain progressively worse. I ended up in the ER Tuesday night with so much pain I couldnt think and they gave me a few Dilaudid...
Hilarious Sniper and MissCris its true we become olympic runners lol!!! Thanks for the smiles this morning :)...
Yes! I also am losing hair, this nutrition guy I know recommended I take fish oil and it seems to be helping some... I'm going for a shorter 'do on Tuesday to help with the volume, SO EXCITED!!!...
Oh lady it sounds like you have been thru so much!! Bless your heart! Hope you start having some relief soon...
Hi Missicecream :) LOVE the windy city - so jealous lol!!! Please dont get worried about the bigtime drugs, yes the side-effects can suck but I'm definitely seeing improvement and am thankful my doc...
welcome to the forum D :) I also have inflammation on the right side, IDK if its normal or not tho, the scope and SBS say I have Crohnes in 2 parts of the colon and the terminal ileum so if its not...
I buy Pedialyte, used to help little kids stay balanced with electrolytes, they work great :) I'm tiny tho but I would think it would work for adults too, its so hard for us with the constant D to...