I do not have endometriosis however a ruptured ovarian cyst was one thing they tired to tell me was the cause of all the pain, diarrhea and vomiting in the beginning. My youngest daughter age 24 was...
Was this an "a-hah" moment for you or did someone put a little birdie in your ear? Just curious. Most of us a very good at adapting and figuring out "the best" way to combat the numerous preps we all...
Hey Will, After years with just the joint pain associated with Crohn's I developed fibromyalgia. I had never even heard of this condition when it was diagnosed. Had to run home and google it. Most...
Sci, You are so not a wuss. Seriously, just because an x-ray is negative doesn't mean you automatically do NOT have a partial obstruction causing all the nausea/vomiting. I went a year sitting on the...
I thought the same thing when they told me. First question was will I live long enough to deliver my son....
Hey Helen, I have had the hair loss on my head. I had a huge bald spot right in the middle of the back. My PCP gave me multiple steroid injections into my scalp for about 3 months and all of the hair...
Terminal as in no cure... you will have it till the day you die, not die of it....
My Dad had colon cancer. The thought of it does scare me to death but not as much as it scared him. He eventually committed suicide when I was 11 because he was sure it was back. There was none found...
Hey Bauer, Alcohol was the first indication of belly pain (crohn's) cramps with me. Before hubby and I were married we would bowl on Saturday night with our friends. I would drink maybe 2 or 3 drinks...
Mywowgirl WOWEE I can relate to the vein issues. In the beginning it was common to have 2 or 3 different people try to start IV's on me. Hubby began to demand after first attempt that surgical nurse...
Hey Helen, I actually had some unusual hair loss about 4 years ago, it was in a very large patch. Completely gone it was. I made an appointment with my GP and he began injecting steroids just under...
Ailing, I haven't had my surgery yet but I have been over to the ostomies forum here at healingwell and there is a ton of info there that is helpful along with members who can help with your question...
Hello Brian, I applied for SSD back in 2002 because my Crohn's Disease made it impossible for me to continue the line of work I was doing. I tried a part time desk job and found that even that wasn't...
Thank you for responding with positives about it all. I am fairly certain I am still going to be taking Humira once the surgery is over. I have other auto immune conditions that need to be held in...
I have had most of my ascending colon and parts of my small where they meet removed. The last small bowel follow through show things coming to a stop and then barely moving at the site of osmosis....
Stefanie and 80's... when your operations were proposed to you did you go through a period of, geesh almost like mourning? I was told it has come to the point that this is going to be my life from...
small bowel follow through. You get to drink the heavy chalky stuff....
I second Crohnie's advice. Also let it roll off you like water on a duck. I am 53 and 5'6 and weigh 118, this is about 10 lbs less than when in High School. I hear you look sick you're so thin all...
Hey Mom., I only had 3 different employers during my working days and each was made acutely aware of my disease and what some of my days would be like. Fortunately for me they were all very...
I would have lost it many years ago if not for Him....
Hey Will, I was put on Purinethol for a short time prior, I never read about blood clots but I must confess that I didn't take it very long either. I began having headaches and my body metabolized it...
Hey Max, MRI testing is so very expensive. Always my best answers came from a standard time tested sbft. Yes I know radiation right? Of course I suffer from stricturing disease mostly with some...
Two total different types of pain hon. After being stapled together twice while a growing baby was rolling around inside I thought.. Labor? bring it on.. :) Just bring it on when I am better!...
I was diagnosed in 83 by emergency exploratory, they released the band of obstruction. I was 5 months pregnant and quite literally dying. They decided to try me on steroids even though they were...
I owe each and every one of you my sincere appology. Apparently God still has a purpose I need to fulfill. My Mom always used to say "why you"? when I wasn't able to hide my disease. My response was...
/community/emoticons/cry.gif good luck to you all. I am going to sleep...
Thursday I was sent to one of the "best" colo-rectal surgions in the Savana area. His approach.. illectomy.Not gonna happen. Thirty years of pain, embaracment and all that goes with it, has finally...
Thank you all, this is year number 30 for me with CD. This is also # 30 for constant unstoppable D. Tomorrow my husband also of 30 years is moving me back home to SC or GA Savannah Rincon area. All...
I just spent another 4 days in the hospital with a small bowel obstruction. The doc comes in and injects me with 4 40ml of Humira as my starter dose... says you will need to take the two monthly...
Thanks for trying to give me some direction to go. Ides I did already call the makers of Humira and you were absolutely right. I have Medicare so I am out of luck. I have called 3 different...
Thanks all. Good advise and I am working on looking to get referrals due to just moving here to Al, close to Rome GA. Very difficult so far but keeping fingers crossed that the new GI for my Crohn's...
Thanks all, I never even considered having a back problem since I have no back pain, it's all in my hip. I do have pain in my tail bone though... the cartilage I would guess? It is very hard for me...
I have read a lot of posts here and I have to wonder how so many of you deal with the outrageous co-pays associated with the biologic's. I used to be on both Remicade for about a year and then I went...
TY snowbunny, It begins as soon as I awake and start moving. Never stops, seems to be worse at night, but I would assume that is because when I lay down it dominates my discomfort. I have an appt....
Last January I began to feel a numb are on the bottom of my left foot. Today it has gradually climbed to just below the knee. It kinda has the same feeling as if it had fallen asleep and is waking.....
My first symptom was loss of appetite, a feeling in my stomach every time I put food in my mouth. Then as it progressed it became a cramp just to the right and down an inch or two from my belly...
Hello all, long time no see! In the past 2 and 1/2 years, 2 weeks being the last time, I have been admitted to the hospital for anemia (7.1) with GI bleeding. All three times I was given 2 units of...
I'm thinking just ask for a few of the ones he has in his office. All he can say is no right? Thanks all!...
figures.... time to chat the doc up right?...
Thanks pim, Already taking iron but need affirmation of blood in stool. I have never ever been able to see blood in 30 years. I have had 4 resections and now a host of other problems.. fibro,...
Hello all, I have a fairly simple question this time. Twice since Sept of last year I have had really bad blood tests..ie my hemoglobin has been 7.0. part of this is due to iron anemia but I have...
I have been living with crohn's for some time... 28 years. The first 6 years I had 3 resections and then.. almost 15 good or maybe I should say, as good as they could be with crohn's years without...
Yay!! I was 12.6 today! Obviously there was something going on that shouldn't have been. I am just glad it was back to being normal. Made an appointment with my Gastro. today anyway. I suppose I had...
After discussing results with my Rhuemy he read the results as being caused by internal bleeding. He said too many other abnormal results or out of range results did not jive with B-12 deficiency. He...
Hello everyone, long time no post for me. Last week I had my blood tests done however, I was 2 months late in doing so. I am on Humira so it is usually every 4 months this time 6. Anyway, I received...
:turn: :turn: LOL Ya Think??????????...
Truly that man deserved the idiot of the week award. Two years ago I was meeting my 18 year old daughter who is 4'11"'s and 105 lbs at the local Target store. She had beat me there and when she saw...
Appointment went good yesterday. I told him that my husband and sister both noticed that I was a physco case when I was put on the Cymbalta 3 years ago so we agreed NO on the Nucynta. Then he gave me...
Francis, Thank you so much for helping me to understand. I did read on the drug something about Cymbalta and was put on it almost 3 years ago now. Within one week my husband and my sister both said...
[urhttp://en.wikipedia.org/wiki/Tapentadol] information I finally found. Still have to wonder why if "it ain't broke why fix it" with my pmd....