Thanks for the information, SM: I saw a local ET nurse yesterday, and she made several suggestions. First, she looked at the wafer that we removed (it had only been on for 1 day), and the wax ring...
Thank you, Sugarmarie. I just went on-line and will be ordering a sample of the ring you suggested. And you're right, I think my hole's been cut too big. With my appliance change yesterday, I skipped...
Thanks Halo. Where do you get the BCT, and how do you apply it? Do you use q-tips? Would it be used under one of the skin barriers, or instead of the skin barriers?...
I have a new ileostomy (1 month old), and my ET nurse suggested the following: first layer, a holliehesive skin barrier cut to the size of the ostomy (1-1/8"). Next, an adapt barrier ring, butted up...
shlafy, I don't mean to alarm you, but an abscess should be dealt with quickly. Call your doctor/surgeon and let him know what's going on. He will no doubt want to lance it. I've had the...
Interesting, I have the same exact problem. I tried GERD medication, then Nasacort, now I'm on day 3 of a Z-pack. So far, no change whatsoever. I had an EUA done in april, and it feels like things...
Yes - see a colo-rectal surgeon!! I live in Cols. and travel to Cleveland, I see Dr. Tracy Hull, who I highly recommend. I have had an RV fistula for 3-1/2 years now and have had a seton for 2 years....
My first RV seton placement was a breeze. I took the next day off work, but really could have gone in. I had to go back for another EUA last week due to a broken seton (1-1/2 yrs later) ... this time...
I'd ask for an MRI to confirm fistula. That, along with an Exam Under Anesthesia, is the gold standard by which fistulas are located - IF there is one. Best of luck!...
I was dx'd w/UC in 1982, and had my colon removed in 1993 due to UC. Also had a jpouch constructed and am still living with that. Had an RV fistula diagnosed in 2010, and have had a seton in there...
I find the DCCC at Whole Foods. If all else fails, try substituting Greek Yogurt (preferably the SCD 24-hour homemade yogurt). I also add about 1 tsp. of vinegar when mixing; I feel it helps the...
Jericho, consider getting yourself a bidet. You can find an inexpensive one on Amazon that needs to electrical hook-up. Sitz baths are indeed comforting, and will help keep the abscess open, which is...
Hello Anewpumpkin! Your experience sounds similar to mine - I had iritis a number of times as well, although not in the last 6-7 years, knock on wood. I find it interesting that you have swelling...
Found on line: http://www.amazon.com/Bio-Tech-D3-50-000-100-Caps/dp/B000A0F2B2, and elsewhere....
I have a jpouch and with that "holding tank" I go about 6-10 times/day. Give or take, depending on what I eat, whether on antibiotics, etc. etc. etc. I would think that just connecting the small...
By surgery, I'm thinking he means an Exam Under Anesthesia? I had one done about 6 mos. ago to have my fistula(s) looked at and a draining seton put in. It was a one-day affair, I was put under...
Yes - exercise definitely increases my drainage! (My surgeon told me this is typical). Increases happen particularly when I try low-body exercises such as squats, lunges, gardening, etc. I"ve given...
Lovely - you'll want to see a colo-rectal surgeon. I'm in a similar situation as elexis, except I have a jpouch instead of a rectum: I have a (jpouch)-vaginal fistula which currently has a seton in....
Yes, sounds like a fistula. Your gyno will probably refer you to a colo-rectal surgeon who can determine - through scope, or through imaging - what steps you need to take to help it to heal. Those...
I have a pouch-vaginal fistula, and have had it 2 years now. Just had a seton put in last June, so I sympathize with you! Yes, the seton is not fun, but really - I don't even notice it's there...
Ask them to put you in feet-first. I also ask for a cloth to put over my eyes - helps my claustrophobia not to see what I'm in....
Was taking VSL#3DS but new insurance does not cover -- sob. SO ... going back to PB8, and about to try another that contains a similar makeup to VSL#3: Solaray Multidophilus™ 12 -- 20 billion...
Good luck ren755 - let us know what happens. I have a pouch-vag. fistula and have had a seton in since June this year. Still draining a bit, but no more blood. My C/R surgeon (very well known, very...
Yes - coconut water, or other hydrating, electrolyte-containing liquids, such as Vitalyte, Nuun, etc. I sip on a glass of vitalyte throughout the morning and sometimes afternoons. This usually helps...
My highest was "only" 97: unbeknownst to me, I was developing an abscess/fistula. When that baby popped and fistulized, my CRP went back to around normal and stayed there. My CRP was around this...
I use it because it's been tested as a preventative for Alzheimer's Disease. Mom had AD and I'll do ANYTHING to avoid it ... It's great on toast with a little butter. And yes, CrazyHarry is right -...
I'd ask for an MRI to check for a fistula, first. They may also need to place a seton to keep that abscess open and draining - also helps to remove infection. I had an abscess/fistula that was...
Agree with the above - see a colo-rectal surgeon and/or GI doc. In the meanwhile, taking hot sitz baths will keep the abscess open and draining, these hot baths help to prevent the "build-up -- pop...
Hi Brian - I was DX'd w/UC in '82, colon out in '93, now they're thinking Crohn's. For about 5-6 years I experienced fevers of up to 104. These would appear sporadically in the beginning but became...
SanJoseGuy - so sorry to hear you're going through this. I know how confusing and frightening it can all be. My fistula was originally called complex - it appeared on the MRI to have 3 holes inside...
Great story - thanks for posting all the gory details! I'm currently dealing with a somewhat differently-located fistula (pouch-vaginal), and have a seton in it. Will probably have surgery, so your...
I've heard other people rave about UH, as well. Another good option....
My trip to Cleveland is about a 6 hour round trip. We stayed overnight the first visit there, and that was the last time we needed to stay overnight. I had an EUA up there a couple weeks ago, and...
Myrne, I'm not sure of the reason for your 2nd opinion, and would be interested to know the details, but here's my experience at the CC. Background: I made an appt. up there originally due to jpouch...
Update: had my EUA, and came out of it with a seton, as pretty-much expected. It's a taxi-cab yellow rubber band thingy that loops - ahem - out of my back passage opening to just outside the vag....
I was dx'd w/Ulcerative Procto-sigmoiditis in '82, then pancolitis in '92, then had a jpouch in '93. Now, the doctors are thinking I have (and have had) Crohn's due to the late development of complex...
Hi Big Betty: I was originally dx'd w/UC in '82, had a jpouch in '93, and developed fistulas in '10. Of course, now "they" believe it's Crohn's, and probably has been Crohn's all along, mainly due to...
Thanks for the replies! I think I now have a pretty good idea of a seton, but I still can't imagine a R-V seton - I mean, that's a distance, and therefore a longer "string" down there ... it just...
I MIGHT be having a seton placement in a few weeks for a pouch-vaginal fistula. The exterior opening is just outside the vaginal opening. What does the actual seton look like: I'm picturing a thin...
Yes, it sounds like a fistula. I'm not sure this'll help, but worth a try: maybe use those cotton rounds (makeup removal pads) and tuck one over your little opening. Maybe it'll absorb some of the...
An update - a year+ later! I'm scheduled for my EUA on June 1 at Cleveland. Dr. Hull will be performing it. Ivy, I did ask the reason for being put out during the exam - I told her I've never been...
Most interesting - thanks for posting!...
Mother - that's not a bad idea to contact your GP. In fact, my GP is the one who ordered my MRI for me and discovered the fistula....
Mother2010 - can you call your doctor's office - today? - and request a pelvic MRI? This would give you and your doc a better idea of what you're dealing with and how to treat. I agree with...
Hmm, forgot about this thread. May as well update! Went to the Cleveland Clinic (New Member, I'd be interested in what kind of problems your SIL had up there - I think they're very good). They did an...
I was on flagyl (actually, tindamax, which is "super flagyl") for about 8 months for a fistula, and did well on it. It also had side benefits of helping keep my pouchitis in check. Unfortunately, I...
Same as Pam - I had it done prior to deciding whether to go through with jpouch surgery. Now, I've had lots of experience "clenching", but I sure worked that thing 'cuz I so wanted to get rid of my...
I went to the Ohio Gastroenterology Group years ago (20) and saw Dr. Bill Salt who was awesome, but he's retired. I saw Scott Miller during that time period, who I felt comfortable with as well. I...
Shellie - how are you doing now?...
C diff - nasty, nasty infection. I had one about 20 years ago and I do believe it's the sickest I've ever felt in my entire life. PV, I'm so sorry your husband's had it several times, I can't imagine...