I did not get a prescription for pain meds. They told me to take motrin or Tylenol. My GI doc told me not to take motrin so I've been using Tylenol. I went to the gi doc yesterday and he sent me to...
I just gave birth to twin boys 12 days ago and I was on remicade during my entire pregnancy. I received my last infusion at 35 weeks and am due to have my next one on Wednesday. I've never taken...
I just gave birth to twin boys 12 days ago. I was on remicade my entire pregnancy and had no complications. The only drug I know not to take during pregnancy is methotrexate. I also took apriso...
Thank you all for all your responses. I had the worst night last night. I got literally NO sleep and it wasn't even due to my babies. I was up all night going to the bathroom. It was horrible and the...
Thanks Kazbern. The twins are doing great. Everyone is healthy and happy. I called my GI and I see him on Monday but until then I don't know what to do with myself. The diareah is so bad everything...
Hi everyone. I just gave birth to twins vaginally on august 13th. It was a rough delivery and the docs had to use the vaccume on both babies to deliver them. I tore while giving birth and the doctor...
I've been diagnosed since 2002 when I was 20 years old. At first my only symptoms was no appetite and diareah 20 + times a day. I lost 25lbs in a month. After diagnosis I was started on pentasa and...
With my first pregnancy the crohn's seemed to get better. I was taking azulfadine at the time. When I found out I was pregnant I was also taking 6mp but my GI at the time took me off of it for the...
Thanks for posting on this thread. I can't believe it's been over a year since I posted this. Since this post I have had a small bowel resection. I had the surgery in May of 2012. I was having...
I am currently 24 weeks pregnant with twins. I am also getting remicade infusions every 6 weeks. My GI doc told me also that I would have stop the infusions at 32 weeks and then resume after...
I am currently 24 weeks pregnant with twins. Before getting pregnant this time, my husband and I tried for 4 months before we got pregnant. I had a small bowel resection (second one) in May of 2012....
I get venofer Iron infusions once a week. I have been going for the past 6 weeks. My iron levels aren't really rising though. They're pretty much staying the same. about a year or two ago I was...
I agree with what everyone is saying. What works for one CD or UC person may not work for some. I am one of the crohn's patients that do not respond to meds, constantly sick, in and out of the...
Nicecupoftea are we having a bad day? Did I say something to offend you? I was just gathering advice about this diet from people that have tried it. Isin't that what this forum is for? Maybe you...
I think I'm going to try it. It can't hurt you know. I just don't want to eat fruit and veggies all day long....
Thanks. That's good to know. Any improvement is good albeit small. Is it hard to plan meals? What does a day of meals look like? Also are you able to eat salad, veggies and fruit with your crohn's. I...
Hi. I have crohn's disease and have been diagnosed since 2002. I've had two small bowel resections with the last one being in May of 2012. I am currently 23 weeks pregnant with twins and I have an 8...
I receive benadryl, tylenold and a steroid before the remicade infusion. My ob and GI are in agreement that it's safer to be on the meds than not to be. I believe we are to stop having the remicade...
I am currently 17 weeks pregnant with twins and on remicade. I get an infusion every 6 weeks at 10mg. It's the only medicine that has helped me before pregnancy. I had an infusion at 4 weeks, 10...
Thanks for the info. /community/emoticons/smile.gif ...
I get benadryl, steroids, and tylenol. sometimes i get antineasea drugs as well....
Hi everyone. I am due to receive a remicade infusion today. I may be pregnant. I am so irregular but I think I got my period on November 8th or 9th. It's too early to take a urine test. Am I able to...
My insurance wouldn't cover the pills so i have to drink the nasty tasting drink. I'm gonna do the suprep. yuck!...
I just came back from seeing my gastro doc and we're planning on doing yet another colonoscopy in 2 weeks. Instead of doing the oh so fun prep which I think is worse than the actual colonoscopy, he...
Thanks kazbern for the info. I feel like no matter where I turn there is a new obstacle to overcome. I think I will try going gluten free for a while and see if it helps. I'm not a big bread eater so...
I would like to go gluten free but I have absolutely no idea where to start. I've heard that gluten free food is absolutely disgusting especially the bread. I know one person who has celiac and she...
Hi everyone. I am usually on the crohn's disease forum but I have a few questions and hopfully someone on the celiac forum can answer. I have crohn's disease and been diagnosed since 2002. Last May...
I am on medicare b/c I'm on social security disability and there are three parts to it. Part A is hospital coverage, Part B is medical, and Part D is prescription drug coverage. What I know about...
Hi Sherbear, thank you for responding. I have been to numerous ob/gyn's and they all don' t know what is causing the vaginal bleeding. This started about 4 years ago. I bleed for two weeks, stop...
Hi ladies. Has anyone had any trouble trying to get pregnant? My husband and I have an 8 yr son and we would like to have another one. Been trying now for a few months and so far nothing. I also...
I've been on remicade for 18 months....
I get remicade every 6 weeks and at a higher dose. Around 4wks post infusion I start to get extremely tired and irritable. My bm's increase also. I also start to run fever and my lip and cheek starts...
I'm on Long Island. Forecast looks bleek. I'm not in mandatory evacuation area but all outdoor furniture, trampoline, and the like are all safely stored in either sheds or garage. Cars are garaged...
I've been on Humira, Cimzia, and Remicade. I'm currently on remicade now for about 18months. I get it every 6 weeks at a higher dose b/c my crohn's is severe. I have never had any reactions to any of...
When I'm not feeling well I stick to eating soup, eggs, ensure. Things like this. It actually gives me more diareah. Anyone else experience this?...
Thanks peacewithcrohns. How is the person doing on the imuran and remicade together? I was googling them last night and I was reading about a scarey rare t-cell lymphona that can occur while on two...
Ok so here's the deal. For years now my lip, cheek, throat swell and my throat feels all scratchy like i've been yelling all day and it gets difficult to swallow. My GI says it's crohn's in my mouth...
Hi everyone. I have been bleeding from my rectum for three days now. When I have a bm it's pure liquid and it's blood. Red blood. I do have hemmeroids so I'm thinking that it might be from that but...
I just had a second small bowel resection in may. The first one in 2008 my terminal ileum was removed. Didn't really have that much of a difference since i was having at least 10 bm's a day anyways....
I am on Apriso and have been for 3 years now. I take .375 once daily. It's 4 pills at once. I also have iron deficiency anemia. Right now I am getting venofer iron infusions every 2-3 weeks for...
No I'm not on actonel. I don't even know what that is. A dr. had suggested once that I get my bone density test done b/c of all the times I've been on prednsione and I get an iron infusion every 3...
Hi everyone. Quick question. Has anyone had to get a medical clearance from their doctor before going to the dentist? I was eating something this morning and a piece of my tooth came off. I called...
Thank you! :) Hopefully we'll get pregnant soon....
I know it can be extrememly overwhelming. Some of the medications are very expensive some prohibitivly so. There are programs out there that can help with the cost of the prescriptions. I do not...
Yea there is a procedure to dilate the stricture to open it up for food to pass safely through. I've never had that done before. The first surgery I had was actually done emergently. I had been...
Both of mine have been done laproscopically but it is not always the case. If the surgeon knows in advance what he is dealing with and it's not done emergently then usually it will be done that way....
Try not to freak yourself out. Here's the deal. I just had my second small bowel resection due to stricturing in May. I had two stricutures. One at the exact spot where the first resection was done...
I tend to fluctuate a lot with my weight. Usually around 4 weeks post remicade infusion I flare and I will lose about 10lbs. I'll gain some of it back by the time I need an infusion again. Also I...
When I hear people say that to me I want to punch them in the neck. These are people who know me and see what I go through on a daily basis. Seen me have surgeries, neasea, pain, in and out of the...
Are these scd and paleo diets and even the gluten free diets safe for people with scar tissue and narrowing. I have massive amounts of scar tissue due to the two surgeries and i have active...