May I ask you how long you have been on the pentasa, when I took pentasa , I experienced chest pains , breathing problems, and back aches like crazy...I am now on mezavant. I was just wondering?...
I tried Imuran and I had migraines , that I could not function, also made me feel awful in other ways but the migraines were the worst , you can try the othersister medication which is purinthenol...
If you are still on entocort, that could be causing it too...
I can't offer any advice, but I can sympathize I am in the same boat nothing seems to help these days, I have crohns since 1984. the body aches which have been there for the past 12 years are awful ,...
I have not heard of the generic brand, I don't think they have that here yet....They always gave me entocort. Thanks Carmen...
Is anybody else having to wait for entocort, I have been waiting for 3 weeks, am being told it is on backorder and company not producing them? I live in ontario.. thanks carmen...
How long have you been on 6mp, it can be the 6mp causing back pain...
I have been using the syringe for almost a year now....everytime I have a reaction where the site swells alot and itches like crazy for a few days I would put lanacane on it to try to help...
Thank-you so much, that was so informative.. Carmen...
I am 45yrs old and have had crohns since I was 16, I have not had a menstural cycle for 2 months , that has not happened to me before. I am on humira. Is this the start of menopause or the humira?...
I have tried LDN but too may side effects for me...It is scarey what you are saying about the remicade. I did remicade for about a year. I am now on humira and terrified everytime I take a needle....
When I take the humira shot , I get swollen in that section for a few days , is it normal , I gave it in my thigh this time and I am so swollen on the top part of my leg, last time I gave it in the...
6mp and imuran cause me to have severe back pain, imuran is worse. Anyone have the same issue? Thanks Carmen...
Thanks so much for your response....
I started Humira in August of 2011, until October 2011. I stopped because I was reading too much and getting scared about the side effects. My rhemy originally prescribed it, I went to see my Gastro...
I do get that magazine , but I have not received it yet. let us know what the article says. Thanks Carmen...
I am so sorry for what you and your child are going through. Have you tried going on the website DragonPack.com this is a website for parents with children with ibd. Maybe they will also be able to...
I went for a blood test today, I have had so many in my life...this is the first time she said I cannot get any blood out.and kept jabbing me in the same spot, nothing came out.....then she took it...
about 1600.00 cad for 2 ..1 injection every 2 weeks...
I had imuran tablets and now i have a repeat and they are the apo-azathioprine...do they not make the imuran tablets anymore...I am guessing it is the same? Thanks...
Taken it , did not help me.... Thanks Carmen...
Was on remicade and was not helping , now put on humira , I feel really bad. The thrush is my mouth feels like sandpaper, the nausea and pain is awful . Not sure what to do from this point. LIfe is...
The best way to take is mix a teaspoon into 4 ounces of juice and mix quickly and down it....and then follow with water or more juice..I found that it will not thicken....When you put in a full glass...
Take Care , Hope you come back here soon.... Carmen...
Is this medication available in Canada? Thanks...
amitriptyline , makes me totally exhausted, try not taking it for a day and see if that helps with the exhaustion....
asacol also gives me really bad back pain.......
My doctor gave this patch last week, oh boy, does it knock me out....lowest dose...also the nausea. I thought it being a patch would be easier on the system....I had to take the patch off... Any...
Does anybody get vsl covered by insurance Thanks Carmen...
Does anybody in Canada get vsl covered by insurance..... Thanks Carmen...
Hi Nanners , I have top seniority where I work and I still have to argue for everything.....They don't care, they say we are very easily replaced. Always have to watch your back. It is so difficult...
Which medication is safer?..... Thanks Carmen...
I just ordered 2 boxes of 30 packets for 210.00 cad....too expensive.....anyway I have called my insurance company , they do not cover it ...I wish they did.... thanks Carmen...
I am coming up to my 4th infusion on Saturday, I feel that it is wearing off it has almost been 2 months since my last infusion .... I am feeling so sick and in pain. I am so exhausted all the time....
I have had the flu so bad since christmas eve......I now have this lingering pain in my upper and lower back...kind of a weird feeling and hurts to touch the skin....is this from the flu or side...
I am going for my 3rd remicade infusion today .......I have not noticed feeling better....how long before it starts working? Thanks Carmen...
Do you need to have frequent blood tests while on remicade....when I was on 6mp , I had them... but doctor did not say anything about blood tests while on remicade? Thanks Carmen...
Your story sounds just like mine....I have had crohns for 28 years.....like you the arthritis is really hurting....I am also on remicade and will have my 3rd infusion in 3 weeks.....I am still in...
I am in the same boat....I had my 1st infusion 2 weeks ago....no difference yet....I am going tommorrow for my 2nd.... Thanks Carmen...
I am having my second infustion on saturday, so far I have not noticed any difference....I hope that I will feel a difference soon. Thanks Carmen...
Thanks everyone...... To johnj ...I drove myself home. I am not sure about everyone else... Carmen...
Hi everyone, I was just wondering how many infusions it takes to feel better? Thanks Carmen...
I am going to my first infusion this morning......I hope everything goes well....I am really nervous , I have had crohns now for 28 years, just getting worse and worse, I also have arthritis that has...
Does anybody have back pain when on these meds....I have tried imuran had to come off it... Now on 6mp....and the back just aches and aches....I know it is due to meds.. anyone else? Thanks Carmen...
Go to J-pouch.org....loads of info there... Thanks Carmen...
I am also on 6mp...major back pain and joint pain.....I am interested to know also ...what brand, it is capsule or tablet? Thanks Carmen...
It could be side effect of the medication... Thanks Carmen...
I have 3 feet of my large bowel removed in 1987....I have gurgling all the time too.....I have it alot on the left side where I am connected. I hate this! I wish we could all wake up and feel free in...
Thanks for your reply, that article did not work when I click on it... Carmen...
I am having symptoms , which I don't know anymore what they are?....I have crohns for 28 years. and these symptoms feel more of gynecological symptoms, a friend of mine says maybe I am going through...