As for prednisone, I've never been above 80mg and usually was around 20, and I'm at 10 right now. I'm working with an endocrinologist and my new GI as of this year (the old one wasn't that great and...
Howdy. Yes, that's a common time to get diagnosed. I was right before my 19th birthday, the summer before I went to college. Now I'm a senior in college and still trekking. Sounds like you got a...
I've actually been anaemic since I was a little kid (used to have to get big shots of iron in my bum XD), and what I do is just get infusions about once a year. They always prescribe me oral iron but...
I was on the spring-loaded ones for awhile. Great little things, barely hurt, easy to use. Cimzia needles were way worse in my opinion. Humira wasn't for my body but hopefully it can help you! Ok,...
Hi, folks. I haven't even been on this website for a couple of years, but in the slim chance there are still some of you from then floating around (and even if not), I just thought I'd pop in and say...
I am basically in remission except for like one bad spot, a (small bowel) stricture that occasionally acts up. It's the reason I haven't been able to get off prednsione (been on it a year and a half...
It might be worth looking into low dose naltrexone (LDN). It is a generic that most doctors don't even seem to really know about, at least for how it can be used in such low doses. It works by...
Hello, all, and well wishes. Just got my LDN in from the compounding pharmacy, 4.5mg, non-slow release. I'll take the first one tonight. Those on it, do y'all have any tips, specifically do you think...
Gumby44- I didn't know that about the difference between Pentasa and Asacol. Since they had me on Asacol last time I was in the hospital I figured the two were interchangeable. I'm not sure what the...
I've been on prednisone since June 2012 when I was first diagnosed, and have had to stay on around 20mg. According to my bloodwork I am technically in remission now, but I have a bad spot or two left...
I just finished my first semester of college. Didn't have any major issues. Only had occasional minor discomfort here and there for the most part (one of the only things I've found to consistently...
So what alcohol have y'all found to be ok? For instance, would beer or liquor be better (or less bad) for someone with our condition?...
Thanks for the info. Actually, yeah, I think my Crohn's is acting up a little at the moment. I have an appointment with a new GI doctor (since I'm going to college in a different city) Thursday, so...
Hello all. Hope things are well. I'm enjoying/trying to survive college. Anyway, just recently my feet have started hurting bad. It's the heels. Granted, I've been on my feet more than usual, walking...
Great, thank you. I think I'll check out the Cold-Eeze....
Just wondering if it's ok to take this. I'm starting to come down with something and this is all I have on hand tonight. I plan on getting some zinc + vitamin C tomorrow. I really don't want to get...
Diagnosed with UC in June of this year. Follow up colonoscopy in August, diagnosed with Crohn's instead. But my understanding is that I was so inflammed in June that they couldn't get very far, so...
Truff, I felt the same way about soft drinks. I didn't even realize how much I liked them until they were suddenly "forbidden." But now, after not drinking them for a couple months (well, I've had...
Budesonide is available in the US; I was on it for a few weeks....
I've been on it since mid-June. The insomnia was from the first night, but it isn't as bad now as it was in higher doses (I started at 60mg I'm pretty sure.). I first started to notice my face...
kazbern, don't I know it. I felt like such a bad friend, blowing people off, not going to graduation parties, even going home early on grad night because I felt so bad. And having chronic diarrhea...
I'm basically in the same boat as you, man. I'm trying to taper off of pred right now, too, just as I'm about to start college. For me, pred has resulted in moon face, insomnia, some minor acne...
Hello all. Just thought I'd introduce myself. I was diagnosed with UC in June after battling with C. diff for a few months (and losing). I was hospitalized and was malnourished, low 2+ units of...
I know I posted some of this earlier, but just a little background if you missed that one. On Wednesday I got a colonoscopy and upper scope. Good news is my colon is only 5% irritated, down from 100%...
Have you tried a stool test? Could be something like C. diff possibly. I hope she gets better....
I definitely believe in the good a change of scenery can do. My family has a condo at the beach (on a river across the street from the beach, actually) about an hour 15 away. We go there whenever we...
Hell, I'd grind up the little buggers myself if it meant super awesome healthy colon....
My reality is totally cracked... not shattered, but cracked. I mean, I know docs aren't all-knowing gods, but I didn't realize there could be so much back and forth and uncertainty like that. Huh. I...
Haha, what? I'd never heard of it. Now I'm imagining a kids cartoon about IBD. That sounds like the worst pitch for a show ever... even moreso than about a sponge that lives in a pineapple, lol....
Well, just got back from my colonoscopy and upper scope. Good news is I'm 95% better in terms on inflammed areas, as I was apparently completely inflammed during my first scope back in June (to the...
I found out I had C. diff. a few months before I was diagnosed with UC. I'm not exactly sure what symptoms went with what, but I had lots of diarrhea and urgency, plus blood and mucus. I dropped 25...
I'm on oral Entocort (Budesonide) right now. I can't say whether it's helped, but I have been getting better, and it certainly hasn't hurt. Sorry I can't help more....
I've had cold hands for as long as I can remember. Oddly, I've also had problems with anemia from the time I was a little kid, even getting iron shots in the bum. Maybe I should go stick my hands on...
Interesting. I think a main point is the closing line, "contact with non-sterile food may be a general factor in CAZyme diversity in human gut microbes." All the more reason to eat more whole, actual...
The June issue of Scientific American had a story "Our Inner Ecosystem" which taked about the same thing. "Unfortunately, the inadvertent destruction of beneficial microbes by the use of antibiotics,...
For sure, man. I've actually been responding pretty well ever since being diagnosed and put on meds. I've put on a good 25 pounds (though I'm still skinny), and I went from never having taken any...
Woops, it is Ultimate Flora, ha. I've only been taking them a few weeks, but I think they may have helped with gas and bloating. It's hard to pinpoint what's doing what, though, since I'm still...
I take Ultra Flora Critical Colon (80 billion) as well as Jarrow S. Boulardii. I can't necessarily say thay they've helped, but I know they haven't hurt as I've been getting better. They seem to be...
Good to know that it isn't just my cats that like to come into the bathroom to investigate. We have 5 in my parents house and 1 in the poolhouse where I live. And yeah, my mom is always asking if I'm...
Has anybody tried these? I just started looking into them, and they seem like they might be a good way to let the villi rest up a little....
That's what I was thinking. I am able to swallow them, so we're good....
Just wondering if it makes any difference if I take my pentasa by just swallowing the capsules whole or opening them up and taking them with something like applesauce? I started out doing the latter...
I'm still new to all this, but I've I've been taking Renew Life Colon Care 80 billion and Jarrow S. Bouldardii + MOS at bedtime. I don't think I've been stable enough to ascribe certain pros or cons...
Chrissy72, that's kind of weird, because everything for me started with a bad sinus infection earlier this year (104 fever kind of bad). After that I started with D, then finally got a stool test...
I think I might try some biotin supplements. It looks like it also helps your skin and metabolism as well, which I could always use. Thanks for the tips....
I noticed recently that my hair is starting to thin. My guess is that it's from the prednisone or maybe pentasa? Anyway, have any of you experienced this? Any pointers for ways to lessen it, like...
Yep. I suffered from a C. diff infection for something like 3 months as I basically withered away (I had a very bad GI doctor). I took one round of vancomycin but it didn't kill it off. I was...
I just started on entocort (budesonide) today to "replace" prednisone. They've got me on 9 mg/day for 2 weeks, then 2 weeks of 6 mg, and then 2 weeks of 3 mg. Unfortunately I can't tell you anything...