So glad you're feeling better. Hope it continues for long after your taper ends. We deserve a spell of feeling good. TewCute-what does your doctor consider a short burst(# of days and at what dose)?...
Thanks for the quick reply. My doctor has never suggested that approach. I hope it works for you....
Sorry you are feeling so poorly--hope you,re beter soon. Just a quick question. What ddoese of prednisone do you take for a one week taper. I thought prednisone was prescribed for at least 8 weeks....
doc says I have crohn's colitis--colon is where the inflammation is. biggest problem right now is weight loss....
Just saw your answer. Thanks. Unfortunately I have to start pred again ; / not happy. I wonder if colazal would help with crohn's colitis. main concern is continued weight oss which I guess won't...
Good Morning Kazber, can you share any info on colazal? trying to keep this toward the top so you see it....
Kazbern-hope you see this : )...
I know what you mean--so hard to live a normal life....
Hi Kazbern, I noticed you take colazal--but do you really take 96 pills! I'm interested in any information you can share about this drug. I'm on Apriso but when I meet with my gastro at the end of...
Thanks for the replies. I am feeling much better. Dr. added Flagyl to the mix because of an abscess. Perhaps entocort and flagyl will be my magic bullet. Now to put on some weight!...
I've been on entocort for 9 days. It is my first time taking it. I still have night sweats and low grade fever. I still awaken at 5am with gas and urgency followed by explosive formed soft, tan bm....
I, too, have taken LDN for awhile and I am not sure it has helped since I still flare once a year....
How frustrating. Hope a convenient cancellation falls your way...
Hi You Don't LOOK Sick. Thanks for the kind words. Love your screen name. I just smile whenever I hear that....
Thanks Dorri and bananagirl. I couldn't find the coconut oil today, I'll check other stores tomorrow. I'll let you know how I'm doing. Stopping the weight from falling off would be such a great first...
Thanks NCOT just saw your response. I only go to the bathroom about 4 times a day but just lose weight quickly. Never gained any weight when on pred. Actually appetite has not been great. Have been...
Wow! Thanks for all the good suggestions. I am going to see if my market has cocont oil. That seems like a simple way to add calories. I could add it to my almond milk shakes. I wish I could drink...
I've always been thin and gaining weight was not easy. With my current Crohn's flare, I have been losing weight==now around 10 pounds. Any suggestions of how to gain. I am lactose intolerant. I've...
I saw him on Friday when he prescribed the entocort. I'm supposed to call in a week or two and let him know how I am doing. If I'm not significantly better by Thursday, I will give him a call. I wish...
NCOT- Thanks for the info. I don't have any enemas, but I do have Canasa. Do you think I could try them until I speak to my gastro....
I am trying to get out of a flare. My gastro put me on Entocort for the first time three days ago--so far no improvement. I've be on prednisone twice in the past. For maintainence I've been on...
How long have you been on entocort and at what doseage? Are there side effects? I was just put on generic entocort--8 weeks at 3 capsules a day and 2 weeks at 2 capsules a day. Is this a standard...
Don't know what happened to my earlier post--is clay only for UC or also for Crohn's...
Can these clays help someone with Crohn's or is it just for UC. I am in a flare, trying to avoid prednisone....
Thanks all. off to get blood work done this morning....
Thanks for the responses. This does not feel like a terrible flare, and I'd rather not take prednisone for a third time. Maybe I'll just wait it out and see what happens. Again thank you for the...
what are raw adrenals...
what's the shortest time you've been on prednisone? how did you taper?...
no chance of a faster ,and/or shorter taper?...
* What is the shortest amount of time on prednisone for a flare? How quickly from first dose to last. many thanks ...
Thanks gumby44. can you tell me what you mean by a short prednisone taper? I should have added that I had been taking 6 capsules of Metamucil for quite a while and stopped about 4days ago to see if...
I've thought I was in a flare, but am I? If it is a flare, can I get out of it without taking prednisone. I've been on it 2x and don't want to do it again. I've been on a bland diet. This has been...
I've been making smoothies with almond milk, bananas, and peanut butter. You could use whatever is kind to your tummy. I find it an easy way to get some calories. Good luck! I hope your dx turns out...
Gumby44, We certainly are different! Milk products such as yougurt and ice cream cause me bloating and gas. For my smoothies I use almond milk and soy milk ice cream. Bananas are the only fruit I...
Hi Sparkleplenty, Thanks for responding. I will take one l'glutamine capsule in the am and one in the pm. That will give me 2 grams a day. You are fortunate to have a naturopath. They are not...
Kazbern, I can't thank you enough for your responses to me. I feel so alone with this disease although I know I could be much worse. Having someone to bounce ideas off of, makes it alittle better....
Thanks for the quick reply Kazbern. Maximum dose of Apriso is 4 a day. I had been taking florastor (sacc. boulardi) and culturelle but stopped a few days ago to see if it made any difference--but it...
Hi kazbern Thanks for the quick response. Yes, I take 4 Apriso caplets after breakfast daily. I might have had a bug around June 10--low fever, fatigue, . That's really when the cramps,weight loss...
Two weeks ago I started losing weight, having increased cramps and bms. BMs are soft, formed and short. Have been taking immodium (up to 4 a day) and hyosciamine (.125mg) 3 to 4 times a day. I tried...
I've had that for the past two weeks. Brushing tongue with salt water and with diluted hydrogen proxide seems to help. Also frequent brushing teeth. Mine seems to be getting better. Not sure why it...
Could you post the website for the study? There are over 500 clinical trials listed for crohn's at clinical trials.gov. Don't know which is the right trial. Thanks....
Hi Gumby44 I tried typing the link instead of doing a cut and paste and it worked. Strange!...
Thanks for responding Gumby44. The link you provided says the page cannot be found. Don't know why....
I have Crohns which is not giving me too much trouble. However I contracted Lyme Disease. Several years ago I had c diff which was caused by amoxicillin and cured with Vancomycin (Flagyl didn't work)...
Thought this was a place to share info with others. Sorry. Your first link was too technical for me. The second denies me access....
Has no one with crohns tried sodium butyrate...
Can't anyone tell me if sodium butyrate helps crohns....
Hi All,I have Crohn's but often check the uc board. I read the posts on sodium butyrate and have some questions. Is it only helpful for uc not crohns If it can help crohns, what is the doseage Do...
What improvement can I expect? How long does it take to see a positive change. Thanks....
So no one with Crohns has tried sodium butyrate . I will check over at the uc board. It has some research behind it so it might be worth a try. have to learn more about it....