It doesnt always work that someone else with a chronic illness can understand. I was with my ex for 7 years, when I mety him he had UC, shortly after we met I was diagnosed with crohns. I was very...
When you dare not EVER wear white trousers...
I had a bowel resection by open surgery in Feb 2011. I am not on any meds and eat normally. I occasionally get a bad week when I have some slight pain but that only happens say twice a year. My only...
I had a resection in Feb 2011. I have been okish since. However, in the last 3 months a lump has appeared to the left of my surgery scar. It swells up when I do too much and becomes hard to the...
Hi All I recently took out a mortgage and I am trying to get life insurance to cover my mortgage. I have been turned down on my crohns and associated liver disease. Has anyone found a way round this...
I used cream hair remover on my face when I was on Pred, I used it twice. It never did me any harm and it made me feel better. about 3 months after I came off the pred I notcied the extra hair on my...
I had a bowel resection in Feb 2011, I had about 26cm of bowel removed due to the fact that I had a abscess the size of a golf ball caused by diverticular disease, but I also have crohns. I was told...
For me it was the best thing I could have done, my quality of life was so poor. I had my resection Feb 2011 and as far as my crohns was well worth the 3 month recovery...
I too have fatter liver, for about 8 years. I can no longer drink alcohol without becoming unwell. I also had a problem when taking the drug azathiroprine. It affected my li8ver and I was jaundiced....
Im sorry to hear you feel like this. I havent posted for a while, but have always found this forum to be very supportive. I have found Pb4's posts to be helpful too. I dont feel that anyone has every...
A year last February I had an open resection after been ill for over 5 years. Just as I got better my partner of 7 years dumped me and left me with nowhere to live. I was heartbroken.He also had...
I had infusions for two years. I drove myself home every time. I used to feel tired for a couple of days but it didnt stop me getting on with my life, and I would have a drink if I needed one....
Sadly all the advice is too late folks. Tonight he kindly rang me as I was about to go to bed and told me our relationship is definately over. He stil loves me and cares for me but that isnt enough....
Tsitodawg Such nice kind words, I got a bit weepy.It is good to hear a mans perspective. My partner has been quite ill lately but not with his crohns. It did get him down. He does however, work full...
Thank you Nanners...
Crohnie too I am very lucky that I have a full time job and lots of lovely friends I agree I must get on with my life but at the moment I am living out of suitcase in my friends bedroom. Her husband...
I am just so sad, I cant stop crying. I have been with my partner for 7 years, he too has crohns. I love him to bits, but on Sunday he asked me to move out for a few days so he could have some space....
I was on it for 2 years. I didnt take anything with it. I would be tired the day of the infusion and then would get a sinus type headache for 3 days. But it put me into remission (fingers crossed)...
Anastasia has crohns...
So glad to hear you are home. Take care and lets hope you are feeling much better soon x...
I considered a dental implant at one time, but my dentist told me that if there was any chance I would take steriods again in the future it would be inadvisable to have an implant. He told me...
I had cervical cancer and cancerous polyps about 10 years ago. My symptoms were very few, apart from smelly discharge and bleeding after intercourse. I had a knife cone biopsy, when the removed the...
leg cramps (charlie horses) can also be caused by low Vitamin B12. I was low in potassium after my resection in Feb. They gave me a tube of supplements, tablets to disolve. I had those for a week and...
Im 4 an a half months post resection. I get the odd twinge (nerve endings I think). And my scar is tender if my clothes rub too much. But otherwise Im ok...
I had my resection on 1 Feb, took me 3 months to get back to normal. But boy, am I glad I had the resection. I feel great, feel like I have got my life back. Long may it continue...
I had an open resection in Feb this year. I was in hospital for a week and off work for 12 weeks. Driving again after 6 weeks. When I came round after the op I had an epidural in and was also given...
Roni Like you I had a recent open resection on 1 Feb. I too have odd days of pain, mainly in different places, it usually lasts a few hours but then goes off. Never seems to be in the same spot Not...
Im so sorry that you are sufferring so much Zanne, I hope you find some answers and something to ease the pain soon (((hugs)))...
I had a bad sinus headache about three days after my infusions. I started taking sinutab the day of my infusion and the day after and this seemed to do the trick...
I dont have children but I do work full time and have a good social life. I may go to the gym but Im not very fit and am rather overweight. ha ha . I dont fit the picture of the typical crohnie...
It is suprising how each week you will notice the difference in your walking. The first 4 weeks I could hardly walk for very long at all. I would ache and feel really uncomfortable. I am at the 3...
Hi Conker I had a sigmoid bowel resection in Feb by open surgery, so a bit different. My bowel movemenmt went back to normal within about 3 weeks but I think that varies. I felt back to normal after...
I used factor 30 in Portugal at temps of 27c. I still burnt a little, but I think factor 30 would be ok for the UK...
Im so sorry for your pain and sadness tabicat, it is right in what the others say in that he doesnt dserve to be with you and you sure deserve better. There are lots of people on here that have...
I did well on this for 2 years, it put my crohns into remission. I had little in the way of side effects, I just had more frequent sinus infections (which I am prone to anyway)....
I too am overweight and have a fatty liver. My liver enzymes are often affected by medication. At my worst a hepatitus type illness. Sometimes antibiotics affect my liver sometimes they dont....
I hate pred because of the side effects it gives me. I now ask for budeonside instead. Its a steriod that releases in a different part of the body. My doctors mutters at me because of the cost (its a...
Zanne - I think you should keep pressing the doctors as I agree with the others I do not think that your pain should be getting worse. I send my hopes and best wishes that things pick up for you...
I have taken Citalopram on and off for the past 8 years. It causes no problems with my IBD at all. In fact the worse times for me are when I have come down off the anti depressants and then I cant...
I cant stand the lack of flexibility in jeans, so uncomfortable. Im 2 months post op this week and am only just getting back into normal clothes. But my healing wound doesnt like zippers much. I have...
Roni, I was put on anti biotics about 2weeks after my op for a small infection. In the hospital I was on Iv antibiotics for 3 days. Now Im on 2 different antibiotics for the next 2 weeks. Phew!...
Hi Roni and Zanne I totally understand how you both feel (((hugs))) Roni - glad to hear you are doing ok. Zanne - Im sorry that you are not feeling so great. Im 8 weeks post on on Tues, and am...
its my understanding that us crohnies need b12 jabs because we dont absorb it otherwise. So Im not sure b12 supplement tablets or drinks would help...
I agree that I wouldnt wait and would take the remicade. I was on 6mp and it casued me liver problems - I went onto remicade straight away, and iot worked for me. I only came off because I had a...
I am soon to travel to Europe and was having trouble getting travel insurance to cover my crohns (mainly because I have had surgery in the last 12 months) However, I have now got insurance for a...
Pinkstar Welcome, and glad to hear that you now know what is wrong. Hope you can now get some help By the way - I am from Yorkshire. England...
I have previosly taken azathrioprane (imuran is the same I think). After using for 2 years it casued my liver enzymes to go sky high. I felt like I had flu, I had no appetite, was sick on an evening...
Good luck Zanne and speedy recovery...
Roni, I will be wearing a full swimsuit, so my scar will not see any sun. I dont think anyone else would want to see my scar either, as I had open surgery and its 12 inches long. I stopped taking my...
I have had my bloods done recently and I am not anemic. I did have a slight infection but that has cleared up. Before my surgery I had a large abscess and felt very unwell and was very unfit. Maybe I...